Aa
MAY we get your weekly report?
The first week of May, already? Yikes, where is the time going? This is our weekly roundup here of happening that everyone should know - it doesn't have to be MS related or even medical. This is your chance to share, because we care.
Sarahsmom will be having gall bladder surgery this week, hopefully on Monday if there is a surgical suite available. She is sooooooo ready to separate with this useless body part, and hopes this will stop the pain and nausea so she can focus on regaining her legs.
I have MIL's funeral on Wednesday, and quite a a few odds and ends to prepare. Visitation and out of town house guests are both happening on Tuesday.
So how about the rest of you ? What's up this week
-Lu
Sarahsmom will be having gall bladder surgery this week, hopefully on Monday if there is a surgical suite available. She is sooooooo ready to separate with this useless body part, and hopes this will stop the pain and nausea so she can focus on regaining her legs.
I have MIL's funeral on Wednesday, and quite a a few odds and ends to prepare. Visitation and out of town house guests are both happening on Tuesday.
So how about the rest of you ? What's up this week
-Lu
SLLOWE,
IT IS REALLY ME, IN BETWEEN CLASSES SO I HAVE SO TIME TO CHECK ON MY CYBER FAMILY.
T-LYNN
IT IS REALLY ME, IN BETWEEN CLASSES SO I HAVE SO TIME TO CHECK ON MY CYBER FAMILY.
T-LYNN
I made it through my first week on Copaxone. Go back to see Neuro Thurs. All the best Linda
I have another MRI scheduled for tomorrow morning after my last visit with my neuro showed new weakness, especially on my formerly "good "side.
It was quite the struggle to get it approved as I wanted it done on the same machine that produced the MRI that resulted in my MRI. That machine has the best software in the city and I wanted the neuro to compare apples to apples if changing my dx was in the mix. The issue was neither facility was "authorized " to pre-cert an MRI if it was done by a radiologist or neurologist without privileges at their own facility.
At least the two facilities cooperated and went out of their way to make sure I received the pre-cert before tomorrow.
Wish me luck as the claustrophobia increases with each MRI. Thank goodness for Ativan!!!
It was quite the struggle to get it approved as I wanted it done on the same machine that produced the MRI that resulted in my MRI. That machine has the best software in the city and I wanted the neuro to compare apples to apples if changing my dx was in the mix. The issue was neither facility was "authorized " to pre-cert an MRI if it was done by a radiologist or neurologist without privileges at their own facility.
At least the two facilities cooperated and went out of their way to make sure I received the pre-cert before tomorrow.
Wish me luck as the claustrophobia increases with each MRI. Thank goodness for Ativan!!!
What a week all are having!
T-LYNN!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Is this really you!!!!!!!!!
Holy Schmoley!
T-LYNN!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Is this really you!!!!!!!!!
Holy Schmoley!
T-LYNN HAS A BUSY WEEK 3 ESSAYS YET TO COMPLETE, I WORK BETTER AT THE LAST MINUTE. THEY ARE BASICALLY DONE.
3 DOCTORS APPOINTMENTS AND A DAY WITH MY 7 MONTH OLD GRAND DAUGHTER.
HER NAME IS RYLIE ANN AND SHE IS THE HAPPIEST BABY, ALL SHE DOES IS LAUGH AT ME. YES, I HAVE HER SPOILED.
T-LYNN
3 DOCTORS APPOINTMENTS AND A DAY WITH MY 7 MONTH OLD GRAND DAUGHTER.
HER NAME IS RYLIE ANN AND SHE IS THE HAPPIEST BABY, ALL SHE DOES IS LAUGH AT ME. YES, I HAVE HER SPOILED.
T-LYNN
Opps! When I did my report eariler I forgot about the VA Neuro Appt that happens tomorrow Wed.
Dennis
Dennis
hope to meet with a friend tonight after work. that's always fun except i've been really pushing myself lately.
didn't realize Sunday is mothers day. Maybe why i was choked up with watery eyes this morning. mom died 19 months ago and i am making a new life. Been a caregiver a long time and now its my time. Wish,my legs, fatigue and whoever has that voodoo doll that keeps stabbing me would let me.
Monday have neuro appt. he will either want another useless MRI ( yes I'm jaded to them) or another "lets wait and see". Maybe he can tell me if chest pains could be neuro related. cardiolite stress test came back normal on pics and inconclusive on ekg. so maybe just faulty wiring?
geez, i need a life huh.
didn't realize Sunday is mothers day. Maybe why i was choked up with watery eyes this morning. mom died 19 months ago and i am making a new life. Been a caregiver a long time and now its my time. Wish,my legs, fatigue and whoever has that voodoo doll that keeps stabbing me would let me.
Monday have neuro appt. he will either want another useless MRI ( yes I'm jaded to them) or another "lets wait and see". Maybe he can tell me if chest pains could be neuro related. cardiolite stress test came back normal on pics and inconclusive on ekg. so maybe just faulty wiring?
geez, i need a life huh.
Your reference to Tuesday is tantalizing -- I'll pop in tomorrow to see what you're talking about!
Heading to L.A. later this week to attend the Race to Erase MS benefit to raise $$$ for the Nancy Davis Foundation. My all-time favourite band Heart is performing, I am excited about that! The event is on Friday night. Saturday morning there is a symposium where the latest findings of the studies funded by this charity are presented by some of the leading MS researchers in the U.S. I will post as a separate item with details re: location, time, agenda. I have just enough time to attend make it to the symposium and then must rush off to the airport for my flight home. Wish I was staying longer, maybe next year.
Drs appts trying to figure out left side abdominal pain. Ultra sound then CT Scan with Barium and Contrast dye were negative. Who knows?
Alex
Alex
It sounds like a smorgasboard of activites this week -
Good luck to everyone with birthdays, walks, weddings and work.
Anyone else have anything exciting to share?
I hear that Tuesday should be a great day here on the forum - I hope the rumor I heard is corrrect. You will be over the moon if it really happens.
best, Lu
Good luck to everyone with birthdays, walks, weddings and work.
Anyone else have anything exciting to share?
I hear that Tuesday should be a great day here on the forum - I hope the rumor I heard is corrrect. You will be over the moon if it really happens.
best, Lu
My b-day is Wednesday :)
I'm working & walking at my first MS Walk on Saturday. I've raised over $750 so far - more than I ever expected so I'm super excited about that!
I'm working & walking at my first MS Walk on Saturday. I've raised over $750 so far - more than I ever expected so I'm super excited about that!
I'm finally feeling mostly human again after the vertigo last Monday. I'm on the prednisone taper right now and it is getting easier. I spent all last week having to make myself eat and now for the last 2 days I'm just HUNGRY. Hopefully that will not last long, because I have enough issues with my weight LOL
Other then that, I'm going to try to get back into my regular routine, but I'm giving myself permission to ease into it a bit.
This Sunday, for Mothers Day, we are going to opening day at a local amusement park. We got seasons passes for Easter and I'm really looking forward to going. My doctor warned me a while ago, even before this vertigo episode, that I might not be able to tolerate the roller coasters anymore. I hope he is wrong about that.
No appointments until my follow up from the vertigo/steroids in about 2-3 weeks.
Lulu, I'll be thinking of you on Wednesday. ((hugs))
~Jess
Other then that, I'm going to try to get back into my regular routine, but I'm giving myself permission to ease into it a bit.
This Sunday, for Mothers Day, we are going to opening day at a local amusement park. We got seasons passes for Easter and I'm really looking forward to going. My doctor warned me a while ago, even before this vertigo episode, that I might not be able to tolerate the roller coasters anymore. I hope he is wrong about that.
No appointments until my follow up from the vertigo/steroids in about 2-3 weeks.
Lulu, I'll be thinking of you on Wednesday. ((hugs))
~Jess
Recovering today from being at a HUGE water park all weekend. Lots of fun with baseball tournament activities as well. We all had a super time, but my leg is not happy with me right now at all :
Work tomorrow, hopefully my leg will cooperate.
Family coming in towards the end of the week for my mom's stone setting on Mothers day. Going to be a very difficult time, with lots of sadness for all.
I will be glad when it is over.
Work tomorrow, hopefully my leg will cooperate.
Family coming in towards the end of the week for my mom's stone setting on Mothers day. Going to be a very difficult time, with lots of sadness for all.
I will be glad when it is over.
I have my appt with the MS specialist tomorrow morning (hope that goes well). Very nervous about that.
Daughter is turning 15 on thursday. So I will be shopping this week and celebrating her bday. Will also be taking her to get her learners permit next week. They grow up soooo fast.
Daughter is turning 15 on thursday. So I will be shopping this week and celebrating her bday. Will also be taking her to get her learners permit next week. They grow up soooo fast.
Calendar shows neuro follow-up on Thursday as the only thing besides routine. I guess I'll see Thursday where things stand. So far, I am still doing pretty well. I really think I could leave the cane in the car most of the time now, but it's that rest of the time -- and never knowing when that will hit -- that keeps it with me.
Starting a series of sermons on family that will run from Mothers' Day to Fathers' Day, so I will expect to spend a little extra time outlining things this week.
Job hunting, too. Nothing out there in my field(s), but we haven't found enough sponsors to stay in ministry full-time, so far. Spread thin, financially, and the church couldn't pay me this week because they are, too.
Behind on a paperwork project, getting ready to sell the old church parsonage. I have to write up the deal, & it's not a simple one.
All that, & I think I need more sleep than I've been allowing myself to get, most of the time.
Starting a series of sermons on family that will run from Mothers' Day to Fathers' Day, so I will expect to spend a little extra time outlining things this week.
Job hunting, too. Nothing out there in my field(s), but we haven't found enough sponsors to stay in ministry full-time, so far. Spread thin, financially, and the church couldn't pay me this week because they are, too.
Behind on a paperwork project, getting ready to sell the old church parsonage. I have to write up the deal, & it's not a simple one.
All that, & I think I need more sleep than I've been allowing myself to get, most of the time.
I am still doing better, but my memory is starting to fail again.
No appoints I cannot afford to pay for anyway.
Have to buy scripts though.
No appoints I cannot afford to pay for anyway.
Have to buy scripts though.
I go this afternoon to be hooked up for a 3 day EEG. That should be fun! I get to come home with it and go back Thursday afternoon to have it taken off.
I had a 20 minute EEG back in feb that showed spikes in the left parietal lobe....so now the 3 day to see if I am having seizures.
I had a 20 minute EEG back in feb that showed spikes in the left parietal lobe....so now the 3 day to see if I am having seizures.
Well today is a holiday in the UK no work!
I should get the results of SSEP this week, I should of had them last week but when I phoned the neuro office my notes had been sent to the wrong neuro so the results had gone with them. This was due to me having a second opinion 3 weeks ago. But it has to be said this isn't the first time it's happened the results are now on neuro desk the secretary can't possibley tell me what they say!
I should get the results of SSEP this week, I should of had them last week but when I phoned the neuro office my notes had been sent to the wrong neuro so the results had gone with them. This was due to me having a second opinion 3 weeks ago. But it has to be said this isn't the first time it's happened the results are now on neuro desk the secretary can't possibley tell me what they say!
Monday - I have follow up tests - VEP and SSEP - with the useless neuro who I am sure only ordered the tests to get me and DH out of his office. Wednesday is my cousin's Wedding rehersal that my boys are taking part in, Thursday is my boy's musical/drama performance for school. Friday my son's track meet and Saturday the Wedding and Sunday is Mother's day. No wonder I didn't think fatigue was related to my symptoms! lol
Anna
Anna
Well I have 3 appoinments on Tuesday at the VA, assuming that they don't call and cancel them due to the flooding in Nashville. I heard something about problems at Vanderbilt Hospital due to the weather and they are next door to the VA. If I do end up having the appointments they are:
Opthomologist at 2:30
PTSD C&P at 3:00
Audio C&P at 5:30
I'll probably need to take a nap before I head home after all of that.
Dennis
Opthomologist at 2:30
PTSD C&P at 3:00
Audio C&P at 5:30
I'll probably need to take a nap before I head home after all of that.
Dennis
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