Hi Pam - Welcome to our group. I'm sorry you're having a hard time getting meds.
I'm not sure I understand the reference to Montel Williams in your subject. You do not mention him in your post. One thing I want to clear up is the transition of RRMS to PPMS. Thus does not happen. RRMS never becomes PPMS. PPMS is an initial diagnosis. Perhaps what you meant was RRMS transitioning to SPMS, secondary progressive MS. This transition is common in people initially diagnosed with RRMS.
That is terrible. I also have PPMS. I went two years without insurance. I used the cheapest drugs available or doctors samples. There are options.
Many of the drug companies have financial help programs, you have to find them on the internet and call them usually. Biogen has a great program.
I guess the Neurologist was wrong. First diagnosis was RRMS in 2005,in Maryland. My neurologists here in Fl. diagnosed me with (PPMS). Primary Progressive Multiple Sclerosis.I have read and been told that diagnosing PPMS can take a few years since first diagnosis of any MS. This is due to the slow progression. PPMS is slow, some cases very slow. Any way thank you for your time. Appreciated. Pam2005 :)
Thank you very much for the useful feedback. Do you mind if I ask when you were diagnosed with PPMS and are you mobile? Hugs Pam2005
Thank you .I am going to check that out. pam2005
I was diagnosed in 2009 with MS and PPMS 2010. I have had PPMS since my first attack in 1965. I am some what mobile. I use to walk better. I have permanent double vision, vertigo, cognitive problems, mood disorders, and pain. I also have stage 4 Cancer. I am 50. PPMS usually is slow until you are in your 50's. Each case of MS is individual. Doctors can guess how fast it will progress but they do not know. Cancer is the same. I am supposed to be dead but I do not play by the rules.