I am a 21 year old girl, I weight 95 pounds, and am 5 feet tall.
Jan 17th I was diagnosed with shingles and also treated for severe pain in legs.
I am trying to be patient, as physician is currently doing blood tests for suspected autoimmune disease. But do not feel like a top priority patient to her, but is an awesome physician and do not want to switch unless needed
For as long as I could remember, I was told that I had anemia and blood test determined this to be true. Some days the pain in my legs hurt to no end. Other days there is just mild aching, but still painful. I also receive up to a dozen or so bruises at a time on my legs. As I get older it has gotten worse, no matter the vitamins I take daily. The pain,bruising, and pink and white blotchiness all over legs was something I had always blamed on being anemic and had blamed it on not taking enough supplements. BUT the weird thing is my bloodwork when going to ER that I was not anemic but my symptoms are the worse theyve ever been.
A month or so before my Shingles outbreak I had been having many new problems that I did not pay mind to. I have always slurred my speech but I believe that to be adderal-related. But I live with my boyfriend and my 2 yr old son and lately brooks, my boyfriend, becomes annoyed and has been getting on me about talking loudly when I do not realize it. But, I am small and my voice in generally quiet until lately. But that is not as frustrating to me as not remembering something ive done 2 seconds ago and repeating the same thing, whether it comes to changing my sons diaper or accidentally double dosing my meds. Luckily I have not experienced overdose. I have also lost my ability to think AND talk at same time, I would be talking brooks or my mom for a good while but at some point It becomes difficult for me to find the simplest words and I struggled with this as I aspire to be a writer and words were something I was amazing at, and let me tell you, my mood had gone down tremendously. My son, elijah turned 2 on the 17th which is the same day I had broken out with shingles. I had asked my mom to help brooks plan MYsonzs birthday party at a museum later this month. My thought process is too impaired to plan my sons birthday party! This is not even half of what I am going through.
My physical appearance has changed quite a bit, but I also had the shingles outbreak on half of my and even though I have been on anti virals for 6 days it seems to have spread behind my ear and same sensation of pain on neck but goes away almost completely after taking lyrica but my does improve pain in neck by the shingles or lower leg. My skin is very fair but blotchiness or a tinted blue or redness is occurring often throughout entire body, which has been something that has happened in a long time.
One more upper body problem while doing research is the eye symptoms. I have perfect vision which my boy friend had loved about me since his is very poor. For the past few days I have not been able to read with out closing left eye. And is especially bad in dark rooms when trying to watch TV or tying on my device, which left eye is closed since I have started. If I attempt to open both eyes whatever it is I am looking at either goes to double vision or everything spins around making me extremely dizzy. And throughout day is itchy. First I had thought it was shingles but was located on opposite side.
Okay, so down to my legs. For years I was being told that my problems were due to anemia. And for years 1i had been told that I am anemic. But the last time I was actually verbally outloud that I am anemic was when I was pregnant and my iron was at 7 which should have been in atleast upper 30s I believe that is what the nurse said. So I went to ER for shingles and severe leg pain and unusual bruising. That is when I found out I am NOT anemic. That had blown my mind. I am in the worst pain has been in to date. From knee down is tingly and whenever I move or walk I cant help but cry at stabbing pain, the bruising aligns perfectly with other legs. 3 nights ago it was around 1am I had take off my pants to discover my legs and the most unusual white patches that were similar to bug bites the size of a half dollar. The blotches of pink and white covered my legs and when pressed down my skin area went white stayed white fot 10 to 15s. Which is also something new. And tonight was the night that was sent over tbe.edge when I had lightly ran my fingers gently and my hair usually very heathy, started falling out.
I am tired of not being a to motber my son, who is my.world. I miss holding him.
My next appnt is monday but my pain, mental and physically overwhelming. I want to know what is going on with me or atleast feel like top priority. Rather than wait weeks before next appointment.
I post this here because I believe I have MS. I know it is more difficult to diagnose but my dad was persisting I get at MRI over and over again. But he is slightly hypochondriac. But tonight doing a good amount of reading started to think my father was right. 3 cousins all 20+ years older have MS and anothet cousin with huntingtin disease. My grandma had parkinsons and alzeimers which my aunt with huntingtins, my grandpa, and cousin with MS have all passed away.
Thank you to whoever takes times to read this I know most of it is hard to read and messy but being able to think has become significantly more difficult.
I just wanted to know if there is anyone my age who can tell me what their behavior as well as mental and physically abilites were because some light into this is really what I need from a young adult diagnosed with MS.
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