follow up appointment after diagnosis

[becker1984]

Hi, I was diagnosed in August after a really rough year of tests and feeling like I was suffering a mental breakdown and I was imagining my symptoms.
Truth be told I was in utter shock when I was seen by the neurologist who explained I had my lesions in my spinal cord rather than my brain which was why they kept missing it.

My question is i have been having various 'symptoms' I don't know whether they are normal or they are ms related

Tingling legs constantly made worse by walking short distances and standing for long periods
Intense itching of my arms (I tried taking Puriton but to no effect)
Headaches that feel like my brain is going to burst out of my head
Fatigue that literally feels like my body is attached to weights that is pulling me down so I can't move.
I did have a week of pains in my legs but since it went they haven't come back.

I'm not to sure if these are ms symptoms or not. Should I take a list explaining these or not. It's all new to me and I just feel totally bewildered by it all and don't have any support at home.

Please if anyone could help I would be very greatful I feel like I'm a drama queen and burdening my relatives because I've been told I have benign rrms so I shouldn't have any symptoms should I?

Thank you for taking the time to read this xx

[4happygnomes]

I am currently where you were before your diagnosis in August.  Limbo land is a terrible place to be!  I have the exact same fear that clinched your diagnosis, I really believe I have lesions on my spine that have not yet been detected.  I'm so sorry you received a MS diagnosis!  

It is really hard to go through all of this without a support system.  This group is wonderful to reach out to with questions, concerns,  or just for someone to listen to what you are going through.  

I hope your symptoms calm down for you.

Karen

[Corriel]

Hi there and welcome to the group. You'll find most of us (if not all of us here, diagnosed or in limbo) would call benign MS absolute nonsense. There is no such animal.

You have a lot going on and the first year after a diagnosis is something we call the emotional roller coaster. It is a tough time, even more so if you do not have support on a regular basis.

A lot of your symptoms sound to me like they could be MS related but I am also wondering if they could be side effects from any medications if you are currently taking any.

There are disease modifying therapies for MS as well as medications that can help with symptoms like fatigue.

New symptoms are definitely worth keeping track of, but usually only if they stick around for a while, if any become too much to deal with then a call to your neurologist's office is in order.

Since you mentioned the lack of support I would definitely consider seeing a counselor. Most of us with a diagnosis found that to be one of the most important decisions that we made. The benefits are too numerous to count.

Hopefully others will chime in soon,

Corrie