MS in Spinal Fluid ??? (NO ) W/ Scattered High Signal Lessions

[mommies4]

Seen My Neuro-Surg. Nurse says my spinal fluid came back with no abnormalities,? is Could I still carry a dx of MS without it showing in my spinal fluid

? is I go through relapses every few mths,W/ sx getting greater in pain,new pains,attacking mainly muscles poss. tendons., bladder,speach,spasms all over,shock sensations,twitching left thumb,electric waves in face,and more

wont list everything , for 3 years now... I've been here long enough to know we are not Doctors,just need input PLEASE,                                   Thanks in Advance ! xxxx mommies4

[mommies4]

Thank you all ,,

     I'm so still confused and with many questions ! I now know I still can't completely remove this one as not being the most possible problem.You know you read that its hard to find a doctor that has enough knowledge ,to figure this out,I'm finding out this is going to be a long road !  

I have a another ? I would like to throw out there... Can MS Pain be so Random,go from one side of the body to the other,mainly it's my left side thats gives me trouble,

I have had wekness and sore feeling muscles also on the right,Agian this AM I woke to what felt like my carpal tunnel right wrist ,

shortly went away then my upper arm muscle its weak and sore. hard to lift and vaccum,ofcourse this can last hours ,days or months .... IS this typical of MS at all ....

I really want to thank all of you this is more help then you know,It's sometimes is the not knowing answers to your questions that can drive a person crazy,xxxxx Angie  

[Guitar_grrrl]

I, too, have negative spinal fluid, and have been diagnosed RRMS with just brain lesions.  Even though my spine doesn't show lesions on MRI, my neuro exam says they're there.

[gypcwmn]

My spinal fluid showed no abnormalities. I have a diagnonsis of ms, brain leasions and spinal lesiona

[COBOB]

The cell counts are done in the local lab.  So are CSF cultures (they can take up to a week.)  The OCB test takes quite a bit more time.  OCB may have been done, but the results come separately (at least mine did.)

Bob.

[JSSL]

Hi Mommies - I am Dx's as RRMS and my spinal fluid was normal as well. I hope you can find a neuro who is willing to get to the bottom of your issues...normal tests or not! Take care :)


COBOB - Thanks for the input on the Isoelectric Focusing for OCB. Since my results came back in less than three business days, I can safely assume that this test was not used.

[COBOB]

The Isoelectric Focusing  for OCB test typically takes 4-6 weeks to get the results back.  Most labs do not do this test and they send it out with a vial of your blood to a specialty or reference lab.  Even the University of Colorado Heath Science Center doesn't do this test and send it out to the Reference Lab at the Univ of Utah.

Bob

[crwriter]

Ahh lumbar puncture tomorrow, so I do not know.  Personally I hope mine is clear.  I do not know but do hope this will indicate a lack of progression.  I have a really sharp Neuro (I think) so we shall see what she says.  Do not see her for a few weeks after this, so unless I request test results, I will not know.

[mommies4]

Hi COBOB ,

   Thank you ! No I'm not,i had 2 visits with a Neuro just recently,a real Fruitcake,so I guess I move on to the next one,I see a neurosurgon,for  Pseudotumor DX'ed in april 2010,had a LP Shunt installed Sept 2010,but have had ongoing sx for over 10 years

At the time of Dx for the Pseudotumor,I asked about my MRI,the hospital doc over-seeing me said to me ( this could be the start of MS )ie; thats the closest i've come to a dx...

just the last tree years it seems that everything has exploded,pain and sx,they just keep coming,with new ones every time i relapse.My Ins. wont cover anyone local,i have to find then drive upward of 2 or more hours to see a Neuro,or MS Doc.

                                                      angie

[COBOB]

About 10% of Clinically Diagnosed MS patients do not have any unique oligoclonal bands in their CSF.  I was diagnosed with RRMS and a normal lumbar puncture.  The Revised McDonald Diagnostic Criteria doesn't require a any oligoclonal bands for a diagnosis of MS.

Are you being seen by an MS Specialist and at an MS Center?

Bob