Hi Bairdy I Sent You A Message A Couple Of Weeks Ago, I Don't Know If You Read It!
But I Tell You That You Defo Sound Like Me With The Symptoms Etc..
Hang In There Mate It Won't Be To Long Before You Are Diagnosed I Know It Is Very Frustrating But You Will Come Out The Other End With Peace Of Mind.
This Neuro Sounds Spot On.
Take Care Mate And Look After Yourself.
Regards Joe.
enjoy every moment of your holiday - I wish I had another one sometime soon. It's good to hear you don't have a hesitancy about grabbing a wheelchair to keep going.
best, L
hi
thanks for your comments
yes red im on baclofen 10mg 3x daily and gabapentin 300mg 3x daily been tiptrating them up and am now feeling some relief ??
it is good that he is looking for further evidence and not briushing me off he did say i can see you are suffering and its been going on for a long time .
im just a little confused to what a non commpressive myelopathy is and the coralation to MS . ???
im waiting for any further tests he wants before i see him in october
just got my wheelchair that he ordered for me as im going away next week for out and about on my hols as walking is getting very difficult after short distances.
thanks guys
kindest regards bairdy
Bairdy- based on mine and other's experiences, I agree it is a positive sign that your neuro wants to follow up with you and keep investigating.
While you may be waiting for answers, it is a good sign that you are not waiting alone wondering where to turn to next. I hope that day never comes for you and that you can get an answer to what is going on soon.
I'm sorry your journey has bee so long, it's hard to wait until you are given a name for your illness.
The good thing is that the specialist is really watching you, noting the clinical signs and making follow-up appointments.
It's really tough to wait. Are you on medications at least that will help your pain etc.
Red
any more thoughts folks
regards bairdy
hi jj
thanks for your reply
im thinking the same cos everything else has been ruled out but its just the waiting at not knowing what your dealing with.
just want some closure on this horrible journey.
im having a bad time at the moment with terrible stiffness in my legs, hips and back having to up my dose of baclofen.
regards bairdy
I was thinking the same as Jen, it looks like the neuro is needing a bit more hard evidence before he's willing to call it. Hang tight it looks like your dx is going to take a little longer but its coming!!
Cheers........JJ
hi and thanks for your response
bairdy
It sounds like he's found some stuff that looks suspicious, but at this point he doesn't have enough information to make a definite diagnosis.