Aa
Menopause & MS
Aloha!
I have been purposely taken off of estrogen as of Jan 11th for a few months. I have some nasty hot flashes and am experiencing more menopausal bleep. It isn't so bad, however we live in Hawaii and the sweats aren't that desirable:)
I also noticed some of my ms symptoms flaring up. Numbness, etc. A few weeks ago I started getting intense pains in my hands, legs, & feet. Then I noticed my toes aren't curling. (Why I noticed that I have NO idea), my hands began to lose feeling, and I just started to act a little strange. (more so than the norm:) I already have a mri scheduled for the 24th so I called my new neuro doc who said triple your dose of baclafan. UGH! She said it was muscle stiffness in my toes.
My toes curled with help but my mind telling my toes to curl wasn't happening, so I didn't agree and called her boss who is my regular neuro doc. He said I am sure your having a exasperation and put me on steroids.
Yesterday was my 3rd day on the roids and now I am a proud toe curler and I didn't triple the baclafan. I'm not a Dr. and I hate to question the Dr. but I didn't feel good about the high does of the baclafan.
My greatest fear is my feet are going...
But my question after my long story is could the loss of hormones and hot flashes be triggering the sx's? I have to believe it is but I'd love some advice:)
btw Ever notice you ramble A LOT on roids:)
Karrie
The roid rambler
I have been purposely taken off of estrogen as of Jan 11th for a few months. I have some nasty hot flashes and am experiencing more menopausal bleep. It isn't so bad, however we live in Hawaii and the sweats aren't that desirable:)
I also noticed some of my ms symptoms flaring up. Numbness, etc. A few weeks ago I started getting intense pains in my hands, legs, & feet. Then I noticed my toes aren't curling. (Why I noticed that I have NO idea), my hands began to lose feeling, and I just started to act a little strange. (more so than the norm:) I already have a mri scheduled for the 24th so I called my new neuro doc who said triple your dose of baclafan. UGH! She said it was muscle stiffness in my toes.
My toes curled with help but my mind telling my toes to curl wasn't happening, so I didn't agree and called her boss who is my regular neuro doc. He said I am sure your having a exasperation and put me on steroids.
Yesterday was my 3rd day on the roids and now I am a proud toe curler and I didn't triple the baclafan. I'm not a Dr. and I hate to question the Dr. but I didn't feel good about the high does of the baclafan.
My greatest fear is my feet are going...
But my question after my long story is could the loss of hormones and hot flashes be triggering the sx's? I have to believe it is but I'd love some advice:)
btw Ever notice you ramble A LOT on roids:)
Karrie
The roid rambler
Losing the ability to curl your toes indicates a problem with the nerve... Sometimes people will talk about their 'drop foot,' which is a weakness or loss of muscle control in the ankle. It sounds like you had a loss of muscle control in your toes.
The intense pains - might have been spasticity. Or they might have been paresthesia. Only you know for sure.
I think that the estrogen was helping your symptoms. I know that I have ups and downs during the month, and they have a lot to do with my hormone level. My symptoms got a lot worse after I had to stop taking the pill. (Had a blood clot.)
I've wondered if there's a way to take estrogen without worrying about clotting up again - guess I should ask my neuro.
The intense pains - might have been spasticity. Or they might have been paresthesia. Only you know for sure.
I think that the estrogen was helping your symptoms. I know that I have ups and downs during the month, and they have a lot to do with my hormone level. My symptoms got a lot worse after I had to stop taking the pill. (Had a blood clot.)
I've wondered if there's a way to take estrogen without worrying about clotting up again - guess I should ask my neuro.
You know, if you go over to the Menopause forum, you'll see so many women there with MS-like sx during menopause. I know I am so confused as to what is what and do hormones trigger things - my MS nurse says YES!
Aint it grand being female ! :|
Aint it grand being female ! :|
I attended an MS society meetiing a few months ago where a lady MS neuro came to talk about pregnancy and menopause. I went especially to hear the menopause part of but they talked mostly about preganancy since the audience was predominantly younger - pregnancy age.
The doctor did touch on menopause and that they don't really know much about how menopause and MS. She talked about how a study should be conducted or if they have already been conducted that the study smaple was so small that it didn't impact our true knowledge of it.
But, she did say that from what she's seen in her 25 years as an MS neuro, that her female patients complain more about symptoms as their hormones start tapering off. The last thing I recall her saying is that she strongly recommends HRT for hre MS patients explaining the benefits outweigh the cost.
I hope this helped. Hope someone else has more to add later.
Julie
The doctor did touch on menopause and that they don't really know much about how menopause and MS. She talked about how a study should be conducted or if they have already been conducted that the study smaple was so small that it didn't impact our true knowledge of it.
But, she did say that from what she's seen in her 25 years as an MS neuro, that her female patients complain more about symptoms as their hormones start tapering off. The last thing I recall her saying is that she strongly recommends HRT for hre MS patients explaining the benefits outweigh the cost.
I hope this helped. Hope someone else has more to add later.
Julie
Hi, I just started 2 weeks ago HRT.... I am on .05 Climara patch, and I will keep you posted to say if I notice any real help. I am still having the hot moments ( as I call theM).... but the rest of the things have not gotten better.
My mood is still not good, and I'm quite cranky. ( also been on antibiotics for bronchitis/sinus intection), and the agitation and bitchiness is common, so now after 2 weeks, I have stopped the pills.
Hope this helps, I hope that the estrogen helps me, and will let you know...
take care,
Candy
My mood is still not good, and I'm quite cranky. ( also been on antibiotics for bronchitis/sinus intection), and the agitation and bitchiness is common, so now after 2 weeks, I have stopped the pills.
Hope this helps, I hope that the estrogen helps me, and will let you know...
take care,
Candy
At I am in my late 40's I am very aware as most of my friends are going through the menopause and complain about (covers on, covers off etc) as well as many other problems that I am not looking forward to the menopause. I am interested in other people's experiences of hormones, HRT etc and how it affects MS symptoms so read your post with anticipation! I hope that some others chip in with their experiences and I love your sense of humour "the roid rambler"..thinkthis should be your new name!!
Cheers for now
Sarah
PS Julie ...a female NS neuro.....can we frame her as unique..I never hear anyone talk about lady neuros!!!
Cheers for now
Sarah
PS Julie ...a female NS neuro.....can we frame her as unique..I never hear anyone talk about lady neuros!!!
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