Update for Freespirit24 (sarah)

[Freespirit24]

I am sorry I have been away so long. It seems one thing after another which you are all so familiar with.

To update those of you who know me this is what is happening.
I was in severe nerve pain so I had to find relief. Doctor put me on Tegretol and now up to 1,200mg and it is doing wonders for me.

The fatigue the Doc would not treat till she gets a diagnosis so i nap a lot.

I was feeling like I was living and breathing MS being on the forums so often and it was always in my head. I needed a break and I thought if it was not in my head I might get better and all the symptoms would go away. Well they did not, they have worsened some of them.

I have partial left foot drop and my balance is so bad a physio has recommended a roll aider walker which I am struggling to come to terms with. I can't seem to accept it and get my head around it.

The occupational therapist was not happy with my safety in bath and ordered a bath transfer bench...........................the bloody thing is enormous in a very small bathroom and now we have to sit sideways to go to the toilet. It is not working because I trouble getting off it and i am flooding the bathroom with water. So it is going to be going back to the rental place soon.

I had a Brain MRI do not know what size machine it was..........said i have some spots not specific.............whatever the hell that means.
Doc today said they could be something they may be nothing.............isn't that good to know............LOL

I had EMG tests today they were awful but they said all is normal...............so why do i have so much nerve pain.

Starting to think i do not have MS but what is it...............my bladder does not work properly nor do my bowels that is just to top off the rest.

I am not coping the best today but mostly i keep positive and not think too much about it all.

I go to the MS Clinic in Toronto on 12th August ST Michaels Hospital Dr Gray.

I do care about you all but having no family and no support i have not had much energy to do more than try to survive, please forgive me.

I need hugs and miracles i think. I know you are in similar boats so i send hugs and kisses to each of you.

Thanks for reading this

Sarah

[Freespirit24]

thanks so much all of you hugs for each of you.

I just do not have much energy for more but i did post the MRI results and asked a question about the EMG tests.

I love you all

sarah

[santana8]

Please don't  try to struggle with all of this on your own!!!!!!!  All of your friends are here for you and do understand!!!!!!!!!!!  Lean on us in times like this, that is what we are here for!!!
Anytime you need to talk or anything please let me know!!!

Your Friend
~Santana~

[sllowe]

Hi there!

((((((((lots of hugs)))))))))))))))) coming your way!

Thank you for this update.  I'm so sorry it didn't go away for you.  Though staying away was a long shot, you tried, it didn't work, and now you've got us all pulling for you.

I'm thrilled to see you are going to an MS Dr., and so soon! YEA!!!!!!!!! You hang in there the best you can, and don't beat yourself up over it when you can't.  Rest when you have to, and don't you worry about praying for that miracle, that we do well, and often!

So glad you returned, I know it must of been hard to get up the energy to do so, but you did it!

(((more hugs)))
Shelly

[spastic]

Oh Sweetie, I just got to this, and I am so sorry for all the things you have been going through.  I just want to say that I am here for you and I am sending well wishes your way.  I have to say though, sometimes in life we have to come to accept things that we wish we didnt have to.  I know you dont want to use the walker or the bath bench but your safety is a concern to all of us.  I had to accept the cane and my wheelchair, although I don't use the wheelchair often, I find that I have more energy when I do and I don't have to worry about falling down.  So it is worth it to me, I am going to make the chair a little more spunky by adding some funny bumper stickers.

Sarah, it is quite normal to feel like this when going through all that you have been through but I want you to know that you are not alone in spirit.  As long as I am breathing I will be there, giving you hugs and all the support I can.  I understand the taking a break from the forums, I do.  There are somedays I cannot muster any strength to reply or those days I cannot think straight to give out any good advice, but I have found strength and courage with this forum family and I hold out my hand to you and hope that I can give you a little more strength and a nice shoulder to lean on to help you through this difficult time.  We all are here for you.

Love Ya Sweetie,

Ada

[Freespirit24]

Big hugs Tammy thank you for all your support. I am crying right now but will post more tomorrow i have the written reports on Head MRI amd the EMG tests.

I love ya

hugs  sarah

[mokibear]

I'm sorry to be so late coming on here but I haven't been on much lately.

Sarah I'm so sorry that things are not going well for you. I am sending you big cyber hugs and hope that answers are coming your way soon. I think all of us limbo landers understand that need for a break but know that we are here anytime. I may be late coming in but I still get in there when I can.

I pray that your appointment in August will be the one where you start getting answers.

Hugs
Moki

[wingnut19]

Wow, Sarah.....I'd like to apologize for you not receiving more replies in your time of need........


I'm here if you need me ANY time!!

HUGS

Tammy

[essdipity]

Just want to let you know that we do understand and that we're pulling for you. Many hugs come your way from Maryland!

ess

[wingnut19]

Bumping up to get more hugs and prayers for Sarah....

:)

[wingnut19]

{{{{{Sarah!!}}}}}}

I was just sending you a note, Sarah!   I am so sorry about how you've been feeling, but at the same time I totally understand why you needed the break from the "MS" stuff....
It tends to get to the point where we eat, sleep and breathe it and we must take a break for our sanity.....

But, on the other hand, Sarah, since you say you virtually have no support at home, please try and reach out like this at any time you feel down, alone or scared, OK??

There's no need to ask for anyone's forgiveness, Sarah....we understand.....We do worry about you, however, and wonder how you're doing.....Thanks for letting us know.

Please try and keep in touch as much as possible because we are here to help you through these tough times....The waiting is sometimes unbearable....

Sarah, I am sending you huge hugs and prayers!!!

Tammy