Hello and welcome. You did get the right kind of brain MRI, and the results really don't indicate MS, at least not at this point. A tiny lesion in one area would not be causing the multiple symptoms you describe, some of which are on both sides of your body.
I suggest you visit a neuro-ophthalmologist for a thorough look at your eyes. If you are having optic neuritis he should be able to tell from this examination, though blurriness is not generally a sign of ON. Have you had a standard eye exam? A VEP test might be helpful, but there are no symptoms associated with abnormal results.
It sounds as if, since you are able to schedule and pay for all this testing, that you are researching MS and picking out tests that might correlate with your symptoms. This is not a wise way to proceed. Much better to find a good MS specialist, not a general neurologist, and continue to see this doctor if you experience anything new. Let that person, who is trained, be in charge. I think it is highly unlikely you have MS, but if as time passes it turns out that you do, you can be treated then. MS is a slow-moving disease, even if it does not always seem so. By being followed by a competent specialist you stand the best chance of retaining the good health you now have.
Also, please don't downplay the effect our mental health can have on our overall health. If psychiatric drugs are helping you, that's a good sign. But please be careful with Xanax. Benzodiazepines can be very addictive.
Welcome. Something is really going on with you.
Many of us only get 1.5 Tesla MRIs. The protocal used and the computer program is much more important than Magnet strength. MS protocal has more slices or views. What you describe does not sound like MS. I do believe there is something going on. I would just not concentrate on MS.
Neurological diagnosis especially MS can take years. My diagnosis took two years and every test I had strongly showed MS from my first MRI on. They were not looking for MS with me.
Every time I changed neurologists they started with square one so it is good to stay with one. They like to see you like every six months to see changes.
If you have ever had ON it will show up on MRIs and other tests.I have had MS for along time but have never had ON so it never shows up.
Yes a MS Specialist is important. They are busy so it can take awhile for an appointment. For me it was 8 months.
Keepin a symptom diary can help.
My advise. If placed in a complex undiagnosed category you must strongly advocate for yourself as I have learned for years now. Though I have 3 physicians who steadfastly believe I exhibit MS sx, my ms neuro believes otherwise since both MRIS showed no evidence. Yet recently I was dx with optic neuritis. Don't wait months for an appt. with an MS Neuro or any specialty for that matter. I've been told it would be 3 to 6 months to see any physician. But with diligent efforts of calling every single day to get in earlier, my 3-6 month wait turns into 3 weeks or less. Place yourself on a cancellation list if possible and still make certain while on that cancellation list you call daily. Never have I had to wait more than a month to see someone but only due to my aggressiveness in persevering to be seen. In certain cases like mine you can have clear MRIS and still have a condition. Frustrating to be placed in a watchful phase but it's what neuros do if you don't fit the criteria for a dx. Hang in there as whatever ails you, it will take strong advocacy on your part with a documented evidence based record to get attention.
Hi and welcome,
From what you've mentioned, your basically saying there is a decrease of sensation and an annoying burning sensation in all peripherals, decrease in strength in your left hand, decreased sensation on the left side of your face and very slight bilateral blurred vision BUT in 6 weeks you've seen 5 neurologists and had 2 different sets of brain and spinal MRI's, blood tests etc and every test so far has been normal...
I understand your concerns but you need to keep in mind that it's not in your best interest to singularly focus on MS and inadvertently over look every other more likely causation of 'all peripheral' sensory nerve issues eg conditions associated with peripheral neuropathy, vitamin deficiencies, mental health, viral, pre-diabetes or diabetes etc etc etc
True story, my daughter was experiencing all your issues and more, she kept getting sicker and sicker and nothing was showing up so the assumption was mental health even though she actually looked as sick as she felt....months later she saw another GP in frustration, her lung function was heads up abnormal, all the blood tests were run again with a few additions, it turned out it had nothing what so ever to do with mental health, she actually had a common childhood contagious disease that she should of been immune from but wasn't.
My point is that 'normal' medical tests are just as good at pointing towards causation, as abnormal medical test results are.....your symptom description, your test results ie everything so far is pointing away from 'central' nervous system neurological conditions like MS and pointing towards conditions that cause all peripheral symptoms instead, so the question should be what medical issues more commonly cause these types of symptom and what haven't I been tested for yet?
Hope that helps..........JJ