A large number of us are on Tysabri - I've been on it for 4 years? Wow, I just had to count that and am surprised at that timing.
I particularly like it because I am committed to a schedule I can't cheat on and once a month i have the infusion and then i am done. If you go on tysabri, or any other drugs, be sure and get on their patient assistance program. It is great help with the co-pays.
Thank you all, so much. I had my first episode in 06, well what they are thinking was my first symptom. But it wasn't until Feb when it was confirmed. I am in the process of deciding on a treatment plan- possibly Tysabri. Can anyone tell me something, anything about it?
Hello and welcome to the group.
Regards,barb
"looking for support, help, advice, laughter and encouragement."
Well you'll find none of that here! Get Out!
Wecome to our group LOT :-) Soon after I was diagnosed I was trying to arrange a meeting with someone I met here. She two had recently been diagnosed, and we were going to meet and compare notes. My GF didn't understand why I would want to meet someone just because they had MS. I explained that it was precisely because she had MNS that I wanted to meet her :-)
I too have an amazing support base, starting with my amazing GF. But here you have to explain a lot less. Here there are people who get oit, because they have it :-)
Kyle
I recently found this group some months ago and love it. I wish I knew about it when I was diagnosed in March 2013.
It is a wonderful place with caring and knowledgeable people. What I love about it, is that everyone here has been diagnosed or in the process of getting a diagnosis.
It is very encouraging to have people understand what I am going through and they give great advice as well. Welcome,
Barb
Hi there and Welcome to the MS Community!!
I'm sorry about your dx but I believe it's often better to know what is wrong so you can tackle it head on. You have found a wonderful group of people here who are well informed, caring, supportive and yes even a little comedic at times.
It's often a tough place to be after your dx and the first year or so can be very much like a roller coaster. I hope you feel you can ask any questions you may have of the community and nothing is out of bounds here.
Welcome again and take care,
Karry.