No vision changes

[BubblesRN74]

Hello!  Just wondering if anyone has been Dx w/o having any notable vision changes?  My doc is not wanting to Dx w/MS because I have not had any issues w/my vision (to date).  Thanks for any input!  

[SarahL2491]

Ah, not everyone has vision issues......however, you talk abut your symptoms as both sides and MS usually presents with one side or the other.
Has he ruled out all of the other "mimic" diseases (lupus, etc)?  

There's always an LP but then 10% or so of MS pts show up with a negative in that test, me being one of them.  

He does sound cautious but you could consider getting a 2nd opinion from someone specializing in MS, but with a normal MRI and bilateral issues, hard pressed to say what the problem is.

Welcome to our corner of the world, we truly hope that you do not have MS, its not something we wish on anyone but keep us posted, we learn from each other

[BubblesRN74]

Hi! Thank you for responding, yes..this is my neuro but not specializing in MS, but inner ear/balance disease (otoneurology).    

My symptoms include bilateral numb areas in my toes/legs, LH/dizzy spells, balance issues, crazy hot spots on my toes and tops of feet that come and go, 24/7 tinnitus, hearing loss in my L ear, "buzzing/zapping" sensations in my toes/legs, heat intolerance, nocturia, extreme fatigue.  

My MRI w/contrast and Balance Testing in February were normal according to this doctor as well. My Dx is currently Vestibular Neuronitis & Otolith Disease which I am taking an anti-viral medication for, because he believes a virus is attacking the vestibular nerve.  I haven't noticed any difference since starting the medication in February.   He was even hesitant about Dxing me w/Meniere's.  

My symptoms have gradually appeared over the past 1.5 yrs and started w/the LH/dizzy spells, hearing loss, tinnitus, and a couple of episodes extreme fatigue that would last 3-4 days.    

I am starting to feel like I am crazy with all these symptoms :o/
      

[essdipity]

Is this a neuro specializing in MS?

Because his or her logic is ridiculous.

Although eye symptoms are very common in MS, there's no requirement for them. It all depends on where lesions develop, which cannot be predicted.

I've had no vision issues, but I did have an abnormal VEP test. Lots of times testing, including MRI, shows no eye problems, and that's fine.

Depending on what your other symptoms are, how long you've had them, whether they're getting worse, etc., I would suggest you find a more informed doctor, particularly one at a large MS clinic.

ess