Hello all,
I have been having some miserable symptoms for over a month now, and I just don't know what to do. I wake up every day and feel miserable, most of the time worse than the day before. I have been to a neurologist who took basically an entire MRI body scan (minus my legs) to check for MS or anything else that might be causing my symptoms. Got the results back Wednesday and everything came back normal. Did a CT scan a few weeks back at the ER (went because I was feeling so awful) and came back completely normal.
Symptoms are as follows:
-Generalized weakness (feeling like I have no energy at all)
-Weakness on left side of body. Does not interfere with walking or movement, but my internal medicine doctor said my grip was slightly less on my left side than right, and my left eye, when looking all the way to the left, seems very slightly shaky.
-Heaviness in left side of body, mostly in leg. Again, this does not have an affect on my walking or balance.
-Vibrating sensation in body. Mostly in foot. Sometimes in abdomen and chest. Comes and goes it seems, or maybe I'm just not noticing it at certain times.
-Sometimes tingling in my left foot. It seems to only to do it when I'm sitting criss cross apple sauce... it might just be my foot going to sleep, I am not sure.
-Feeling that I'm in a dream. Things don't seem as real or solid as they used to. When I do a task, I have to reassure myself that I'm actually doing it. When I wake up, I have to make sure I tell myself who I am (even though I already know and never forget.) I feel sometimes like my body is foreign, my hands move but I don't know how they're moving. or I walk and I know I'm walking, but it just feels like I am on autopilot. Almost like I am loosing my mind.
-Shakiness, especially in hands. Not pronounced, but it's noticeable.
-Feeling of fullness in left side of abdomen.
-Trouble swallowing sometimes. It comes and goes. It almost seems if I think about swallowing, that's when it seems to get harder to.
-Tired, bloodshot eyes (feel like I have been looking at a computer screen all day, even though I haven't.)
-I don't feel as sharp as I usually am. Sometimes I have to read something more than one time to really get it, and I've noticed when I talk, sometimes I trip over some words. Here lately though my speech has seemed pretty much okay.
There are more symptoms, but I don't want to confuse anybody or start listing too much, as I know sometimes that can make it hard to see what's going on. As I said, my neurologist said that I checked out fine physically when he did my exam. Said there was nothing out of the ordinary, no signs of Optic Neuritis, no trouble with balance or anything like that, so I was pretty confident it was not MS at that time. His office said my MRI looked completely normal, no lesions. I was reading elsewhere in the forum about the whole no lesion MRI thing. I haven't done any type of nerve testing, and I am thinking that that would be the next step because of the heavyness and sometimes tingling. My nuero is wanting to do a tilt table test to I guess check for dysautonomia? Because I told him sometimes I feel like I'm going to pass out (MISTAKEEEE!!) even though I know I'm not really going to pass out... it's just that feeling I get. It's almost like a rush of adrenaline. Not really sure how to describe it.
I saw a very good internal medicine MD just a few days ago who said that there were tons of things that could be causing the symptoms that I'm having. I have been through a significant amount of stress lately, so he prescribed Wellbutrin 75 MG once a day to see if that would help with the brain fog/dreamy feeling. I have been on it for three days, with no affect being seen yet. I realize these types of medicines take a little while to work.
So what could this all mean??? I wake up every day feeling worse and worse, it has caused me to basically stop my life and stay at home with my mom. I want to get back to normal so bad!!! It is very frustrating because I don't feel like my normal self. I haven't driven in three weeks. It's even hard for me to ride in a car without feeling very freaky.
I have really thought about it being MS... but from what I can understand, most of the time MS isn't really debilitating in it's first stages right?. It's more just annoying. Like I said, the thing that has got me really unable to do anything is the feeling of dreamyness. I can deal with the physical symptoms all day, but when it comes to my mind and not feeling like myself, like I'm a zombie almost, it's very scary.
thanks for any type of light anyone can shed on my problem. very desperate for answers. I love the internal medicine doc, but you can't see your doctor every day so in between I'm TRYING to find anything to help.
-taylor