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Our Gift to You - MS Songbook
NOTE: This is a condensed version from an earlier thread - I wanted to share the holiday spirit with all of you here and eliminated a bunch of the side comments.
I have written many of these, but others have also joined in the fun. Some are from last year, and there are also new ones from this season. There has to be something here to put a smile on your face.
Please feel free to add a new song or two to our book of carols!
*****************************
It’s Beginning to Look a Lot like MS
-Sung to the tune of “Its Beginning to Look a Lot Like Christmas”
It’s beginning to look a lot like MS
Everywhere we go
The labs are all negative, except my LP is affirmative
With my o-bands neatly lined up in a row.
It’s beginning to look a lot like MS
Soon the diagnosis will be in,
Familiar symptoms that can bring the diagnostic words that make me sing
Right there on my medical chart.
*********
Dozens of Pills
(to the tune of Jingle Bells)
Dashing to the docs,
with my hopes still running high
I’m looking for relief,
So many drugs to try.
My legs they feel like lead,
my pain’s not in my head
And so I go from doc to doc
Looking for a cure that I won’t dread.
(refrain)
Oh, Baclofen, Elavil,
Keppra or Gabitril.
I don’t care what name it’s called
or if it’s a shot or pill.
Lyrica, Topomax,
Clonidine or Vicodin.
I’ll try them all,
if they don’t make me ill
Just where do we begin?
2nd verse
A month or two ago,
I thought I’d give a try
To control my bladder urges
I need a miracle to keep me dry.
My colon’s not much better
Unpredictable as it is
That’s when the doctor stepped it up
Now I keep the pharmaceuticals all in biz.
(Chorus)
Oh, Restoril , Terzosin,
Hytrin and Dulcolax.
I don’t care what type it is.
Over the counter or by RX.
Dantrium, Toframiol
Colace or Miralax.
However it works,
Please let it work!
As long as it lifts this hex.
**************
From the songwriting duo of Quix and Saveone..
Jangled Nerves
(to the tune of Jingle Bells)
Jangled Nerves, Jangled Nerves
Zapping all the way...
oh how tired I can get when I work or play, hay
Jangles Nerves, Jangles Nerves,
Frayed and fried and dead...
Oh what can I do tonight to clear my fog clogged head
***********************
From Doublevision
"Stuck at home with MS"
[sung to the tune of "I''ll Be Home For Christmas"}
Stuck at home with MS
You can’t count on me
Please stop at the pharmacy
For shots I need daily
MS always finds me
Can’t hide from it, it seems
I’m at home with MS
If only this were a bad dream!
*******************
From Mokibear
Sing to Silent Night
Silent Neuro
Diagnosis Zero
Frustrated to be
alone in this place
If not for this forum
There would be no smile on my face
Blessed are the people here
who have filled my empty space
Thanks to all who have helped me through
A limbo lander wants to say thanks & I love you!!
**********************
The Disease Song
(to The Dreidel Song)
I have a little disease
It makes me ill each day
So maybe it is MS
From this thought I do not stray
CHORUS
Oh Do I, Don’t I , Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.
It affects my body
Makes my legs stop and go
And when I get too tired
I drop and my MS shows.
CHORUS
Oh Do I, Don’t I , Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.
My MS is always present
I’d love to dance and spin
But I have to sit and wait here
much to my chagrin!
CHORUS
Oh Do I, Don’t I, Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.
********************
From GrannyJo
to the tune of White Christmas
I'm dreaming of a healthy lifestyle
one with no MS disease in sight
where the canes are few,
the legs are like new,
and everyone sees and hears so well.
I'm dreaming of a healthy lifestyle
where nerves are never frayed or fried,
where our limbs don't quiver,
and all is well with our liver,
and pills and shots are never used.
***********************
From ErinZoe
to the tune of Jingle Bells
Dashing through the halls in a one leg kinda of hop
Over our feet we fall
Laughing all the way hahahah
Nerves on crack I think Making us think twice
O what these neuros got to say
Maybe MS or life
Oooooo
Ms flare MS flares Ms all the way
O What fun it is too see what my neuros will call you today
ms flares ms flares ms all the way
I wonder what kind of game you have next for me to play
A day or two ago I thought I was just fine
But soon this lil pain
Was seated in my brain
The lesion was lean and long
Misfortune on my side
It got into my brain stem
And gave me quite a fright
Ooooo
Ms lesion ms lesions ms all the way
Are you really there today or gone hidden away
Ms lesions ms lesions ms all the way
One day u decide to be active but the mri says no way
Now some time has past
They say it is still young
No proof to hand me yet
Just go with all these drugs
Just take a shot a day
270 pills a month
Theres a 50 percent chance you'll be okay
or make your liver a dump
Oooo ms meds ms meds pls just go away
I don’t even know if I should be taken you or throwing them away
Ms meds ms meds pls just go away
I'm taking meds for a disease that they don’t even know how it behaves
*************************
Do I Have What you Have?
(to the tune of Do You Hear What I Hear)
Wrote the newbie to the forum here,
Do I have what you have?
Could it be MS, tell me please.
Do I have what you have?
Demyelinating disease could be lurking in my brain
With symptoms that only I see,
With symptoms that only I see.
Said the newbie to the people here,
Do you know what I have?
Share it with me now , would you please.
Do you know what I have?
This disease, dreaded disease makes no sense to me
Let it be anything other than MS.
Let it be anything other than MS.
*****************************
From Debtea
Sung to the tune of “Rudolph the Red Nosed Reindeer”
MS the auto immune disease
Has a lot of strange tendencies
And if you ever had it
You might even say agonies.
All of the Neurology doctors
Like to call it common names
They like to diagnose poor MS
As depression or complex migraines!
Then one MS Specialist
Knowingly came to say
Patient with your symptom supply
Please, come have an MRI.
Next, the limbo-land patient
Found a forum for support
The medhelp.org website
Where comfort is never short.
Finally the exhausted patient
Will know what causes this stuff
MS the auto immune disease
To beat me…you’re not tough enough!
I have written many of these, but others have also joined in the fun. Some are from last year, and there are also new ones from this season. There has to be something here to put a smile on your face.
Please feel free to add a new song or two to our book of carols!
*****************************
It’s Beginning to Look a Lot like MS
-Sung to the tune of “Its Beginning to Look a Lot Like Christmas”
It’s beginning to look a lot like MS
Everywhere we go
The labs are all negative, except my LP is affirmative
With my o-bands neatly lined up in a row.
It’s beginning to look a lot like MS
Soon the diagnosis will be in,
Familiar symptoms that can bring the diagnostic words that make me sing
Right there on my medical chart.
*********
Dozens of Pills
(to the tune of Jingle Bells)
Dashing to the docs,
with my hopes still running high
I’m looking for relief,
So many drugs to try.
My legs they feel like lead,
my pain’s not in my head
And so I go from doc to doc
Looking for a cure that I won’t dread.
(refrain)
Oh, Baclofen, Elavil,
Keppra or Gabitril.
I don’t care what name it’s called
or if it’s a shot or pill.
Lyrica, Topomax,
Clonidine or Vicodin.
I’ll try them all,
if they don’t make me ill
Just where do we begin?
2nd verse
A month or two ago,
I thought I’d give a try
To control my bladder urges
I need a miracle to keep me dry.
My colon’s not much better
Unpredictable as it is
That’s when the doctor stepped it up
Now I keep the pharmaceuticals all in biz.
(Chorus)
Oh, Restoril , Terzosin,
Hytrin and Dulcolax.
I don’t care what type it is.
Over the counter or by RX.
Dantrium, Toframiol
Colace or Miralax.
However it works,
Please let it work!
As long as it lifts this hex.
**************
From the songwriting duo of Quix and Saveone..
Jangled Nerves
(to the tune of Jingle Bells)
Jangled Nerves, Jangled Nerves
Zapping all the way...
oh how tired I can get when I work or play, hay
Jangles Nerves, Jangles Nerves,
Frayed and fried and dead...
Oh what can I do tonight to clear my fog clogged head
***********************
From Doublevision
"Stuck at home with MS"
[sung to the tune of "I''ll Be Home For Christmas"}
Stuck at home with MS
You can’t count on me
Please stop at the pharmacy
For shots I need daily
MS always finds me
Can’t hide from it, it seems
I’m at home with MS
If only this were a bad dream!
*******************
From Mokibear
Sing to Silent Night
Silent Neuro
Diagnosis Zero
Frustrated to be
alone in this place
If not for this forum
There would be no smile on my face
Blessed are the people here
who have filled my empty space
Thanks to all who have helped me through
A limbo lander wants to say thanks & I love you!!
**********************
The Disease Song
(to The Dreidel Song)
I have a little disease
It makes me ill each day
So maybe it is MS
From this thought I do not stray
CHORUS
Oh Do I, Don’t I , Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.
It affects my body
Makes my legs stop and go
And when I get too tired
I drop and my MS shows.
CHORUS
Oh Do I, Don’t I , Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.
My MS is always present
I’d love to dance and spin
But I have to sit and wait here
much to my chagrin!
CHORUS
Oh Do I, Don’t I, Do I
This is what I say
And when the neuro’s ready
I’ll learn which way he sways.
********************
From GrannyJo
to the tune of White Christmas
I'm dreaming of a healthy lifestyle
one with no MS disease in sight
where the canes are few,
the legs are like new,
and everyone sees and hears so well.
I'm dreaming of a healthy lifestyle
where nerves are never frayed or fried,
where our limbs don't quiver,
and all is well with our liver,
and pills and shots are never used.
***********************
From ErinZoe
to the tune of Jingle Bells
Dashing through the halls in a one leg kinda of hop
Over our feet we fall
Laughing all the way hahahah
Nerves on crack I think Making us think twice
O what these neuros got to say
Maybe MS or life
Oooooo
Ms flare MS flares Ms all the way
O What fun it is too see what my neuros will call you today
ms flares ms flares ms all the way
I wonder what kind of game you have next for me to play
A day or two ago I thought I was just fine
But soon this lil pain
Was seated in my brain
The lesion was lean and long
Misfortune on my side
It got into my brain stem
And gave me quite a fright
Ooooo
Ms lesion ms lesions ms all the way
Are you really there today or gone hidden away
Ms lesions ms lesions ms all the way
One day u decide to be active but the mri says no way
Now some time has past
They say it is still young
No proof to hand me yet
Just go with all these drugs
Just take a shot a day
270 pills a month
Theres a 50 percent chance you'll be okay
or make your liver a dump
Oooo ms meds ms meds pls just go away
I don’t even know if I should be taken you or throwing them away
Ms meds ms meds pls just go away
I'm taking meds for a disease that they don’t even know how it behaves
*************************
Do I Have What you Have?
(to the tune of Do You Hear What I Hear)
Wrote the newbie to the forum here,
Do I have what you have?
Could it be MS, tell me please.
Do I have what you have?
Demyelinating disease could be lurking in my brain
With symptoms that only I see,
With symptoms that only I see.
Said the newbie to the people here,
Do you know what I have?
Share it with me now , would you please.
Do you know what I have?
This disease, dreaded disease makes no sense to me
Let it be anything other than MS.
Let it be anything other than MS.
*****************************
From Debtea
Sung to the tune of “Rudolph the Red Nosed Reindeer”
MS the auto immune disease
Has a lot of strange tendencies
And if you ever had it
You might even say agonies.
All of the Neurology doctors
Like to call it common names
They like to diagnose poor MS
As depression or complex migraines!
Then one MS Specialist
Knowingly came to say
Patient with your symptom supply
Please, come have an MRI.
Next, the limbo-land patient
Found a forum for support
The medhelp.org website
Where comfort is never short.
Finally the exhausted patient
Will know what causes this stuff
MS the auto immune disease
To beat me…you’re not tough enough!
heat up the cocoa, throw another log on the fire and warm up the vocal chords. It's time to bring out the MS songbook and belt out a chorus or two.
I hope someone out there can add a new song to the repetoire - it's time for something new!
Happy Hoildays to all!
Laura
I hope someone out there can add a new song to the repetoire - it's time for something new!
Happy Hoildays to all!
Laura
Tingle, tingle, tingle
I can feel, all my nerves sing
It’s my MS calling
Saying, it’s the King of tingling
Tingle, tingle, my legs
Pricking my side, as you go
Simply adding to, my plagues
Now comes the tremors, oh no (Oh no!)
You must believe, that on Christmas Eve
It can’t pass you by
The nerves decay, is what they say
Enough to make you cry
Tingle, tingle, tingle
I can feel, all my nerves sing
It’s my MS calling
Saying, it’s the King of tingling (Oh no!)
I can feel, all my nerves sing
It’s my MS calling
Saying, it’s the King of tingling
Tingle, tingle, my legs
Pricking my side, as you go
Simply adding to, my plagues
Now comes the tremors, oh no (Oh no!)
You must believe, that on Christmas Eve
It can’t pass you by
The nerves decay, is what they say
Enough to make you cry
Tingle, tingle, tingle
I can feel, all my nerves sing
It’s my MS calling
Saying, it’s the King of tingling (Oh no!)
here's a new one for 2010.....
Get Me Out of Limbo
(to the tune of All I Want for Christmas is My Two Front Teeth)
Everyone looks at me and think they plainly see
That my ills are in my head, they all believe
But my wish for next year can’t be much more clear
There’s only one thing that’s important to receive …..
Get me out of limbo with a diagnosis,
a diagnosis, oh please, a diagnosis.
I want out of limbo with a diagnosis,
So I can get on some type of treatment.
It seems since all this began they keep calling it neurosis
It does not matter if it’s Lupus, CFS or Sarcodoisis
Doctors and tons of tests weren’t in the plan.
I won’t object if it’s even called Multiple Sclerosis!
Just get me out of limbo with a diagnosis,
a diagnosis, oh please, a diagnosis.
I want out of limbo with a diagnosis,
So I can get on some type of treatment.
Get Me Out of Limbo
(to the tune of All I Want for Christmas is My Two Front Teeth)
Everyone looks at me and think they plainly see
That my ills are in my head, they all believe
But my wish for next year can’t be much more clear
There’s only one thing that’s important to receive …..
Get me out of limbo with a diagnosis,
a diagnosis, oh please, a diagnosis.
I want out of limbo with a diagnosis,
So I can get on some type of treatment.
It seems since all this began they keep calling it neurosis
It does not matter if it’s Lupus, CFS or Sarcodoisis
Doctors and tons of tests weren’t in the plan.
I won’t object if it’s even called Multiple Sclerosis!
Just get me out of limbo with a diagnosis,
a diagnosis, oh please, a diagnosis.
I want out of limbo with a diagnosis,
So I can get on some type of treatment.
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