Hello Maggie,
Welcome!
I was dx in January and have had the IV Steroids done 3 times since Sept 2014. I first had the Optic Neuritis in Sept. (which lead to the dx in January 2015) I hesitated to have the Steroid treatments this last time because of the side effects that I have with them. I do not sleep much when on them so I also feel like I was run over by a MAC Truck. This is the term I used last time. This lasts about a week after the steroids are compete for me.
Hope you feel better soon!
Again Welcome to the forum, this is a wonderful place with lots of help.
Leanne
Hi Maggie,
Welcome :) i was only diagnosed at the beginning of this year and i have already posted twice, i find these forums really helpful.
I had 3 days of IV steroids after my last mri as it showed active lesions. I found that i was exhausted after the steroids, i was extra sensitive and experienced some muscle soreness (whether these symptoms were a result of the steroids I'm unsure but don't know what else they could have been from...) but this all cleared up after a few days. If your not feeling better soon definitely get in touch with your doctor.
All the best,
JL
Hi there and welcome to the MS community!
I can totally relate to what you are feeling as I always have had the feeling that a truck has run over me several times when I have had IV steroids. I also get some blurred vision and flushing which makes me resemble a tomato lol.
I tend to get most of my pain post steroids around my neck and shoulders which makes lying down really painful. It's almost like someone has beaten you with a baseball bat or something. The good news is it eases and eventually will settle completely.
Again welcome to the MS forum.
Take Care,
Karry.
Hi Margaret, and welcome to our forum.
Steroids can give wonderful relief, which sometimes comes at a price. Only the patient can decide if that price is too high.
Possibly Copaxone works well for you and it's a drug you should stay on for the foreseeable future, but also possibly one of the newer drugs would be more effective for you. There are many newer drugs since you started on this journey. Have you talked this over with your neuro? We have lots of collective experience here, not to mention lots of opinions
Welcome Maggie,
Steroids can do different things to different people.I have not experienced what you are describing. I mostly do too much and crash when I am off the steroids. There can be a rebound effect with steroids where you feel worse than you did at the beginning. It is usually temporary. Welcome to the forum.
Alex