I have noticed that sudden or loud noises give me a electrical shock sensation that vibrates through my whole body
When I had all of my testing done by the neuropsych, I asked about this very thing. He suggested that I "detox" before entering a highly stimulating situation. For example, if you need to attend a party that you know will be too much . . . he suggested that before you go, that you take a nap in a quite, dark room. Supposedly this brings your "agitation level" down, so that you will enter the party at a "calmer" level. This will give you more time before your body/brain reaches its threshhold. He also recommended that you occasionally remove yourself from the noise (go outside, go to the restroom, etc.).
I have the same issues with most external sensations. Driving in the rain, especially at night, will do me in. Tail lights, windshield wipers, and the sound of the rain are too much. In fact, I recently noticed that I never turn on the radio when I drive anymore. Just one more MS thing.
I wish that I could explain this correctly since I recently had an appt. with my Neuro and was describing this.
She told me that there was a "buffer" in the ear that sends messages to the brain. Now buffer is not the medical term. It's like a nerve. (having a little trouble today expressing myself..this IS the MS, sorry) This "buffer" is suppose to filter noises and keep the background noise down, so too much verbal (audio) stimuli doesn't get into the brain all at once.
This "buffer" is damaged by the MS and is also seen in people with hearing problems in general. It isn't working properly, so all this audio stimuli comes flooding in our brains and we cannot process it all. It all comes in together and doesn't separate itself. It overhypes up the sounds and then causes us to try to steer clear of all these noises at once.
I actually will go into the bedroom and seek a quiet place, until I can "get a grip" on myself. It bothers me that much. I am overwhelmed by it, even having to leave a grocery store while shopping because the intercom and all the people and noises about drove me crazy. I left my cart where it was and went to sit in the car where it was quiet.
There are times that this "noise" bothers me alot and there are other times I just cannot stand it. It grates on my last nerve. If I can find out from my Neuro how to explain this correctly, I will certainly pass it along. But hope you get an idea of what I am trying to say. And I have tried to say it quietly.....LOL
I'm so glad I'm not the only one dealing w/sound sensitivity. I noticed a couple of months ago that I jumped whenever there was a loud noise. It's like I'm supersensitive to things that have never bothered me before. In class a few months ago I had to ask my classmates to be quiet (I was sitting in the middle of two of them and they were talking very loudly). I couldn't take it!!! And usually I'm not like that, I've never had sound sensitivity before all these symptoms came to me.
I'm going to be checked by an ENT...very interested to see how the hearing test goes. I also have very loud ringing in my ears, accompanied by partial and temporary hearing loss. Everything will all of a sudden go silent. Very scary, but my hearing always comes back w/in a few minutes.
Oops...I meant to say Hyperacussis in my right ear not in my left!!! Must have been using my Sunday brain! he he Hope you get some answers green and I am glad to be of any help I can.
Lots of Hugs,
p.s. let us know what your results are if you get some testing done will you please?
Thank you so much Rena! I should probably get a test done since this is a pretty recent symptom for me.
Hi i get this though i am not dx only with fibro but seeing a neuro tomorrow and thining of mentioning this.
I cant stand sharp noises like my kids screaming or shouting, it happens in stages although its kind of there all the time of recent.
i had a hearing test and failed on low pitch noises i could not pick them up but i could hear hear pitch sounds they ruled out inner ear and said its central.
Its quiet hard to live with i get ringing in my ears too i sleep with cotton wool in my ears and with a white noise like a fan to stop it i cant stand the ringing in the silance.
do you get ringing? our you dx with MS?
Hi there...I don't think we have spoken before so welcome to the forum...I have been here for quite a while now but lately just lurking. This is how I came across your question and felt that I might be able to shed some light on your painful problem.
I have had to deal with Hyperacussis (extra sensitivity to noise) for a while now and it is not pleasant to say the least. I had an audiology test done and apparently I have significant hearing loss in my left ear and hyperacussis in my left ear and it can be very painful. I have the most trouble when I am unloading the dishwasher and the dishes clanging together can be incredibly painful! While there really isn't much they can do about this it might be a good idea to have an audiology test so that they have a baseline to go by should you have a relapse and the problem gets worse.
I have been diagnosed with MS and the audiologist said that it could very well be caused by the MS but there really is no way of knowing for sure but that now they have my info on file for future use if necessary.
I hope this has been some help to you but about the only thing I can suggest when you are having this pain is to avoid the things that seem to cause it until it subsides. It's a good excuse to get the hubby to empty the dishwasher occasionally if nothing else! he he
Lots of Hugs,
The crowd noise issue was explained to me many years ago (20 or more, I'm guessing) by an ENT as "central auditory disturbance," meaning that my ears worked fine, but that my brain was having trouble distinguishing and prioritizing the sounds, in order to hear what I wanted or needed to hear and ignore what I didn't. See? Even back then doctors were trying to tell me my problems were all in my head!
My extraordinarily expensive personalized programmable digital hearing aids have helped somewhat, but now I'm wondering if this was a symptom of whatever it is that's now disturbing the rest of my cerebral functions.
Gee, this is so strange to read that you all have issues that I thought it was just me because I'm hyper-sensitive about alot of things.. Do you ever find yourself trying to concentrate hard on the person who is talking to you and just really reading their lips because the surrounding noises are so distracting??? I do this often. Not DX with anything yet... Neuro appt only in July.
Wow, finally! I see others with this too. I thought I was just nuts.
As "lgk54" states, "Crowd noises are particularly disorienting to me. Conversations with people in a noisy restaurant are difficult to concentrate on and follow."
Absolutely true for me big time.
Finally, can't believe it!
Thank you, thank you thank you!
We've discussed this hypersensitivity to noise a while back - and I believe we decided it definitely is a byproduct of our MS. Crowd noises are particularly disorienting to me. Conversations with people in a noisy restaurant are difficult to concentrate on and follow. Forget the family gatherings where all the little kids are doing what children do best- having fun and being loud - I look like I am anti-social by needing to excuse myself early.
Sorry I can't give you a medical name or explanation for it, but what you are feeling is very real.
Loud sounds, like the trash can lid closing, can really hurt my ears. Sometimes it's the smallest things, like the pepper grinder grating away. Packing tape is a frequent offender.
This is only a problem in my left ear. It's hypersensitive to sounds. The right ear sometimes cuts out on me, but I only notice it with white noise.
For me, its more sharp sounds. I listen to classical (and just about everything else) and sometimes a crescendo, sudden key change, symbols, etc can shock me.
Sirens, sudden loud music, someone suddenly shouting, dog, etc does it.
I don't know for sure but I know that others that are dx with MS have talked about this before. I don't know the reasons, but I know that other MSers also have this happen.
As you know I'm undx, but I have had this problem for over a year. I also have a problem with music sometime. I love music of all types, but somedays I just can't listen to any of it. It's really frustrating because music was a great stress reliever for me.
Hope this improves for you soon.