Hi Crystal,
These things do make you nervous that is for sure, especially after what happened to you in the past.
I feel like I'm not offering much good advice on any subjects this a.m. durnnit, but I wanted you to know that my ear is here, I'm reading this and I feel for you because it brings back memories for me.
Some things happen to me now and once in awhile it's the beginning signs of one of the bad symptoms I had with my 1st attack. When it happens, at 1st I get "oh no - here we go again" nervous feeling which of course makes the symptom all that much worse.
Then you have to hit the simmer down button inside you, which doesn't end the problem you are having, but at least doesn't worsen it. It's a viscious cycle.
Surely this is not all that much helpful to you, but wanted you to know you are not alone. Hopefully someone will have some thoughts on this tingling in you legs. I get this, but it's spotty and in patches and they come and go in a variety of areas. Always worse in the a.m. But, I'm getting use to them. From the knees down must be hard to contend with.
ttys,
Shell
Hi, and sorry to hear about your discomfort.
I have no diagnosis, but I can relate so much to what you are saying, what you describe sounds a lot like me last spring: I'd get a lot of tingling, and it'd get worse/spread when I was lying down. I can't tell you why, but I can relate!
What type of testing have your doctors done, and do you know what possible diagnoses are being considered? I know that often if symptoms onset in a symmetric pattern in hands and feet, that is not consistent with most MS. With MS, the damage to the nervous system is usually not initially symmetric, so more often the symptoms show up in just one limb, or on just one side. I don't think there are any hard rules, but that's what I've come to learn about it.
Have you had EMG/nerve conduction studies and a good round of blood work? Since you have a history from 6 years ago, I'm guessing you've been through some testing before....
If you have aching in the legs, you may want to consider a rheumatologist consult. From my experience, they are more thorough in looking at and ordering more complete blood work, and mine was really good at noticing little differences in my joints.
Hang in there, this forum has a lot of people with MS, with MS symptoms, or with other undiagnosed conditions (like me), collectively there's a lot of experience! Keep us posted and take care.