hi just from experience- for me this ms can do anything! thought i had some bad neck bones-- did c-spine- its ms- i am deaf in right ear- - have that noise consently- but i had brain tumor- on balance nerve!! so this all started when they were tryin 2 figure out whats wrong!! but tumor surgery made me deaf- there are 7 nerves lol- im no dr- but yeh 7 nerves that go to your face- and after surgery- i cant smile- it messed with muscles on that side-gosh didnt aim to write ya a story!! let us know how it goes!! hugs
Thank you two! I'm drawing a list of questions for my new neuro. I'll probably update this when I get answers in a month or so. :)
I am glad you brought this up too... I get the "Oh My God , I'm deaf" moment in my ear followed by the high pitch sound, " morse code" clicking, fluttery sound in my left ear. I get deep inside the ear canal pain,(no ear infection) happened in right ear twice and just recently in the left ear.
I too get the face pain that shocks for less than 10 seconds, but it comes and goes and can become excruciating, but thank god it doesn't last long. I get it mostly on the left side of my face, but have also had the pain on the right side as well.
I wish I could help answer your question, I just wanted to share with you that I get the exact same thing.
Hugs,
Pam
No I can't help but I am so glad you brought this up. I have been having sharp pains and also just a constant aching pain in my left jaw. I am not sure if it is the start of TN or just my silly allergies playing havoc on me.
Hope someone chimes in and gives you some answers.
Paula