Your facial numbness/buzzy feeling sounds similar to my trigeminal neuraglia, although it does not radiate to my shoulder. I do have brainstem lesions which my neuro says accounts for my trigeminal neuraglia. Just a thought....
Hope things improve!!!
Oh and you and Ess were right. The facial numbness stuff is a symptom not side effect. I'm glad I took the advise and asked him about it. I likely would have just justified it eventually with the tizanidine and stopped it even though it helps me so much. So BIG thank you to you both!
Ps Ess, I borrowed your saying in another post ;)
Thank you for asking. I guess it didn't go very well. I put it all in a new post titled "when life gives you lemons" but long story short:
Old lesion on my brainstem that is currently active. Doc says 2 events separated in space and time right now. He is doing a LP on the 6th and he believes that will give him his 3rd for definite MS. For now he Dx'd CIS. This kinda confused me as CIS is an isolated event rather that 2 definite events supported by MRI. Either way he is starting DMD after the LP.
For now I have been started on b12, folate and vitamin d as well as a 5 day course of iv steroids. I am determined to deal with this positively but I must admit I have had a fee freak out moments. I felt pretty good most of the day yesterday and had energy the first time in awhile but then I hit a brick wall last night. Today I am definitely not feeling well, low energy, nausious, shaky, etc and feel generally blah. I'm having a hard time today with this and I feel really bad for not answering everyone yesterday like I promised.
Anyway, I'm sorry for venting on you and I really appreciate you taking the time to check on me :)
i was giving it for sleep, until i googled the true meaning of it. Just like nuerontin my opinion do not tough it its not approved for anything but epilipsy and messed me up for a yr of pyschoness and emotionally mess ups. but tizandine i am on and it for fd approved for MS TWITCHING and that is it. it helped my twitched a great deal im also on the same does... took a few weekd to adjust and get over sie efftects but helped alot. but thats what its for stricly twitching. hope u feel better and figure it out soon! God bless
Thank you Kyle :) the lesion (4mm) is on my brain stem but thats about as clear as they get on location. This is probably the least clear MRI report I have ever read, It doesn't even say what mags they used...? Im hoping Dr. Mechanic, that my nickname for him, will actually want to view the images himself.
Anyway, I go in at 2:30 (michigan time) and will let you all know what they say.
Thanks so much again for kind words. Its funny cause just type talking to you guys makes me feel better and not alone. :-)
Hi BB - Sorry to hear your having a tough time.
As ess referred to, it's important to distinguish between symptoms and side effects. The facial numbness you describe sounds like a symptom rather than a side effect of the Tizanidine.
That they found a lesion is the good news and the bad news. It's bad that they found it, but it's good if it gets you to a diagnosis more quickly.
Let us know how things go today. Hopefully the neuro won't laugh at you this time :-)
I have never had those side effects but I would ask the doctor to be sure. People react differently to medications.
Thanks Ess! I hope you don't mind if I borrow your lost my last clue phrase? I love it! :)
New neuro seems pretty good so far, I described half of my tongue falling asleep (with the headache that started this all) to him and followed it with "seriously doc, has your tongue ever fallen asleep? Weird... very weird" and he actually laughed with me. I was in stupid humor self defense mode, lol.
I just got a call from my GP, he said they found a lesion in my brain MRI and b-12 and vitamin D were very low. He is calling in scripts for the vitamin deficiencies now and faxing reports over... Im scared... :,-( I see my nuero tomorrow so trying not to get too worked up.
Hi. I don't take this drug, so I really can't comment on it directly. However, here is an old thread that has a link that might be good. I got it by using the spyglass symbol at the top.
But I think your symptom sounds like a paresthesia. MS can give you lots of weird feelings. The Health Pages (link at bottom) have good info on this.
Just by the way, my new neuro looks at me like I've lost my last clue when I describe symptoms in my mouth. Hope your neuro is better.