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Travel

Can I travel with the injection Tysabri?
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Avatar universal
good point Lulu, I forgot to mention that in my mini novel!
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572651 tn?1530999357
Tysabri is a tightly controlled drug because of its black box warnings - that means some people have died from tysabri side effects.  You absolutely have to take it at an infusion center.  Good luck with the transfer.
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Avatar universal
Oh I am queen of that one!  Biogen knows how I feel about THAT!
I'll cover all bases since your question makes me think you can handle Tysabri yourself?

You cannot have Tysabri to travel with.
You can set up a different site to have the INFUSION at but even that is more complicated than they say.

Example:
You pick, say St. Louis, as your infusion city at City Hospital.
To move to St. Paul, you have to wait til after an infusion, then call Biogen and tell them you are moving to St. Paul and they help you pick out a new site, and they transfer your insurance information, etc.,

I've been told you can do "a single event" if traveling in an emergency, but because its so tightly regulated, moving around is complicated.

I started out in AL with mine, moved to ME for the summer and am takingmy 9th next Wednesday and on Thursday next, will call Biogen and have my information transferred to another state for the winter.  It takes them a couple weeks and then they will call me with a site unless I specify a specific one and I call to set up an infusion date.

Mine is complicated because I have to have a steroid before every infusion and not every hospital is comfortable with an "out of state" neuro giving medication orders.  So I had to "shop around" with biogen's help to find a hospital that had a local neuro who would "sign off" on the steroid.  The Tysabri was not the problem, it was the steroid.  

Make any sense?  Are you on Tysabri yet?  The way you word your question, I feel you are not yet on it, so let us know if we've confused you yet!

Remember, its not an injection, its an infusion that takes 1 hr and then you have one hour of observation, so between that and "sign in" at large hospitals, you are there for about 2 and a half hours.  It's an outpatient procedure.
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1831849 tn?1383228392
Hi Belle - Are you asking if you can travel with the actual infusion set up or are you asking if you can travel while receiving monthly Tysabri infusions?

If it's the first one, I've never heard of home based, self-administered Tysabri. I would imagine that if you needed to be away from home during your infusion window you could get referred to an infusion center near where you'll be.

If it;s the second one, yes you can travel in between infusions. There are no restrictions that I am aware of.

Kyle
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