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751951 tn?1406632863

Update - Going TOMORROW

Yep, Cleveland Clinic called; I am told visit their Mellen Center mid-day tomorrow already.  Much sooner than I'd expected.  

I'll try to update timeline, symptoms list, med list, etc., etc. befire bedtime.  Leaving home only slightly earlier than I've been leaving fir work.  Two hour drive each way.

(Who put those keys so close together anyway?)Thanks  ;-)
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751951 tn?1406632863
JJ, I'm glad someone can read through my lousy typing!  Thanks for the perspective!
Helpful - 0
987762 tn?1671273328
COMMUNITY LEADER
I'm glad he's said the last part because otherwise he's forgetting the "and or" part of the classic or text book definition of a relapse, that we all know and love to hate lol Return of sx "and or" worsening of sx's "and or" experiencing something new etc etc

A new sx definitely makes it easier to work out its a relapse, but its not the only thing that makes it one, ugg can you image getting something new every single relapse through out your life time........I shudder to think of it.  

cheers......JJ
Helpful - 0
751951 tn?1406632863
Oh, stuff I forgot:

The neuro said that all my symptoms are explainable as MS symptoms,  but that their presentment is non-typical.  Specifically, I keep having the balance and vision problems with each relapse.  He said that ckassic MS would prrsent nrww stuff in each new attack.  Eell, I do, but usually it's all secondary to balance and vision.

Nevertheless, (and this is one.if thise things that manes him a keeper), he said that thet know one thing aboit MS, and that is tht it prrsents itself in different ways with e.very patient.  Jyst because I"m not rhe same as his ladt few patients doean' t mean tjat I don't have.the.same disease they.have.
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987762 tn?1671273328
COMMUNITY LEADER
WOWEE, I have my fingers, toes and eyes crossed :o) in hope that this is the end journey for you, and you finally get this mystery monkey on your back named!

Hugs........JJ
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751951 tn?1406632863
I definitely felt that this young neuro is a keeper.  He asked me to stick around while he saw another patient for a quick appointment, explaining that he knew we had more to cover than the time we had would allow.  He listened carefully to my history, asking quite a few questions as we went along.  He took copies of many of my reports, as well as the CDs.  I must've misplaced my 2010 LP report, but he looked through the hundreds of images on the newest CD, and copied the older ones into their system.  Funny, but he saw things that the radiologists didn't mention.  After a kind of moderate exam, he said that he really expects to find spinal lesions, based on my symptoms and history.  If the MRI shows spinal lesions, he said that he would dx me with MS.  If not, he said we'd be about where we are now.  However, he felt that they might still be able to work out some better symptomatic relief.

All-in-all, I was quite pleased with him.  I felt I took several steps away from the "maybe" column and toward the "probably" category.

I go back for c-spine, t-spine, and updated brain MRIs on the morning of the 4th, and see him again that afternoon.
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Avatar universal
Hope all works out well for you
Maureen
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572651 tn?1530999357
I understand Mellen is one stop shopping - they like to get everything done the day patients have made the travel to Cleveland.  It sounds like you have someone again taking a serious look.  fingers crossed you get some answers.
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751951 tn?1406632863
Taking shuttle to lab for bloid sraw, then back & I'll be done for today.  Coming back 9/4 for MRIs & 2nd meeting with doc.
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751951 tn?1406632863
Checking with insurance before trying to schedule MRIs for today.
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751951 tn?1406632863
Three hours so far.  Wants to do spinal MRIs.  Looking at old brain images now.  So far, he says it might be an atypical case of MS, but unsure.  Spinal cord lesions would be convincing.
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739070 tn?1338603402
Sending wishes for some answers FINALLY!   Have a a safe trip and good luck with the visit!!

Ren
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5717070 tn?1376586671
Good Luck!
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1831849 tn?1383228392
Today could be the start of AnswerFest 2013~!
Good Luck PD!

Kyle
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Avatar universal
Prayers for safe travel and an informative trip.

Corrie
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572651 tn?1530999357
I was just reading/writing about CC today and their Mellen Clinic is the largest  MS clinic in the world and sees 20,000 people about MS each year and now we can make it 20,001.  Good luck in getting this fresh start for answers.

hugs, Laura
Helpful - 0
900662 tn?1469390305
wishing  you the best,  and may the answers you seek be forth coming from the Cleveland Clinic..


Like I said before,  we need to kick you out of the Limboland Club.


take care
John
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5265383 tn?1669040108
WOW!  That was fast.  Praying for your day tomorrow.
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