I take B and D. But my neuro ran tests first to see if they were necessary. They were and I do feel better for taking them.
Vitamin D deficiency is associated with the onset and progression of MS and other autoimmune diseases. One study found low vitamin B12 levels in the cerebrospinal fluid of people with MS even though their blood levels were normal.
I recently read an excellent article by Dr. Mercola entited "Doctor Reverses MS in 9 Months by Eating These Foods" that also features the video from Dr Terry Wahls. An amazing article and video for anyone with or without MS. Dr Wahls also has a book out called "Minding My Mitochondria: How I Overcame Secondary Progressive Multiple Sclerosis (MS) and Got Out of My Wheelchair".
This is an excerpt from Dr Mercola's article:
"Nutrition for Your Brain and Central Nervous System
Through her research into MS, Dr. Wahls discovered that, for some unknown reason, in addition to the commonly known symptoms, MS patients' brains also tend to shrink. This roused her curiosity, and led her to research other diseases that have similar brain shrinkage, namely Huntington's, Parkinson's and Alzheimer's Disease. One common denominator is poorly functioning mitochondria. Mitochondria are like little 'batteries' in your cells that manage the energy supply to the cell, and unless you consume the correct nutrients, eventual mitochondrial malfunction is the obvious result.
She discovered that three nutrients in particular are essential for proper mitochondrial function:
Animal-based omega-3 fat
Coenzyme Q10 (CoQ10) or better yet the reduced version known as Ubiquinol
Just by adding those three to her diet, her decline began to slow. But she wasn't improving, so she continued sleuthing through the medical research in search for an answer. When she discovered the Institute for Functional Medicine, Dr. Wahl began to find more clues.
As mentioned earlier, myelin is an insulating, waxy substance that sheathes the nerves in your central nervous system. Your myelin also needs specific nutrients to function properly, such as:
Animal-based omega-3 fat
Furthermore, the neurotransmitters in your brain need sulfur and B6 for optimal functioning. Eventually, Dr. Wahls designed her own eating plan, based on the nutrients she now knew she needed for optimal mitochondrial-, myelin-, and neurotransmitter function, because while your body can create some nutrients, others must be provided through your diet."
My doctor started me on B6, Folic Acid, Vitamin D and Fish Oil capsules when I was in hospital. I also was given 5 days of B12 injections.
The only level that was low on blood testing was Vitamin D which was really low. My B12 had been low the year before and I had weekly B12 needles for 2 months and that had stayed in normal range ever since.
He said he wanted all my vitamin levels to be top range of normal.
He also tests magnesium levels regularly but they have been fine.
In addition to my neurologist I am consulting with a Naturopathic doctor. She has me taking an iron free multi-vitamin, vitamin D, fish oil and magnesium citrate. I also tried two months worth of glucosamine.
The glucosamine really didn't do anything as it wasn't really my leg joints that get cranky, but rather my leg muscles. The magnesium citrate was swapped in to help with the muscles. It also helps with constipation.
I forgot one. I just started taking the following. She said it may help with chronic stuffy nose.
N-acetylcysteine for liver support, detoxification, and immune support*
well recognized for its powerful detoxification capability in the liver*
strong antioxidant activity*
supports good pulmonary health by decreasing the thickness of mucus*
increases glutathione, a primary cellular antioxidant and detoxification factor*
Wow thanks everyone. The only Vitamins I take right now are, Calcium with with Vitamin D added and a Super B-Complex with added vitamin c and folic acid. I am looking into buying some fish oil/omaga 3 vitamins. I was told by some people that because I hate fish and never eat it that I should take these.
Sounds like you are taking a sensible range of supplements. I recently watched the film about Dr Wahls mentioned by Red Star and it was very interesting. I think it is a very personal decision about supplementation and diet and everyone has to make their own minds up about what helps and suits their bodies as we are all different. I have looked a bit into the Paleo Diet mentioned in the film and it is basically eating healthily with fresh bright coloured veg and fruit, lean meat and fish. Many people say that it you eat a balanced diet then you may not need anything in addition.
However I am interested in the link between vitamin D and MS and am fairly convinced that there is some correlation and that this is a helpful vitamin to take.
Anyhow keep and eat well and look after yourself
Sarah (and I don't think we have met before so Hello from England!)
I am trying Tumeric in my list of supplements too... did quite a bit of reading about it being effective in treatment / control of MS. There are reported trials for tumeric / curcumin in MS patients. Haven't seen anything final, but decided to keep it in the regimen.
I also take:
5,000 IU Vitamin D3
non iron multi vitamin (for B vitamins)
astaxanthin (Bioastin, a red microalgae)
I also tried MSM, but did not see any positive result from that (was on that over 3 months).
This is AWESOME!
I think while I wait for my next MRI, I will be seeking our a Naturepathic MD to see if they can offer any supplementing options. My Neuro is currently testing my vitamin levels and the mimics again.
I do currently take a Bcomplex, 2500 to 5000 iu of Vitamin D, Magnesium Oxide, non-iron Multivitamin. I may add fish oil and am working on a clean diet.
I take a multi-vitamin, 6,000 iu of vitamin D3, 650mg calcium, magnesiusm, and omega 3.
Yesterday Dr. Oz was talking about supplements for specific health concerns and recommended the following:
for muscle cramps:
a combo supplement of:
-potassium - 200mg
-calcium - 600mg
-magnesium - 400mg
white willow bark - an anti-inflammatory, 4 - 6 ml /3 times daily, for back pain
5 HTP - a neurotransmitter which improves sleep quality
Daily I take 6000mg of Omega3 from either 14 super concentrated fish oil tablets, 20mls of flaxseed oil, or two servings of salmon, sardines. I also take 8000iu (I weigh 85kgs) of Vit D when I don't get 15 minutes of sunlight over my body. I take 2 super Vit B complex tablets daily.
Sounds like I'm on the right track. Nice to meet all of you. Doublevision1, I've known you for awhile now. I hardly get on here anymore unless I have a question. Having MS isn't as new to me any more. So I'm not on here asking questions everyday like I used to lol. Me having MS has been put in the back of my head. At first when you get diagnosed you want to know EVERYTHING there is to know about it and then after awhile it gets boring and you move on.
At least for me that's what happened. I like to come back in once in awhile and see how old friends are doing. Some have I guessed stopped getting on at all because I can't get a hold of them. Does anyone know what happened to stella213???
Is there a specific diet out there for MS?
I have been on the Best Bet Diet for nearly two years now. I have not been diagnosed but have brain lesions. Radiologist said MS but Neurologist not sure. So I am in limbo. Decided to change my diet and so far, no further symptoms. As well as cutting out wheat, gluten, dairy, eggs, legumes and yeast, I take a multivitamin, D3, B12, Co Enzyme Q10, Gingko Biloba, and Alpha-Lipoic Acid and Acidiphilus. Just bought the MS Recovery Diet book by Ann Sawyer and Judith E Bachrach, which also advocates the above elimination and supplementation.
My MS doctor tested my D level, gave me a prescription for high dose for a month. I think it was 10,000 IU twice a week for a month. Then I changed to over the counter. I take 400 IU of D3 daily now.
He rechecks my blood, occasionally. He did warn me overdose of it can cause kidney stones.
I also take SAMe, for depression. 10 years ago I was on prescribed antidepressants and was able to get off them with SAM-e. I was taking NerveFix for numbness but I'm on a very fixed income and it's been a couple months since I ran out.
I take calcium and D3 and ignore the rest. My D was ok but D3 makes me feel better or at least makes me think I feel better......
Diagnosed August, 2013
Neurologist talked about how important D3 supplements were, along with magnesium and zinc. Lots of sun recommended and supplements recommended.
Current supplements i'm taking in order of importance:
D3: 3,000 IU/day
Cod Liver Oil
Vitamin A: 8000 IU/day
B12: 2500 mcg/day
Fish Oil: 1000mg/day