We need your favorite links

[Quixotic1]

Wish brought to my attention that we should have a Health Page for great links to info that we have all found and enjoyed and would like others to have.  This could be on things like the Neuro Exam that Deb just offered, or the link to the Happy Neuron or sites that explain what we all go through.

I would like to begin that process by inviting you to submit links that you have found useful, and may even have posted before on the forum.  Write a very short description of what the site offers, and give us the link.  when we have several then someone can put them in categories and create a Health Page for them.

I also need someone who would be willing to collect these sites and put them together.  Any volunteers?

Thanks Wish, for bringing this up.  And thanks to anyone else who may have suggested it before and was ignored.  :((

Quix

[Sunnytoday]

              The Precise Neurological Exam for NYU Students

This contains links that explains indepth the 7 areas that should be covered in a neurological exam. It explains how each test should be preformed, and it also shows after each test what problems could occur, and what part of the body's system they could be linked to.

http://edinfo.med.nyu.edu/courseware/neurosurgery/

[Sarahsmom46]

The following website was very helpful for me in understanding the oligoclonal banding issue that was so hard for me to wrap my brain around.  I hope it may be helpful for someone else.  

http://www.aini.it/files/pdf/48094.pdf


Julie

[jensequitur]

Oh, goodness...  I have a whole folder of links about MS.  Here's some of the better ones....

Pain and MS
http://www.****.***

Cog Test
http://www.****.***

Radiology Primer
http://www.****.***

Natural History of MS
http://****.***

MS Information
http://****.***

Brain Map
http://****.***

Simple Partial Seizures
http:/****.***

The Whole Brain Atlas
http://****.***

Brain Function
http://****.***

Hyperacusis
http://****.***

The AutoImmune Epidemic
http://****.***

Multiple Sclerosis *****
http://****.***

MS Care
http://****.***

Neuro Rating Page
http://****.***

Swank Diet
http://****.***

Mental Health & MS
http://****.***

Neuroland's MS Page
http://****.***

MS Glossary
http://****.***

NARCOMS Registry
https://****.***

Huggins MS Pages
http://****.***

MRI Images from MS
http://****.***

MS Society UK - I like their site better than the US!
http://****.***

Thoracic Spine Injuries
http://****.***

Many of these I got from you guys!  hope these help.

[jensequitur]

Hah!  I forgot they bleep out *****...  Hope I don't ***** myself with a pin from laughing so hard...

[sllowe]

          For our links pages.  This is my favorite and goes through a very thorough exam.  I hope it doesn't get blanked out, as we need this thread to put together our list:
                THE NEURO EXAM            
          http://www.neuroexam.com/content.php?p=2        

-Shell

[sllowe]

               For links page.  Magnetic Resonance Technology
                
                        MR - TECHNOLOGY TIPS, IMAGES, SEQUENCES, ACROYNMS
               http://www.mr-tip.com/serv1.php?type=welcome

-Shell

[sllowe]

  Understanding the American with Disabilities Act a publication of United Spinal Association.  This is a very good downloadable 32 pg. document.
                    UNDERSTANDING ADA pub of United Spinal Assoc.
            http://www.unitedspinal.org/pdf/understanding_the_ada.pdf

-Shell

[jensequitur]

Wow... All of my links got bleeped out - why did they do that?

[doublevision1]

Home Page for Partners MS Center at Brigham & Women's Hospital, Harvard University:  

http://www.partnersmscenter.org/


Blurb from website:
"The Partners Multiple Sclerosis Center, located at the Brigham and Women's Hospital, Harvard Medical School, is a leading institution in the area of multiple sclerosis, providing comprehensive patient care, innovative technology, and ongoing clinical research trials. The Partners MS Center is equipped to provide the best level of care for MS patients and is committed to continuous clinical and laboratory research, in an effort to discover a cure for multiple sclerosis. This web site is designed for both patients and health care professionals. It provides information for lay individuals and practice guidelines for professionals treating multiple sclerosis."

[sllowe]

Maybe you got a little 'over linky'.... way too linked up.....too much linking at once....filled the link-meter...lol

Sorry so silly, but just HAD to!

-Shell

[Dorna]

www.mssociety.org.uk
www.msassociation.org
www.msrc.co.uk

[doublevision1]

Brand new website, The Atlas of MS Database:

www . atlasofms . org


The most comprehensive study of its kind ever undertaken, the Atlas of MS, is launched 17th September 2008 at the World Congress on Treatment and Research in MS in Montreal, Canada (www.msmontreal.org).

The Atlas of MS contains information and data from 112 countries worldwide.

For the first time, information and data on the epidemiology of MS and the availability and accessibility of resources to diagnose, inform, treat, support, manage and rehabilitate people with MS worldwide are available in one database for analysis and comparison at country, regional, and global levels.

[Lulu54]

Just posted this one yesterday - tons of archived interviews here, but I found this one very helpful.

healthtalk.com/go/multiple-sclerosis/webcasts/the-latest-on-visible-and-invisible-signs-of-ms

[mrsmel]

This is a site on MS pain which I've found invaluable in helping to identify various types of MS pain and recommended resolutions.

http://www.msakc.org/Articles/MSPain.htm

[shoshin]

I have several feeds in my blog reader that I find useful to skim and keep up with new developments:

Multiple Sclerosis News From Medical News Today
www.medicalnewstoday.com/rss/multiple_sclerosis.xml  

MSIF (Multiple Sclerosis International Federation)
www.msif.org/syndicate-news.rm?id=273

Accelerated Cure Project for Multiple Sclerosis
www.acceleratedcure.org:8080/stories/feed

The Accelerate Cure site also has a lot of interesting info. They are trying to fund research to understand the causes of MS in order make it easier to find a cure (after six years of idiopathic peripheral neuropathy, i.e. we're clueless as to what is causing your problem and there's nothing to be done about it that isn't completely random, this approach really appeals to me). The have what they call "cure map" documents at

www.acceleratedcure.org/curemap/docs.php

where they talk about what is known about MS and genetics, nutrition, pathogens, toxic agents, and trauma, as well as their own research and development of "a large-scale collection of biological samples and data from people with multiple sclerosis, selected other demyelinating diseases, and unaffected controls" for use by researchers (if you live near one of the centers they're associated with you might want to participate in this).

Another worthwhile project (that is easier to participate in because all you have to do is fill out questionnaires) is the North American Research Committee On Multiple Sclerosis (NARCOMS) Project (patient registry) at www.mscare.org/cmsc/CMSC-NARCOMS-Information.html

Also on the Consortium of Multiple Sclerosis Centers website is their MRI for MS protocol which people ask about periodically: www.mscare.org/cmsc/images/pdf/MRIprotocol2003.pdf

Well, that's what I can think of for the moment.

sho

[sllowe]

  The Consortium of Multiple Sclerosis Centers presents a special Web-based Video Presentation

         ****Evaluation and Management of Spasticity in Multiple Sclerosis***

                   http://www.mscare.org/cmsc/Spasticity-in-Multiple-Sclerosis-Presentation-Preview.html  

[doublevision1]

www   msanswers  com

A Canadian website all about MS.  

Has an "Ask the Expert" feature as well as E-bulletins you can subscribe to.

blurb from the site:

"In the spring of 2006, the Multiple Sclerosis Society of Canada launched the Ask the Expert web site, located at www.msanswers.ca. This online forum has allowed people with MS, caregivers and others affected by MS to discuss issues of importance and obtain accurate answers to specific MS-related questions from subject experts including leading neurologists, MS nurses, psychiatrists and other related health care professionals totalling over 40 active experts.

Since its launch, the website has received on average 3 questions a day, clearly there is an interest in information that is accurate, up-to-date and targeted to the everyday reader. This website allows people to submit questions electronically in either French or English at their convenience. Questions are submitted anonymously and answered by appropriate experts, a new question and answer is posted to the Ask the Expert website five times a week. Once a question is posted it is then housed in the website’s library which is searchable."