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929431 tn?1247394932

anyone on Natalizumab/tysabri

Hi all

Went to see neuro yesterday about dmd, she suggested Natalizumab if i was suitable for it, after she has done another MRI to check if I still have active lesions.  Although she pointed out that it has a better % results to lessen relapses, she also said there is a 1 in 1000 chance of death through getting a brain infection.

Then spoke to the MS nurse and she told me there is only 30 people in N Ireland on this and if I was to be suitable for it that I would be the first person in this hospital that would be receiving it.  

As there is up to 10 wk waiting list for an MRI scan they said that give me a good few weeks to decide.
So was just woundering if anyone else out there is on this and how they are finding it working for them.

Thanks
val
2 Responses
198419 tn?1360242356
sorry to nickel and dime you, just finding some that may be helpful

       http://www.medhelp.org/posts/Multiple-Sclerosis/Tysabri/show/661002
198419 tn?1360242356
Hi there,

Yes, we do have tysabri users on the forum.

I hope they see your post, but please check out this list too:

          http://www.medhelp.org/posts/Multiple-Sclerosis/DMD-Users-Past--Present---Copaxone--Rebif--Avonex--Betaseron--Tysabri--other/show/1193746

-Shell

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