Aa
Aa
A
A
A
Close
728562 tn?1231298088

does being in limbo affect other parts of your life?

like mental health, happiness...so forth?  I am just having a real hard time with everything being so vague.  I feel like..people can't see my symptoms and think I just make excuses or that its 'just stress.'  Or that I am just paying too much attetion to every little thing I feel in my body because 'they've had weird things before too.'  I used to ignore all kinds of weird things, but then it went someplace else from there.  Its like I had a weird attack and yet there is no definitive result or answer yet.  I think since this has all began, I've been feeling more reclusive.  Like I'm not sure how to answer peoples questions when they ask whats going on with health.  My energy is low. I want to be more social with my daughter, and I try to get her and myself out the playground or whatever, but some dayd I just feel like interacting. Did anybody ever get on antidepressants or something before dx?  I hate to fall back on that but ..

does this make sense?

12 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Without God's loving hands I dont think I would be here right now. Things are progressing at a very fast pace. I cant get any answers from any of my doctors, my family and friends are lacking in understanding. They dont seem to understand the seriousness of the situation which is frustrating to me. My body is beginning to "freeze" with stiffness amongst the other things. This past week I was driving and my arms froze. I pulled into a shopping plaza to get myself together.

Tried talking to my new neurologist through emails addressing some of my concerns. She completely felt disrepected by me objecting to her not wanting to give me any new test. I asked for a MRI on a 3 tesla magnet. She said she didnt think it would make a difference. I know different and expressed it to her. After a few respectful emails going back and forth she decided I needed to be seen by someone in Behavioral Health. So now I've been seeing a councillor. I've had a few sessions. She has seen the tremors, stiffness and my eye twitching. I asked her document all the physical symptoms she has seen. She also stated she didnt think I have "anxiety." Depression yes. I asked her if she was in my situation wouldnt you have some depression and she said yes.

I know what many of us are going through in our own different ways. I want to give all of you a hug because there are days when I know I need a hug and some words of encouragement. Blessing to all.
Helpful - 0
572651 tn?1530999357
greetings to all,

I was so relieved to not be stuck in limboland when my neuro came out and declared I have RRMS that I actually sent him a giant container of very good chocolates.  He saved me from hanging in limbo and I will always be grateful to him.  

I had read all the troubles of being in LL and was truly afraid I would be there.  The mental toll that takes is obvious to all of us here, but probably not to others in our circle of family, friends and coworkers.

Please remember that this community is more than willing to listen to you, day or night.

You are welcome to throw tantrums - I'm surprised we don't have more of those here.  

You can go  on and on about the unjust nature of this and we will listen and respond with unanimous nods of approval.  

We'll also laugh and cry with you - sometimes doing both at the same time.  

I hope you all get answers soon.

my best,
Lulu
Helpful - 0
410281 tn?1254229064
Limbo land is almost like he ll.  It's not fair, just or admired.  I have actually, recently, gotten to the point that I didn't know if I really could make it through another day. I've been lucky that my hubby loves me and I was able to get through it, and lucky that my symptoms have become more mild in the past week It's definately a tough place to be. How do you KNOW if it's you or if it's in your head?  The bottom line is that we all have to be our own health advocates.  If we don't feel right, then something isn't right. You know your body better than some strange doctor, who is just pushing people through and giving them antidepressants.

Stay here with us, we will help the best we can. Fight for yourself.  Some times, from day to day it's hard to know what you feel or want, but we will be here.

Find a good doctor.  You are worth it!

Heather
Helpful - 0
953123 tn?1251757774
I am going through that now. I am turning everyone and everything off. My attitude has become very negative (you get tired of feeling like **** all of the time) and it's hard to explain to folks why you are in a bad mood. I just finished taking three days worth (3750 mg) of Pred and my mood is shot. I told my wife that today will be the best I feel for the remainder of my days. That is so unlike me, rarely do I get moody and such and do the woe is me bit. For the time being I am going to enjoy this ride because seriously there is nothing I can do because I am doing everything I can do.....
Helpful - 0
728562 tn?1231298088
Thank you guys for responding.  I know most of us in limbo prob feel the same.  I am planning on going to doc and asking about a mild anti depressant.  I think it would be best for everyone, including my family.  I can't keep getting in these reclusive moods because my daughter is very active and energetic.

I just feel like a nutjob sometimes because I have no real answer and keep thinking maybe I am just imagining things or noticing every little thing my body does and being too preoccupied with it. My moodiness is hard to deal with even for myself.

I hope you all get the answers soon too.  At least we kinda know how each other feels, so I guess we're not alone in that regard.  I just don't know anyone personally, and don't want to discuss it with friends and family all of the time because they don't really get it.  

Helpful - 0
867787 tn?1318936230
Amen! I could have also written this! You feel so alone in it & it seems that no-one can see past your illness at the person inside. I have also been told its in my head or I'm just lazy & it hurts! You know your body & know when somethings not right. I feel like I woke up in someone elses body & believe me I would give it back in a heartbeat!! Do you see a counselor? I'm only starting with that but I think just getting it off my mind & sharing it is going to help.I used to be a very active person & was very physically fit& now 45 lbs in 6 mos. I know this is not me! Thankfully my 4 kids were grown when this hit so I donm't know how all of you with small kids manage!! God be with you & Ill be praying for you! Hopefully someday we will all have some answers!
Helpful - 0
230948 tn?1235844329
uk2
forgot to say i've been on antidepressant about 2 yrs now and i have not been given a firm dx yet though one dr thought it was fibro but i think its something more then that and so does my GP.

sam
Helpful - 0
230948 tn?1235844329
uk2
I so agree i am also a mum of 3 and i find most of the time i have some part of my mind thinking oh that hurts or that was weird!! i cant physically get involved with my kids anymore this coming from a lady who used to run 5 miles a day!! now i cant even chase them on the beach! or even sit in a chair and watch there play i have to cage my day as i know if i do to much one day i'll suffer the next! my life has completely changed and none can show we why and i find that the hardest thing they can say see this on here that is why your body is doing this! its been nearly 3 yrs in this place and you would think it gets easier but it doesnt i have bouts when i dont think of it so much and other times when i think about it alot . I had a social worker say to me the other day i just dont understand your illness as you dont look ill, i said i cant tell when you have a backache,toothache or headache and you cant tell by looking at me that i am ill sure there are days when i am in alot of pain and it shows in my face or i'll be in bed but i have nothing else to show what is wrong not even a dx and a dr report at this stage! very upsetting at times.

sam
Helpful - 0
551343 tn?1506830518
Yes. It does affect all of my life.

I call it my INVISIBLE ILLNESS. If god had been kinder he would have given us the same skin as a chameleon. That is when we are in pain our skin changes colour so that people could see that although we LOOK FINE, we are actually in terrible pain.

xx
Helpful - 0
410281 tn?1254229064
I'm here with you too.  My GP told me that she did not think that I was depressed (believe it or not), but put me on antidepressants to help meal deal with dealing with the symptoms.  I like them.  It's a very low dose, and I still have some VERY down days, but overall I think they help me deal with LIMBO HELL.

You have many friends here.  Please stick around.
Helpful - 0
751951 tn?1406632863
Hugs to you both.  Yes, limboland is not just somewhere I wouldn't want to live.  It's not even a nice place to visit.  However, I've been here a year now -- and counting.
Helpful - 0
Avatar universal
Definitely.  I could have written your post word for word.  It drives me nuts to hear people say it's stress or all in my head!!  It absolutely is NOT. I am a black and white person and all this gray not knowing is difficult for me.

I've got 3 children 4 and under and I want to be more involved w/ my children but I feel numb emotionally...like, I just don't have what it takes to make the extra effort.  Does that make sense?  

I'm going to go to my GP and get on anti-depressants.  If anything will help me cope I'm going to do it.  The way I see it is if it helps then why not?  

I have been concerned about the side effects of the meds affecting me and not being able to tell if it's something related to this or related to the meds.

I want to reach out and give you a hug because I know exactly how you feel....it's so hard sometimes.
Helpful - 0
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1671273328
Australia
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease