Tell me about it its the way this system goes really, i guess as i got the dx for fibro a yr ago i got my disabilty and i am thankfull for the new mobilty car which is amazing but now three dr have said this is not fibro and got my GP to refer me to a neuro now she said i could have had my old neuro back but i said no and i wanted this teaching hospital in london but she messed it up and i can get her to persue with this but it means another 8 week wait this way i guess he has all my notes he is my old neuro so knows how i was and how i am but last time he never gave a ten min neuro work up MRI done without contrast on a low T MRI i just so pray i will be strong enough to tell him i want brain MRI contrast and spine and if still negative to have an open mind to the sx i am having as he is so black and white.
Do you have any recourse at all? what about the doctor that did the first referral that ended up being the neurosurgeon at the hospital you prefer? This all stinks and there ought to be away to clear up the mess. I don't understand how you can get things like the mobility van but not a good doctor? :-)
and pat thank you hunny all your thoughts mean alot to me.
Sorry sam. I know you had your hopes up :(
I'm so sorry you are going through this. Being in limboland *****. Lots of prayers that you get some help soon.
I wasn't suggesting you cheer up - just feeling the pain with you.
I am sorry if i am bringing people down i am not always blue lol
things just get on top of me and i know how this goes and i've been there many times before like your friend and this was the best teaching hospital on neuroscience there is st georges in london and now i am back at my old local hospital who are struggling for funds as it is like they are going to waste any more many on me still i have faith and maybe God has a surprise in store for me its not that i want MS its just i want to know why i am getting worse he said he could not find anything 2 yrs ago but my sx were mild and now there not mild so am hoping he will find something or he can give me some medication to slow this progression.
i will try and cheer up thanks for the hugs hun.
I have watched the posts over the last fewe days - as we do and you sound really fed up today, I do hope it all goes well for you, getting help in the UK really stinks sometimes unless you are a classic case. My friend has had RRMS since she was 19, she is now 50 but she saw 6 neuros and was finally dx in a teaching hospital in London.
I don't know how you cope with young children too. Try to stay positive eh? although I know its not easy.
I have 2 daughters your age and I just want to hug you so sending hugs from across the UK