12832842 tn?1448728801

new Therapy?

Hi! I’ve had ms for 5 years. Copaxone 5 years ago- doing fine. Recently I have not been able to inject as I’m loosing available areas. My Nero is suggesting a drug called Ocrevus. Fairly new/ but seems to think in terms of efficacy and safety, it is a better choice. I was wondering if anyone has been using it. I worry about pml, I worry about cancer, I worry about everything! It’s why I had such a love affair with copaxone. Most natural. Latest mri had shown 4 new lesions/ mild progression. But noted overall disease burden is mild. I guess the argument is my doc wants to keep it that way. Any thoughts? Ty!!  Andrea. ( andi)
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5538989 tn?1514398453
Hi. I’m on 10y since my Dx. I started with copaxone and quickly went to Tecfidera. I loved it until 2018 when it failed me (via MRI not relapse).

I was one of the 1st in my clinic to begin. My Neuro team is Rocky Mountain Ms Center. I am JC+ (the same risk of PmL with Tec.

My Neuro advised that cancer lives in your body years. While there are reported cases, there is not a definitive correlation. He did not want that to sway me. He stared it was the best (at least in 2019) and that research switched to focus on reversing disability. I have t read boards or listened to other peoples experience but this is my own.

I adore the nurses at my infusion center and every 6 months I get a few hours alone with snack & beverage service lol.

Feel free to message me, I don’t mind questions about it.
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