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nobodys talking about ccsvi

gnz
just wondering why i dont see anyone talking about ccsvi...i live in barrie,ontario,canada and this treatment has been making news every day...there are quite a few doctors behind it in barrie fighting the government(who put a stop to it pending further evidence)...a few ms patients have been treated in barrie before the stoppage and are doing great...i hope they resume testing soon...i'd hate to think that the 64 billion the drug companys receive in canada alone for ms meds have that much pull in the government that ms patients have to suffer if there is a possible cure

regards

james
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572651 tn?1530999357
Hi James,
There were also two Europen studies released in the Annals of Neurology this week that say their studies show no connection between CCSVI and MS.  

The topic has been discussed here - we even have an active member who was treated at Stanford before Dr. Dake's work was stopped.  

Right now the verdict on CCSVI is undecided, and I think this forum has stopped talking about it a lot because there are other ways we can put our energies to good use rather than indulging in the speculation.  

The debate in Canada is very interesting to follow.  CCSVI was unknown until Channel 5 (I thinnk) aired their 1 hour special on Zamboni.  That has ignited the MS community in Canada to demand further study into CCSVI.  

Millions of research dollars are now commited to studying this more - check the MS society's web pages for information on the studies they are funding.    This is in response to the demands by MS patients and not necessarily the ordinary scientific approach to research.  

As much as we would love to blame Big Pharma on blocking discussions and further research, I just don't see that happening.  

I hope this helps in answering your question.

be well, Lulu

Helpful - 0
338416 tn?1420045702
There's news all the time about it, but it's still up in the air as to what causes what.  I think the University of Buffalo in NY is starting a program that will allow you to get your veins ballooned...  but it's quite expensive.

Do a search on here for CCSVI and you'll find quite a bit.  The latest news was that an independent study was done that found no connections between CCSVI and MS - but they weren't using MRV, just MRI.  So I'm not sure how valid it is.
Helpful - 0
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