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regarding vibration sensations

I'm a new comer to your forum, although I have previously posted in neuro forum and gave my history.  To make a long story short, all my testing thus far have been normal, it's been a year now since my symptoms have started (numbness, tingling legs and arms, feeling of mental "fogginess", extreme fatigue, heavy sensation in arms and legs, some mild blurred vision, and difficulty with retaining information.  
But I wanted to ask those of you already diagnosed with MS about the strange vibratory sensations I have been having in my arms and legs.  It is as if my cell phone is on vibrate or my pager is on vibrate.  It startles me sometimes especially when I realize it is not being caused by anything external.  Is this fairly common?  What does it mean?  Does it awaken any of you from sleep, or do you have difficulty sleeping because of it?  
As I mentioned it has been just shy one 1 year since my symptoms all started, I am trying really hard to be patient because all my diagnostic testing has thus far been negative (MRI brain, C-spine) extensive labs, EMG: negative, spinal tap 3 months after symptoms started.  I did have an EEG which was abnormal then went for 5 day VEEG which was abnormal also, no seizure disorder but decrease theta waves and some cortical hyperexcitabililty in the parietal region.  I don't suffer from migraines, have been told possibly "white matter disease"  I am having reapeat brain MRI and C-spine it has been 6 months and more since prior fims. I am having them on a 3 tesla which is the newer machine.  Thanks for listening.  
dowma
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Avatar universal
Has anyone considered that the vibration might be the result of consuming genetically modified foods or processed foods containing roundup, food additives and preservatives. This stuff can't be good for us. Genetically modified crops are soaked in roundup and this stuff gets into the plant and food chain. Roundup latches onto minerals which results in mineral deficiencies. Our bodies need minerals, especially the rare minerals in order to be healthy. A lack of minerals will result in chronic disease and a host of other ailments. I would suggest going organic and avoiding all processed and genetically engineered foods.
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1831849 tn?1383228392
Hi GG - Welcome to the forum.

This thread is over 6 years old. Most of the posters are no longer visiting the forum. You may get better response if you "Post A Question" using the link at the top of the page.

We're a pretty friendly group. :-)

Kyle
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Avatar universal
yes, hard to believe al these people have this vibration thing going on too.
At least i am not alone.  Started a few months ago. Have had an undiagnosed pain syndrome. severe pain stabbing cramping twitches feel like i was hit by a car. no one knows.
tried cymbalta and that was a bad drug. lyrica made me depressed  nothing helps.

My vibration was bad last night. scared the heck out of me. kept me up.
It was so bad it was like the bed was vibrating!
I am afraid. 3 years and no doc will do any MRI.
Going to call doc tomorrow and tell him how bad it was this time.

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147426 tn?1317265632
You're a jewel!  thank you!  Q
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228463 tn?1216761521
Here is the thread that made me feel better about the constant vibrations!

Hope this helps you!
Kristin  
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Avatar universal
One of the members of LymeNet.org started a topic today, "Internal vibrations???" and it is getting a lot of responses.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=056929


Carol

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Avatar universal
Great info...

My Neuro offered Neurotin or Lyrica but after discussing the SAs, I decided to wait.  My Vibs, buzzing and snaps aren't that bad.  Question for those of you using them?  Besides the big "O", what other side effects have you experienced.  I read online that these typically caused water retention and weight gain... Being a guy, are any of you guys using these? what sexual SAs have you experienced?

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Avatar universal
Regarding the side effects of Lyrica and Cymbalta: For me the inital 3 to 4 weeks on Lyrica were challenging because I was so drowsy...BUT It really does subside and I feel "normal" on it now. The Cymbalta hurt my stomach for the first couple of days ( a little bit nausiated...that is a common side efffect) and I must say I felt very tearful (more so than usual ) for the first week...But other than that ( and a little slow getting to the big "O" ...forgive me for being so frank, but you asked) the benefits are FAR outweighing the side effects. (Just the fact that I feel like indulging in you-know-what with my husband since this has started is  a miracle!) I was encouraged to try the Cymbalta because of the off label use of treating diabetics for nerve pain...I thought, if it helps the nerve pain, and helps the depression/anxiety then maybe it is a win/win combination. Your experience may not be the same, but give it some time when you try it, your first (first few weeks) may not be an accurate depiction. Best luck to all.
Angela
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Avatar universal
Thank you so much both for this valuable information.  I feel that the more it bothers me, the more I would like to know about it.  It is definitely interesting point, the suggestion about viral infection.  Will certainly check out the other 'thread'  mentioned by Quix.  Take care for now, will catch with with you all very soon.  Janey(1)
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147426 tn?1317265632
It's fascinating that this "symptom" of vibrational paresthesia gets so much interest and yet seems poorlt understood by the neuro's.  Thank you, Angela, for mentioning that your neuro feels it is the effects of a viral infection.  That's really interesting!  Over on the reular Neuro (Patient-to-Doctor) Forum there is a thread called "Feels Like I'm Vibrating!""  It is at least 99 replies long - about the longest I;ve ever seenhere and it has to do with this very topic.  You might want to go over and read some.  It's currently on page #4.

Quix
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228463 tn?1216761521
Hi!  Thanks sooooo much for the info. It is really crazy that we all seam to have the same sx with no clinical signs!!  It makes me think it could be something simple like a virus caused by eating fruit or something strange like that!  I hope it turns out to be something like that for us all.  I have been on a medrol dose pack for 4 days now and I have gotten some energy back and feel like my legs are almost normal again.  It is weird, I can walk at my old pace again today for the first time in 2 months!!  The vibrations or buzzing (great word! that's exactly what it feels like) are still there along with my vision problems but at least something is turning around!!  I am going to research those meds to ask my neuro about it.  

Ahoskm - Have you had any side effects on these two meds?

Dowma, Janey1, JonM :  Hang in there and do all the research you need to before your next neuro visit so you can go in with questions and suggestions in case they do not offer anything but a "come back and see me in 3 months".  I am realizing that we all need to act as our own advocates to be sure we get the help we need and deserve.  It seams so easy to be dismissed when the clinical signs are not there!!

Take care and be well!
Kristin
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230625 tn?1216761064
I have the buzzing in both feet and lower half of my calves.  I also have fine hand tremors and weak, shaky legs.    I am un-Dx'd and not on any meds for my Sx, except for Xanax that my neuro Rx'd me..

That's interesting about the Lyrica/Cymbalta combo ahoskrn.  I'll have to look into that and ask my neuro about it.
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Avatar universal
Thanks Angela, for sharing your story...I was offered to take Lyrica but was hesitant due to the side effects.  I guess it can't be any worse than what I'm feeling now.  Ha ha..The other reason was I didn't want to take anything was not to mask my symptoms while I was having all these tests and consults.  I am really glad that its working for you and I too may possibly try that combination.  thanks for the info. dowma (Mary Beth)
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Avatar universal
Just a little comment about the "vibrations". I started in Jan with bilateral numbness, tingling, tremors, hot shocks,  and those incessant horrible- feeling vibrations that I felt to my inner core, pretty much everywhere in my body. It started in my left hand and spread within 10 days to right hand then both legs and finally torso, head, face. ALL MRI's are negative, not even a spot. Lumbar puncture perfectly normal. EMG, Nerve conduction studies normal. All blood work (thyroid, ANA, Sed rate) normal. The neuro says "viral" is usually responsible for bilateral acute onset of CNS paresthesias. He started me on Lyrica 50mg 3 times a day, which helped turn down the volume of the symptoms, but they were still impeading drastically on my life (and my psychie). We added 60mg of Cymbalta (which they are also now using to treat nerve pain in non-depressed diabetics) and ....voila'! My symptoms have gone from a 10 to about a 2 or 1 on most days (it did take the Cymbalta about 4 weeks to fully kick in...I am on week 7 now. I told the neuro the "vibrations " or "buzzing" that I was feeling was driving me crazy...I think it was the worst of all my paresthesias. We still don't know what the cause was, what the diagnosis is....but at least for now the quality of my life has improved tremendously and I am making plans again and feeling hopeful again. So maybe that drug combination might work for someone else too. If not, keep trying. I am slowly learning that the field of neurology ( I am a Medical-surgical RN) is a very unexact science and a lot of the times they just don't know what it is!!!! Hope this has helped someone. These forums have really helped  me feel I am not alone.
Sincerely,
Angela
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Avatar universal
Hello,
I am definitely at wits end currently as feeling those unpleasant 'vibrations'.  Actually it is so so hard to say what it actually is, I went for a swim yesterday, but certainly any kind of physical activity gets my muscles going.  You guys seem to have lots and lots of tests done, whereas here in the UK things unfortunately do not move that quickly.  I saw the consultant a bout 6 weeks ago and I am only just booked for brain and upper shoulders mri in 2 weeks time.  It is a waiting game I totaly dispise, but there is not a lot I can do.  However, general 'vibrations' or tremors in body could be felt due to lots of reasons, I am praying every day this is not ms.  Take care and let of know how you are doing.  Jeney1
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Avatar universal
Sorry I didn't reply but thanks for the re-assurance.  Regarding the vibration symptoms.  Luckily they have seem to subside a bit, but who knows what tomorrow will bring.  dowma
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Avatar universal
Thanks for the advice about steroids, you mentioned you have MS and that it helped with feeling of heaviness.  Unfortunately I do not have any diagnosis so meds haven't even been mentioned.  All my testing thus far for MS has been negative.  Its so frustrating especially when you don't feel well.  The only abnormality was my EEG.  I will be having a MEG scan and a neuropsych. eval on Monday so maybe that will show something... My 5 day VEEG didn't show any seizure acitivity but some abnormal brain wave activity.  the MD doesn't think that it coorelates with my physical presentation.  What is most frustrating is that everything I read about MS i seem to fit the profile but none of my testing is leaning in that direction.  Sorry to be redundant, just at loose ends.  I wish I could just have a diagnosis and be on with it and deal with whatever comes next.  Thanks for listening and the advice.  I have started to keep a time-line as suggested by Quix, I carry a little notepad and jot my symptoms so I  can keep track.  When it comes to for another consult at least I will have that to referrence.  dowma( Mary Beth)
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Avatar universal
If it makes you feel any better I just had a baby boy 8 months ago and MS had no negative effect on my pregnancy.  I must say that was the best year of my life since I was diagnosed.  I was off the medication for the entire pregnancy and I had no symtoms at all.  I felt like I could run a marathon, my neurologist said that there are certain hormones and the protein level in pregnancy that really combats MS symptoms.  He was ever so right because I was off medication and no symptoms at all.  The only downside to that is that your relapse rate is higher post pregnancy so you will have to start back on the medication as soon as you deliver so you will not be able to breast feed.  I breast fed for a month then I started my medication.  
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I have heard women do not have symptoms during pregnancy, if I were younger I would get pregnant just to experience these feelings going away, even if only for 9 months!
Avatar universal
It's a relief to hear that others are going through the same frustration as myself.  Sorry to say. but I have been dealing with this for a year and feel like maybe it's something other than MS, what I'm not sure.  The MS specialist I have been to says he doesn't think I have MS that my symptoms are not typical presentation.  Not sure why, maybe because I experience bilateral symptoms I don't know.  I have been reading and reading and think maybe its inflammatory such as myositis or myopathy.  I keep you posted.  MB
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216281 tn?1189755826
I thas been 11 years for me!! No definite DX. I have had alot of similar symptoms, including incontinence, hearing loss and severe visual difficulties. All of the Dx's resulted in my being told it was or is related to nerve impairment. I found out yesterday that I have a spastic bladder and the urologist believes it is a component of a neurological disease. Talk about frustrated and scared. I am going to be deaf, blind and peeing my pants permanently, if someone doesn't figure out something quick!! I have also been hoarse for 2 months!!!!!!! Good Luck with everything......
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228463 tn?1216761521
Hi,  My sx started 2 months ago and from what I can tell I have had two flair ups since it started.  I too have been looking for any other answer to explain my symptoms.  I have a fusion at C3 & C4 vertebrae so I went to the chiro thinking he could maybe help everything stop.  It did not help.  I was a hyper, never stop moving kind of person two months ago and now my body starts to tremble and shake after 20-30 minutes of any exercise and I have to lay down.  I was nervous at the beginning that if I pushed myself I would be disabled tomorrow but now I am just adjusting my life to accomodate for these periods of rest.  I live in FL where it feels like 100F out most of the day so I am looking into some inside excercise equipment, low impact, to keep me moving.  I think you should try the gym, just listen to your body and don't over do it.  I also feel like my heart is gonna jumpout of my chest  and get lightheaded when I over do it.  I have read that it could mean involvement of the parasympathetic nervous system causing these.  I know what you are saying with the time issue, I have never been the most patient person and now I have no option but to wait for the next appointment and test result and just keep going.  The people on this forum have helped me stay positive and keep looking for a dx.  Keep reading and letting us know how you are, it helps me so much to know I am not going through this alone!!

Take care and Have a great day!!    Kristin
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Avatar universal
I do not know much about ms in general (perhaps just dont want to know) but I have managed to speak to one free helpline, they were v helpful. I found out that diagnosis can take years and for one particular person it took up to 10 years.  
I have also experienced a very strange painless 'pulling sensation' when I bend my neck.  This apparently  could be due to trapped nerve (so I discovered trapped nerves are not always painful, but cause tingling and other sensations similar to ms).  Are you able to exercise? Do you do any? I used to go to the gym all the time, however it is causing tingling in my legs the more I do it, so have  been trying to avoid it.  But I think I should go to the gym.  I am extremely scared of being diagnosed ms (always hoping that this is not happening to me,...) We were planning to start family, however the consultant said to wait for the test results (guess it is due to the mri scans).  Have you guys experirenced any other sysmptoms? Mine have been going on for about 6-7 months now and everything is going v slowly.  GP keeps sayging there is nothing wrong and to take ibuprofen. Oh dear,... Take care Janey
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Avatar universal
I'm DX definte MS.  MRI, LP were positive.  I had the vibration thing going on for about a month at end of my last flair up.  I would feel this faintly in my knees when I was still or trying to go to sleep,  At the time I was on Xanax and I think that may have mads it more noticeable.  I'm off Xanax now and haven't felt these vibrations for 6 months.  I mentioned it to my MD and he said it was a fairly common transient symptom.  I suspect it will come back.  For me all these symtoms seem to run in cycles of 2-3 weeks at a time.  I'll have headaches and eye pain then my legs will feel worse with more bussing in the feet and then will shift somewhere else.  I guess thats why they call it "waxing and waining".  I hope I'm not progressive but to soon to tell.
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228463 tn?1216761521
It is like you are speaking my language.  My sx are almost identical and I have also had the issues with writing and using my hands in general to do fine motor things.  I too am waiting to try everyother thing before I get diagnosed.  All tests so far have been negative also.  I keep thinking maybe I will wake up tomorrow and it will be over and I can live a normal life again.  The vibrations and the pulsing in my torso are something I feel too.  It feels like I can feel my heart beating through me and makes my head feel full and tired.  I asked my neuro for a orla prednisone trial to stop the vibrations, I am on day three with no real help yet.   I hope you both get answers soon, as I have read this is a very hard thing to dx and it takes time and lots of tests and history to back it up.
Take care,  Kristin
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