Dear Ellynm,
It's not like i am "being like the rest".I want to help you out, but i have my limitations via this forum.My judgement depends upon the inputs provided by you.I don't examine the patient , i just thrive on the wording provided by the person who asks the question.
And since i am not from your country, i would not be able to recommend you to a doctor who can start afresh.Mayo Clinic if one of the most valued clinic in the world and if you believe that his past reports makes the decision biased, lets do one thing.
Why don't you take him to a good tertiary care center (new), and don't show the past case files to the doctors.This will help us to start afresh and give a new frank opinion.
But if the new opinion is same as the previous one, then you really would need to accept the reality.However if their opinion changes, then i would be really happy for both of you.
Please let me know as what you thought about proceeding this way.
Regards
thank you for being like all the rest.
Thats the problem...once they get a hold of his medical file, all the sudden there is nothing they can do. The pschologist is the one who came up with this conversion disorder in the first place but his neurologist must believe that something is real if he subscribes him carbatrol (though he had taken him off it until i wrote a letter describing what i witnessed each time he seized)
I looked into the meaning of "conversion disorder" and this is what I found: Conversion disorder is a condition in which a person has blindness, paralysis, or other nervous system (neurologic) symptoms that cannot be explained. Some doctors falsely believe that conversion disorder and similar disorders are not real conditions, and may tell patients that the problem is "all in your head." However, these conditions are real. They cause distress and cannot be turned on and off at will. Research on the mind-body connection may eventually increase understanding of these disorders.
It seems like as everyone see's the conversion disorder in his file they change thier attitude and he keeps running into walls. Its like they can't figure it out and don't want to take the time. I am trying to find someone who is willing to start fresh...thats why i came on here.
Dear Ellynm,
I really value your concern towards Ishmael.But after understanding the detailed history, it's really getting more and more difficult to arrive at a conclusion.
To be frank, i would require to examine him personally, but that's simple not possible.Mayo Clinic is one of the best premiere clinics in USA, but due to lots of patient loads, they may not be able to give full time to him.
I would surely recommend him to have a frank consultation with the neurologist as well as Psychologist and an occupational therapist.All of them will help him in a combined effort.A combined doctor's teamwork will really rule out the faking part/reality part.Once we are clear on this, maybe they will take the issue seriously.
Feel free to ask me more for further clarifications.
Regards
He was working on a construction site and a truss (spelling?) fell down onto him. There was no impact that day, but the next morning he had a seizure. Since then he still has seizures, but they are controlled with meds. He also has this uncontrollable falling issue. He will be walking and all of the sudden his legs or back give out (we dont know which) and he will drop down to the ground. He use to be a kickboxer when he was younger but all his muscles are getting weaker, along with his knees and arms due to falling and having to catch himself. The doctors cant figure it out. Some have said he is faking and its a conversion disorder...???!!! Why would a man fake this?? I have witnessed the seizures and the falling and everything. No one will take this on...some have totally dismissed it as nothing found. I can get more details from him...
Dear ellynm,
Please tell me the details of the accident happened at the job, it's impact.Also please tell me the results of all the investigations done as soon as possible.
Regards,