Avatar universal

33 with dizziness body pain hightened emotions and vision issues

i have been told i have fibromyalgia, post traumatic stress, a syrinx, then that the syrinx is too small,
i have been a different person for three years now. i give up on feeling better, if i didnt have kids i would not go on any more, i am confused, and stupid all the time, im in pain all the time, my kidneys and everything else dont work like they should stomach pain, and 10 days without going. double vision, dizziness, eye pain, fatigure balance problems, running my hand in door knobs ramming fork into teeth, hitting cheeks when i hug at church, i am seriously just a worthless person physically its a good thing i am funny and kinda cute, lol, or else ppl surely just dig a hole in the back yard, ive been passed from dr to dr, no one has helped me get disability, even the word overwhelms me, and how and where do i even start, ive cried to all that im worried that im sick that i havent worked in over two years, that im going broke fast, but .. as i said, now im going to see someone for post traumatic stress. on tuesday. thats a new one yeah, i guess i am, pretty pissed off to be living this way so i give it a try.
2 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Jen - Where are you?  Could you have been exposed to Lyme Disease?  It's in every state in the country, but doctors tend to be unfamiliar with the later stage symptoms. That terrible feeling of losing oneself, along with so many different and strange symptoms is very familiar to me. Every one of your symptoms could be caused by Lyme.

Check out this document as it gives an overview.  It is intended for doctors, but it gives a thorough symptom list a few pages down.  

If you think you might have it, you'll want to find a LLMD, a Lyme Literate Medical Doctor who is familiar with the disease and knows how to make a clinical diagnosis.  Unfortunately, many doctors also think that blood tests are perfect, which they are not.  Many people have suffered unnecessarily for years because they tested negative and then were told they didn't have it.

It's also controversial among doctors with Infect. disease docs saying a month of abx will cure you and remaining symptoms are your immune systemoverreacting, and LLMDs saying we'll treat you until your symptoms are gone.  

You can come to the Lyme forum to learn more.  It's a far more varied and serious disease than most people realize.
Helpful - 0
Avatar universal
Hi Jen,

What kind of tests have you done so far?  If you haven't already, I would suggest finding a neuro and having an MRI of the brain and spine.
Helpful - 0
Have an Answer?

You are reading content posted in the Neurology Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1669040108
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease