If you do research, arachnoid cysts form in the lining around the brain and often people are born with them. Location and size determine symptoms. They should be removed if they cause symptoms. Pineal cysts can interfere with melatonin production - has he had problems sleeping lately? The pineal gland is also very close to the optic chiasm so he needs to get a very good eye exam from a neuro-opthomologist as well as I would consult a pituitary center at a university as the gland is close to the pituitary and it would be the same type of surgeon who does pituitary surgery that should do the pineal surgery since they are close to each other and it would require the special instruments that they have - not just any surgeon will do. Symptoms can be subtle and that is why you may not have noticed so much but they probably are there.
As your husband's pineal cyst is 1cm, the seizure can be due to the pineal cyst. Cysts smaller than 5mm (half a cm) rarely cause symptoms.
"Larger pineal cysts are rare findings that may cause a variety of symptoms (symptomatic). Symptoms may include headaches, increased pressure on the brain because of accumulation of excessive cerebrospinal fluid (hydrocephalus), and vision abnormalities. Large symptomatic pineal cysts may potentially cause serious conditions such as seizures and loss of consciousness. The exact cause of symptomatic pineal cysts is unknown." - webmd
My husband has a CT scan 3 years ago and no cysts were present then. We have an appt with a neurologist next week. I will look into a specialized dr at a university. Do you have any recommendations for California?
There are quite a few pituitary centers in California - it really depends on the area if you mean San Diego or San Francisco! But at least there you have a lot of good choices. I actually traveled from the east coast to west for my surgery! Let us know how it goes.