Iam a 57 year old female. I have loss of hearing specially low tones , tinnitus and can feel my pulse in my ears. I also have had very few and mild vertigo feelings except for one time. I looked for the use of a hearing aid but after CT and Brain MRI was diagnosed with billateral brain herniation to the middle ear and also pseudomeningocelle. Doctors think this is congenital since I have no history of traumatic head trauma, frequent sinus or ear infections recently. Doctors believe this a rather unique condition but other that telling me that If I get ear infections could have meningitis or that if I leak CSF would need emergency surgery. They do not give me a treatment course to follow but seem rather surprised for what seems an "interesting and never seen before case".
Please if anyone knows more about any of this let me know. Thank you