Brian lesions

[joaninkentucky]

Can you not have MS and still have brain lesions? Neuros says they are not in the correct location and look like hypertensive lesions? I am having such bad neurological issues that it's freaking me out--buzzing, electrical internal tremors, pins and needles all over body--- feels like muscle spasms all over --24/7 everyday for 7 months--nothing--- have seen 4 neurologist  and even had a lumbar puncture --many different types of doctors and many many test--I have seen every type of doctor that ends in a "ist"  all neg....no answers --come on docs online please save me --it's miserable living like this!!! Thanks for you time!!!

[joaninkentucky]

Also I did have low B-12 and Vitamin D and are now treating those as well-- thanks again

[joaninkentucky]

Symptoms nit systems--sorry about the misspelled words --IPAD (ughhhh spell check)

[joaninkentucky]

Thank you for your reply--no bands with spinal tap and all systems have been constant no stop since June 2011--no breaks -no relief-- right now I am sitting here vibrating like I am on a generator. Could you have any suggestions for me,or where to go from here. It feels like my brain in on speed and just won't let my body slow down--horrible---have you evert heard of this?? Many different doctors (including 5 neuros) nothing everything appears normal -- MRI shows those lesions but doctors say they are not related to my symptoms--minor cervical disc problems and minor thorasic disc problems. Doctors say not related! Thanks for your info I am miserable. To yung for this. I have friends and family that are not getting the best of me and I nor them deserve it! Thanks for listening and if you have any suggestions please let me know--maybe you could br s hero and help this kentuky woman out! Thanks!

P.S. Doctors already checked my vitamin D and All levels --I did have low feratin levels which I am treating with iron.

[Dr Sharma]

Dear Joaninkentucky, welcome to the medhelp forum. I am sorry to hear about your dilemma. There are certain rules in MS diagnosis. If you have had at least two relapses or symptomatic episodes, with a month in between and more than one lesion on brain or spinal cord, this is, suggestive of MS. You can be ruled of diagnosis if your neurologist is able to make an alternative definite diagnosis accounting your symptoms. MS is a possible diagnosis when your symptoms look like MS but tests are normal. It is usually a definite diagnosis only when you have had at least two attacks, separated in time and minimum two areas of demyelination.
MRI brain shows hyperintensities in the periventricular white matter, sagittal FLAIR images are the most sensitive. Sagittal FLAIR images distinguish between non specific white matter changes like seen in hypertension, diabetes, age above 50, migraine, smoking and high cholesterol levels. Your doctor should do a complete blood count, metabolic panel including TSH and B12 levels to rule out other possible diagnosis. CSF evaluation and detection of oligoclonal bands and prolongation of conduction in visual evoked potentials suggest MS diagnosis. Symptoms of Lyme disease include a typical rash within 2 weeks of the tick bite, constitutional symptoms, facial palsy, stiff neck, radiculoneuropathy and peripheral neuropathy. ELISA is done to check for the diagnosis along with western blots showing lyme specific IgM and IgG. Hope this helps. Wish you all the best with diagnosis and appropriate therapy.

[joaninkentucky]

I have an appt. with  a Lymes Specialist on the 25th of January. I hope I can make it until then. There is something serious going on in my body, and it is terrible. Thanks for your reply.

[Londres70]

After seeing 4 Neuros you can rule out anything "purely neuro" going on.  

Sounds like the neuro symptoms are secondary to something; what it is is the question.  

I would start looking in other directions for the cause of your problems.  Ruling out Lyme's as the above posted mentioned would be a good start.  

[CC2007]

Hi Joan...You PM'd me but I cannot find your msg when I sign in. Go figure. Your symptoms sound amazingly like mine in the beginning of Lyme disease. When it invades the central nervous system, all sorts of bizarre things happen. That is meant to be a pristine environment.  I went through the MS scare, also, and did have brain lesions but I would later learn that 15% of people with Lyme have them.  You must find a Lyme specialist and get tested for Lyme and co-infections!   Go to www.lymediseaseassociation.org and ***************

Let me know how things go for you!