CIDP

[Heather1987]

I have been undergoing tests for a year and a half now and seem to be getting no where. First I was told I had transverse myelitis, then MS then myelitis. I am not seeking another opinion and wondering if I could have CIDP. It all started a year and a half ago with numbness and tingling in my feet then slowly spread up to my lower back. I have had balance issues but always able to walk until I started to lose power in my right leg. I had a LP which showed oligoclonal bands and slightly increased protein in CSF. My MRI of brain is clear and spinal cord was questioning inflammation in thorasic cord but non conclusive. I was treated with IV steroids which helped a lot but 3 months later my symptoms returned and they seem to flair up then subside but always have tingling patchy numbness mainly in legs.
I am looking for any information on CIDP and if you think it could be this I have.
Many thanks
Heather

[notverysmart1]

I was diagnosed two weeks ago with CIDP after 4 years of misery and no answers. Heather you need to try Prednisone. Only thing to keep my leg cramping down. I will be starting IVIG soon and although nervous, I am really praying for some relief with that treatment.

[notverysmart1]

I was diagnosed two weeks ago with CIDP after 4 years of misery and no answers. Heather you need to try Prednisone. Only thing to keep my leg cramping down. I will be starting IVIG soon and although nervous, I am really praying for some relief with that treatment.

[Heather1987]

Thank you for your reply. I will definitely mention this to my new neuro. As far as I know none of the previous neurologists have looked into this, as they have never mentioned it. I do go to the gym when Im not in a relapse, but find this is becoming harder and harder and cant get back to original fitneess level. Thank you again. Heather.   .  .

[Dr Sharma]

Hi there. Your symptoms do resemble chronic inflammatory demyelinating polyneuropathy, which is characterized by progressive weakness and impaired sensory function in legs and arms.  The disorder is caused by damage to the myelin sheath of the peripheral nerves. it Is more common in young men, presenting with symptoms that include tingling or numbness beginning in toes and fingers, weakness of arms and legs, loss of deep tender reflexes, fatigue, abnormal sensations. Treatment includes corticosteroids such as prednisolone, prescribed or in combination with immunosuppressant drugs. Plasmapheresis and intravenous immunoglobulin therapy are effective.  Physiotherapy may improve muscle strength, function and mobility and minimizes the shrinkage of muscles and tendons and distortions of joints. The prognosis varies widely with some having spontaneous recovery and others with partial recovery.  Early treatment to prevent loss of nerve axons is recommended. Hope this helps.