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Can a C5 C6 bulging disk cause a buzzing/vibratory sensation in my face and neck?

I am a 38 year old female who has spent too much time at doctor's offices this year.  Years' prior to this I would go for an annual physical and a trip or 2 to the doctor for a sinus infection.  I have seasonal allergies that I take zyrtec or xyzol for when needed.  I don't really take any other meds except a daily vitamin when I remember.  My labs have all come back okay so not my thyroid or potassium levels.  
I went to the doctor in late July because I felt like I was vibrating or better yet had buzzing in my R cheek and a migraine.  Nights prior to this I was waking up in the middle of the night with my fingers asleep (pinky and ring fingers on both hands).  I would change postitions and go back to sleep.   We flipped the mattress thinking it may be that.  The next day I woke up and the buzzing is in my legs as well as my R cheek.  I took a Cyclobenzaper at bedtime and it helped me get to sleep.  I start to notice my legs twitcing, not the whole leg but isolated spots in my legs/certain muscles.  This then goes to my eye as well.  This continues and is noticeably worse at nighttime when I am trying to get to sleep.  I notice it gets worse if I do not sleep well.  The initial doctor who saw me for this back in July was a psyiatrist and said that if my symptoms did not go away to see a neurologist.  In early September, I go to see a neurologist.  I have no weakness with these strange sensations so that is a good thing.  My blood pressure is high at the neurologists office so he thinks it is my heart and refers me to a cardiologist.  The cardiologist does a 24 hour holter monitor and basically says my heart is fine.  I go back to the neurologist who then orders and MRI of the brain and neck.  
I do ashtanga yoga and had a neck injury from doing headstand in 2007.  It was never xrayed though.  I did receive PT with Mackenzie approach that was successful.  Back then, I had headaches and terrible pain with turning my head to the right and upward.  
Back to my most recent MRI's.  My insurance would not approve an MRI with contrast so they were done without.  Brain was unremarkable (phew, no MS) and neck states right paracentral disk protrusion at C5-C6 resulting in mild central and moderate right neural foraminal stenosis.  So, that's it!  I am thrilled to find out what the cause of my weird buzzing or "idling" sensation is from.  I go back to PT for more Mackenzie treatment with neck roll backs.  Only thing is that now I have developed tinnitus in my R ear that gets worse when I pull my chin back or when I push against my forehead.  I do my exercises when I feel the idling sensation but don't really think it is working after 3 weeks. I have woken up the past 3 days now exhausted despite a full nights sleep.  It feels like something is flaring up again.  I called the neurologist today and he is starting me on gabapentin, which I filled and am researching online tonight.  I am scared to take it but will to see if my symptoms go away.  I just want this to all stop.  
So, my question is...can someone have muscle twitching, tinnitus, and a vibratory/buzzing feeling all from a protruding disk at level C5 C6 or is something else going on that the doctors are missing?
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Avatar universal
Hey I am new to this and super scared . I had a horrible headache about a month ago couldn’t sleep . Now let’s start off never had headache before . Woke up with pressure behind eye and shaky hands and tremors in the brain . Went to over 13 doctors and four emergency room . Orthopedic says it’s spine related my c4 c5 c6 just not the stuff with my head and my neurology guy says migraine . Hey ****** I never Had this before it just randomly shows up one Friday night . Can’t work been off since March scared no one can fiqure it out had multiple cat scan and z ray and one mri of kneck going to have mri on skull . Everyone seems to have the same symptoms is it from the neck .  Thanks for the help
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Avatar universal
Thanks for this thread.  I'd be interested how Yogamommy is doing now?

I too have had similar symptoms; sudden onset radial polyneuropathy (2 months ago) affecting all hands/arms/feet & legs (with a concentration on the left-hand side) as well as a constant vibration in my lips & face, which occasionally move to the end of my tongue and eye causing blurry vision.  3 x 100mg gabapentin per day has brought some relief, but at the expense of my feeling groggy and having my sleep severely disrupted.

So far all tests have come back negative for any diagnoses (slew of blood tests, urine, EMG, nerve conduction, MRI of brain & spine).  The cervical spine MRI did note mild stenosis at C3-4 and C5-6, but this was considered too minor to cause these symptoms.  In general this is good, as a number of rather unpleasant possibilities seem to have been ruled out.  However, it doesn't help with understanding what may be wrong or (more importantly!) how I can recover.

From the comments here, and other research, when I see my neurologist next week I will discuss the spine MRI further, follow up on heavy metal poisoning (an amalgam filling was removed the week before symptoms started), parasitic/viral infections (no testing has been done for Lyme, Chegas etc.), and additional tests such as skin/nerve biopsies, lumbar fluid testing & general inflammation testing.  I'll follow up here if anyone is interested.

I'm 46, and until this episode was in the best shape & health of my life, and I enjoy being very active.  Emotionally this has been quite tough, with an impact on both my personal life and work - particularly feeling either in pain due to the symptoms, or groggy due to the meds.  Also, not knowing where this is going is exerting quite a toll - as well as a general feeling from the doctors that there's no real hurry to diagnose, and sticking me on meds should be sufficient.

Wishing all of you out there reading this the best for a quick diagnosis and recovery.
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3 Comments
Still no progress since I posted a month ago; I have been sent to a "psychoneurologist" who has carried out a series of baseline tests for cognitive and spacial abilities - this may aid in diagnosis.  My next neurologist appointment is next week, when I will push for the aforementioned tests (metals/infections etc.).  In the meantime I switched out gabapentin for amitriptyline - other than some grogginess when first starting, the amitriptyline has been much better, and 3 out of 4 days I feel pretty good.  If I don't get a lot of sleep, though, the symptoms come back.
All tests carried out, and the diagnosis is "maybe a pinched nerve" or "anxiety".  I've since started acupuncture & am seeing a NUCCA chiropractor.  After my first visit to the NUCCA doc, the constant vibration in my lips/face disappeared, leaving a slightly numb lower-lip.  Hopefully this progress with continue.
The amitriptyline has done a good job; the main side effects are a constant dry-mouth, and I have put on about 10lbs.  But constant pain was removed, other than the vibration in lips/face.
Avatar universal
Hello, yes your symptoms can be from your injury. I have 2 herniated disks in my neck and my neurologist prescribed me Gabapentin. I take 300mg 3 times a day. I have been taking it for almost a year now. I have not had any serious issues with it. It helps alot with the nerve pain and twitching or spasms. It helps your body relax. The only thing i have noticed is that i get light headed sometimes. Like if i stand up to fast. I know when i was prescribed it i also researched it and it scared the crap out of me also. It is a drug that is used for so many different things. I have been dealing with chronic pain from a car accident since Jan 2015. Besides my neck issue i had torn tendons and muscles in my shoulder, my hip was out of place and since it has been put back in place there is a lot of pain and popping when i walk, i also have tendonitis in my foot. I have tried the physical therapy, and the injections with no success. I am so greatful for the Gabapentin. It helps with sleeping. For some reason the pain/twitching is always worse when you are trying to relax and sleep. I hope this helps and that you get better soon!
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18842785 tn?1468709026
has anybody looked into natural remedies for dissolving bone spurs? As well as vitamins and minerals that aid in disc health and healing?
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Avatar universal
Mercury may NOT show up in any sort of test!

If you have 8 fillings you are being terribly poisoned.  The toxic mercury from ONE filling could kill a person.
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Avatar universal
I am sorry to read of so many people in pain.  
From what I have read on this thread, it seems most if not all of the symptoms I have read are classic symptoms of mercury poisoning.  Mercury will NOT show up in a blood test unless you have taken a supplement to dislodge it.  And even then it may not show up.  

Google any of the symptoms listed on this thread plus 'mercury poisoning' in the search bar and you will be amazed at what you find.

Not all mercury is coming from amalgam fillings.  Flu shots, corn syrup, all kinds of fish, they all have mercury.  Cosmetics have mercury.  Ear and nose drops have thimerosal (mercury), eyeliner has mercury.

Start here.
http://amalgam.org/
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8472942 tn?1398273557
I have had all of these same symptoms since last year in March. I gave birth to my son in Feb of last year...and one month after I have been in complete agony! It started in my chest,I thought that I was dying,I have been to my primary doctor numerous times and he has pretty much refused to help me by saying "what do you want me to do..send you to a witch doctor?" which my fiance and I found very rude! I have been on my own ever since trying to find answers. I found a orthopedic doctor after going to a pulmonary doctor and getting my lungs and heart checked,all was fine. The orthopedic doctor done an MRI which showed a bulging disc C5,C6 and I have gotton 2 epidurals in my neck of steroids,the first shot helped and the second one did not,I am scheduled next week for a third one because this pain is so unbearable! I have been on many different medications NSAIDS mostly because the steroids have such bad reactions. I am now taking percocet & Robaxin which only relieve my pain for about 4 hours at a time.I am suffering with tiny bumps on my hands,they are starting to spread now & itch and I believe that its something related to my relentless pain in my shoulder blades and neck! They have come and gone for months now,I was reading above about yeast and I am thinking that may be a possibility because when I was reading about my hands yeast was brought up there also. I have also had lots of blood work,I requested to be checked for Lyme and I don't think that my doctor carried through on that. The only problems I had in my blood work was very high levels of inflammation. But all I want to know is...what is causing it? Please help anyone with any idea of what this could be,I have lost all quality of life,I have even quit going to church because the pain is so unbearable,I try not to leave home at all....unless I have to. I have been robbed of picking up my son and now he is 14 months old and I can hardly care for him while at home with him alone :( Please help!
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1 Comments
Look up Magnesium deficiency..it can cause so many symptoms..as well as vit B12 and other deficiencies..Never know, could be as sime as all that. Hope that's the case.
Avatar universal
I was searching for help on how to find a sleep position for my neck that will allow me to wake up well rested and without a headache. I have two things going on… was in a car accident 28 years ago and have an issue with C5 or C6…chiropractor says X-rays show an injury to one of them (I can't remember which); it will not get its natural curve back.  Second thing I have going on is I had Lyme and Rocky Mountain Spotted Fever.  They are spirochete bacteria from most likely a dear tic bite that I am unaware when happened. Your symptoms and others sound like spirochete related.  I say spirochete and not Lyme because there are soooo many co-infections with Lyme that I hope people will make sure to look for the host of other co-infections that the same tick may be carrying because they have different symptoms. My co-infection was RMSF (Rocky Mountain Spotted Fever). They attack any injury that you may already have or develop while sick.  I encourage you to get tested for spirochete bacteria. There's two options I'm aware of:  western medicine and alternative.  Upon much research, it seems to me that alternative medicine has the most success in curing Lyme etc. Western medicine needs to revamp the testing procedures for Lyme as they are not accurate once the spirochetes have moved into your tissues and out of the blood. More research on treating the bacteria is needed as well bc this bacteria is a super bug! Treatment is costly to your body and pocketbook and I don't think I have read any testimonials of those who have been cured from "chronic" Lyme like I do with alternative healing (they usually say they will never be healed and continue to deal with Lyme).  I also have found not all Alternative healing is created equal either.  After much prayer, God placed me with whom I think is the best out there.  So, I just say all this to share my experience.  You probably have a couple things going on here. Lastly, the research has found that many people are diagnosed with MS, Parkinson's, Rheumatoid Arthritis, Lupus, Fibromyalgia, dementia, alzheimer's etc and these are just secondary to the Lyme spirochete infection which caused the disease. Not all, but enough to test for Lyme and its confections. I encourage you to start researching Lyme and its confections and get tested now because, if you have it, the damage needs to be stopped.  I am happy to help and offer my Dr. if you want to contact me, if you can through this site. Hope God leads you to wellness and healing.  God bless!
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Avatar universal
I'm not sure if anyone checks this post anymore, but here's my story just in case:

I started having all the same problems on and off about ten years ago. I never told ANYONE, not even my husband. I thought everyone would think I was crazy and I wasn't even sure how to describe my symptoms. For some reason, I went through a long period when I only had the neck pain and no other symptoms, but then everything came back with a vengeance.

I finally decided to see a doctor. I've been diagnosed with Meniere's  disease (an inner ear disorder) because I do have hearing loss in addition to the other problems and I had bulging discs c-5 & c-6. There's no real treatment for Meniere's, but my specialist put me on a high dose of prednisone for 6 weeks. It helped a lot, for a while. He also put me on a restricted sodium diet which I still follow. When I cheat, my symptoms all get worse.

I've also had surgery 4 years ago for my neck because I was losing the use of my left arm (I'm left handed.) I was a lot better after that for awhile too, even though I never regained total feeling in my left hand.

My symptoms have gotten bad again lately and my doc says he thinks I need neck surgery again. I'm not sure if I will or not because the pain is still very manageable.He also thinks there's a hormonal aspect to my problem (I just started menopause this year.) Very long story short, he says that the combination of Meniere's and nerve damage cause the symptoms and there's no cure, only treating the symptoms.

I've been prescribed diuretics and occasional alprazolam (to help with vertigo) and they both help, but again, not a cure. I do my best to do my part through diet, exercise and stretching. Sometimes I'm symptom free, sometimes I'm terrible, so I just stay in bed that day. The worst for me is the buzzing and twitching in my tongue, neck, throat and right side of my chest. It's worse than the pain to me because it's so distracting.

The most important thing for me is that I've been tested for all the scary diseases and causes and they've all been ruled out, so I know this isn't life threatening, it's just VERY annoying and inconvenient. I'll keep watching this blog to see if anyone finds a real answer. Just glad to know I'm not the only one and I'm NOT crazy!
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Avatar universal
Hello there
Every single word u said are happening with me and i am affraid from ms from about 2 weeks i hate night and i hate sleeping cause its scary somehow my 5 doctors  2 pf them said i need surgery in my c5 c6  and 2 said no but i am feeling worse day after day and some of my friends told me sure these symptoms are from the disk c5 c6 but my concentration was on ms because  of whole body spasms
What is different from u in my case is that i lnew about my disk in c5 c6 before all these symptoms because of litle weaknes in my left arm after that my doctor made mri for me and it showed c5 c6 injury.  I am so happy to know that someone is feeling like me but now i think its from the injury.
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Avatar universal
Just a note to tell you that you are not alone. I am an active 38 year old mother of three boys who did damage to my neck water skiing ... I was trying to find relief from symptoms by reading your posts

All my MRIs - even those with contrast - came back normal the only possible problem is very slight bulging of c5. But I have pain in my ears - pain in my left shoulder - a humming or buzzing internally - and vibrations in my arms and legs when I do supervised physical therapy but only in certain positions. My neurosurgeon has told me nine months of gentle therapy should see major improvements. My neurologist just wants to give me panic attack medication but I have refused because I know it is a physical ailment as pulling in my chin and correcting my posture can induce almost immediate relief

Just a point about girls night out - are you wearing heels?  I have had a few formal functions and have felt horrific afterwards and realized my real heels are putting me out of balance. I avoid them now but hopefully in a year I will be able to wear them again
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Avatar universal
I hate to say this, but you really need to re investigate Lyme Disease.  It took me over a year to get a diagnosis.  I had many of the symptoms you have.  Go to Lymenet.org   Hope things are better.  
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Avatar universal
Dear All,

This is Ramesh Kumar from India. 33 Years, Male.

Working as Export Manager in a Textile Company.

I was suffering from Back pain for the last 5-6 Years. Initially i didn't take it as serious ans i was also in Young age in my 20's and energetic. But now it becomes a serious issue and affects my Day to day work. So i got a MRI in February 2012 and got the following result in my MRI

Impression

No Evidence of discitis or osteomyuelitis changes

Bulging annulus seen at L4-L5 L5-S1 levels narrowing the spinal canal and slightly indenting the spinal canal.
Hip/SI Joints

No obvious demonstrable pathology in SI joints and Hip joints

Whole Spine

Broad based disc protrusion seen at C5-C6 C6-C7 Levels narrowing the spinal canal and slightly indenting the cord surface.

Is the above condition is called Spinal Subluxation (Vertebral Subluxation) ???? . If it is Subluxation then is it possible my thyroid is to be affected. Recently Checked my thyroid also and my Physician told that my thyroid levels are normal.Below is the Thyroid results

Total Triiodothyronine T3 - 94 ng/dl Reference range - 60 - 200
Total Thyroxine T4 - 7.3 mug/dl Reference range - 4.5 - 12
Throid Stimulating Hormone - 2.87 muiu/ml Reference range - 0.30 - 5.5

I am facing severe hair fall for the last 4 years and also severe right side body pain from the scalp to the leg. (Right Jaws, Right Shoulder, Right Teeth, Right hand, Right Leg etc...) Also My right Side scalp hair is falling a lot than left. My life becoming miserable and i am unable to concentrate in my career and family.

In 2004 I was also suffered from Tuberculosis. Could you please confirm if Tuberculosis can cause this spinal subluxation. I don't remember I met with any major accident other than small like falling down while playing, or travelling in bike etc...

I now think this problem should have been started minimum 8 years ago.

Is there any possibilities to cure this completely. If it is cured will my hair regrow and my pain will be stopped.

Hope somebody can put light on this matter.

Awaiting to hear from you soon.

Thanks and Regards,
Ramesh Kumar
Tamil nadu
India
+ 91 77080 03474
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Avatar universal
Hello yogamommy! I was just diagnosed with a bulging disc c5/c6. I have all the same symptoms you have. Sinuses, twitching right eye, numb arms & fingers when I wake up. I have been on hydrocodone for about 4 years, since my son was born. I'm so sick of the medications. Now I am about to see a doctor in my area for treatment. What are the most effective natural methods you have found that work best for you? I am terrified they will tell me I need surgery. ***@****
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Avatar universal
I too have so many of these problems. I was just diagnosed with herniated disks (2)/stenosis/bone spur in my neck, I get numbness and tingling down my arms. I have suffered from vertigo, severe vertigo for years. I am on the FULL attack of SELF HEALING!!! I had 4 different diagnosis's from doctors....I'm heading down my own path for now. Docs stress me out more than my problems.
This is what I do.
I sit straight, and NEVER slouch anymore. Correct posture has relieved the numbness already.
I drink up to 12 glasses of water a day. The discs in the spine need water to stay gel-like (google it). I never miss a day, 12 cups. Then I drink only healthy drinks and not much like fruit juices. A drink 1 or 2 cups of decaf but with a lot of soy milk.
I went VEGAN. I eat mostly veggies and nuts. A little fruit in season. Meat and dairy has a lot of antibiotics and growth hormones, the animals are fed terrible foods. I read up on it and it made me sick. It's all online if you'd like to read up. I really believed those products were poisoning me. And sugar!! It's OUT! I've lost around 25 pounds and feel great from the dietary change.
I eat NO grains. My neck/vertigo/general dizziness/numbness ALL get worse when I eat any grain!!! Even my neck seems to tighten when I eat grains.
I am learning small exersices that help push the discs back in.
I am going to get deep tissue massages.
And will get routine acupuntcture.
I surf and will limit my time in the water and stay in small easy waves. No more jarring sports like mountain biking or jogging. I'll hike easy gentle places.
I meditate to relieve stress.
I'm finally learning to squat instead of bend to pick things up and plan on using a dolly with a box on it to get my groceries from my car to the house.
I'm 50 and do believe perimenopause has a lot to do with this. Time to change my ways once again.
All my love and care goes out to all of us struggling to understand these things and help ourselves heal. <3 :)
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Avatar universal
Wow, just perusing through these posts and finding lots of people with many of the same symptoms. I too have had weird neurological symptoms for the past couple of months. I had been ignoring some of these signs until this past  month. I see chiropractors regularly and my adjustments were just not holding. The numbness, tingling and (what you refer to as the vibrating all over) muscle spasms are really annoying. It feels like something is taking over your body.

I just finished a course of tests run by a neurologist - 16 vials of blood (not fun), a two hour blood sugar test, EMG, nerve conduction - everything cam back normal. They tested for muscular dystrophy, MS, diabetes, hypoglycemia, hyperglycemia, thyroid disorder, celiac disease, heavy metal poisoning, vitamin/mineral deficiencies, bla, bla, bla - nothing. Had 2 brain MRI's and one cervical spine (neck) MRI.

My neighbor approached me last week b/c she had heard I was experiencing these problems. She went through the same thing. She also tested for a long list of ailments with an internist and neurologist - nothing. She has since been diagnosed with candidiasis which is an overgrowth of yeast (fungus) in her body, Apparently, yeast infections do not necessarily present as one would think (vaginally). So, since I was waiting  a long time to get an appointment with a new primary care physician I decided to do some research online and take matters into my own hands.

I had already changed my diet after the neurologist suggested testing for celiac and diabetes. I have not had any grains or sugar :( since my first appointment. I buy mostly organic everything. I have not been eating processed foods. I even stopped eating fruit (for the time being) to clear out any sugars. I never use artificial sweeteners of any kind. My symptoms started to improve. When reported this to the neurologist on my follow-up visit he said "well, it's not that so you can go back to eating that stuff." Guess what? I don't think I can go back to eating whatever I want. I still have symtoms but not as bad. I started treating myself with a candida formula, caprylic acid, grapefruit seed extract, very strong probiotics, digestive enzymes and more - all things you can buy at a health food store or online. Within a few days I had a "die-off" reaction; I don't think you get those if you don't have abundant yeast in your system. I'm not totally well, but it has been helping. If you have any sensitivity to wheat, grains, sugar... it will help. I have not tested positive for any of these allergies but apparently my body knows something the labs and doctors don't know. The proof is in the pudding - pun intended!

My neck MRI did not come back as clean as the other tests. I have bulging discs, neural foraminal stenosis, bone spurs.... all the same stuff everyone here is talking about. I am going to start physical therapy this week to help that but I must say that if you have any inflammation in your body from your diet...that is something you can take charge of yourself to effect some positive results. I am fighting any drug use at all (except for the occasional advil to keep inflammation down). All those drugs screw up your liver, kidneys, stomach, etc. Ask your naturopath to test you for yeast overgrowth. I didn't want to wait another month to get in to see the naturopath. I just self-diagnosed b/c I am not very trusting of traditional doctors at this point. After all, they are just practicing medicine...they don't always know, obviously, or we wouldn't all be on this site venting about this stuff!

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Avatar universal
I'm relieved to find this forum. I'm not the only one out there with these crazy symptoms!!!

Since Sept 2011 I have been dealing with an array of symptoms. Here's the list:

Ears have a high pitched ringing that changes sometimes with repositioning my neck.
Neck pain.
Severe, burning, searing, pressure headaches with nasal congestion that will subside after a while.
Dizziness
Blurred vision
Tingling/Numbness in nose, lips, cheeks, tongue
Tongue feels burnt all the time & it sometimes feels "tired"
Constant jack hammer like vibrations that I think someone can see.  But they can't. I can only feel them. And I also have burning pain in arms as well.
Vibration in my legs
Goose bumps feeling in just my right leg only
Overwhelming fatigue

Recently I was diagnosed with Hoshimoto's Thyroiditis & Vitamin D deficiency. My vitamin D is ok now after 3 months of taking it. My recent MRI of neck showed C5, C6 disk bulge on the right with bone spurs. However, my primary doctor feels that this wouldn't cause all of these symptoms. After reading all of these comments, I beg to differ with her. It seems that the disc bulge is the issue. I don't know what to think. I know I'm not crazy and it's not all in my head because there are others like yourself dealing with the same issues as I am. I will follow up with a neurologist and see what he has to say.  We have to be our own advocates. Keep seeking answers and don't give up!!!!! Be a nuisance to your doctors. Let them realize you're not giving up and you don't expect them to either.

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Avatar universal
I have read your post for the last year and am sorry for all your symptoms. I have almost all the same. My adventure started last april with tingling in my right temple and has lead to array of symptoms. Though after reading this I feel we all have one major medical condition in common.  Bone Spurs!!  mine is at the c5 c-6 level with forminal stenosis and my symptoms are as follows.

Twitching every where from my eye to my feet
Burning tongue
Arms extended feel real shaky
Thumb and grip felling a bit weak
Zaps and internal shakes
These are my main ones.
I have been to a chiro. for the past year the nuero 3x , a family doctor, internalist,eye doctor and
a nuero surgeon who says the bulging disk has to go.
I have had 2 xrays , 1 mri , 5 blood tests, lyme testing, EMG (which is not painful) cat scan and many ohter small tests.
Meds. xanex,naproxen,lyrical,antacids and a who list of others. I Stoped taking all of them.
The bottom line is when the spinal cords is involved I fell all these syptoms are common.
I will consider surgery later this month and will let you know how my symptoms progress or regress.
Sorry guys my spelling stinks.....
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Avatar universal
Have they ruled out Chiari Malformation? I have many of the same symptoms that you have described, and I was just diagnosed with Chiari.  I think my neurologist found it on the MRI scans.  I also have bulging discs C5-6 and bone spurs.  Next week I go for an EMG, which has me a little unnerved.  

Anyway, I pasted some of the symptoms of Chiari - hope this helps and good luck!!

Chiari malformation type I
Headaches, often severe, are the classic symptom of Chiari malformation. They're typically precipitated with sudden coughing, sneezing or straining. People with Chiari malformation type I can also experience:

Neck pain (running down the shoulders at times)
Unsteady gait (problems with balance)
Poor hand coordination (fine motor skills)
Numbness and tingling of the hands and feet
Dizziness
Difficulty swallowing (sometimes accompanied by gagging, choking and vomiting)
Vision problems (blurred or double vision)
Slurred speech
Less often, people with Chiari malformation may experience:

Ringing or buzzing in the ears (tinnitus)
Poor bladder control
Chest pain, in a band-like pattern around the chest
Curvature of the spine (scoliosis) related to spinal cord impairment
Abnormal breathing — specifically, sleep apnea, characterized by periods of breathing cessation during sleep
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Avatar universal
Ask for an Epstein Barr test. That's the virus that, among other things, causes mono. If you had a severe case of the flu before all this started it could have been initial exposure to Epstein Barr. A blood test will confirm previous or current active disease. Epstein Barr can cause many of the problems you are experiencing or complicate existing disc problems with inflammation.
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Avatar universal
Hello, I too am absolutely amazed that there are so many people out there with exactly the same symptoms, yet there doesn't seem to be a single MD that would be able to diagnose the cause! Are we still in a Victorian era? This is possibly the most neglected syndrome out there. The best the medical community can do is tell us that this is "fibromyalgia" or similar "non-diagnosis", i.e. we have no clue what is wrong with you, so we will name your symptoms and you better be happy with that. Fibromyalgia should be named "NCWTHTI", for "no clue what the heck this is". I have been to at least half a dozen doctors now, with varying specialties, and I get a different diagnosis nearly every time.
I have the same symptoms. Actually, I don't even have to describe them, because they are exactly as everyone has listed them here, although I am still waiting for my MRI. I used to be such a driven, active person, now I have to push myself hard just to get through the day. It makes me mad and frustrated to be robbed of my previous life, I just want my life back. I am not depressed and I don't think neither of you have a mental issue either, I just get miserable because I can't do the things I love to do. Is that so hard to understand?
One of us should find an MD that is willing to dedicate time to defining this, describing the symptoms and investigating whether it has ever been successfully treated. If Mayo clinic has such a line-up of these cases, don't they have a designated specialist? I would be there tomorrow! This doesn't boast too well for Mayo clinic.
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Hi Yogamommy,
Your story sounds very similar. I hope you're still contributing to this forum because I was really glad to stumble across your post. I was diagnosed with bulging disks c5- c7 in March and have been (internal) vibrating, head to toe muscle twitching(mainly waist down), tinnitus, dizziness since then. Prior to the bulging disks, my head began buzzing shortly after a bad flu/pneumonia which was treated with a 5 day Z pak in late Feb. I've never been able to find out if this might be related since it's been a whirlwind of doctors with no answers.I've had a brain MRI-normal, nerve test-normal and next the EEG since my head's been buzzing/plus dizziness, intensely for weeks now. My GP tested for thyroid, B12, Lyme and MS--nada. Routine blood test in February also came back normal. I'm on Klonopin 0.5 mg once at night-little over a month, but the only thing it helps with is sleep. My internal vibrations/muscle twitching is 24/7 and vary with intesity-unpredictable, usually worse in afternoon to nighttime...much worse. I've been trying to keep physically active but I sometimes I feel mentally/physically exhausted. I'm scheduled to see a GP for more tests and was hoping that you might have some suggestions. It's a comfort that we're not alone here. After reading a few posts, I wonder if it could be perimenopause, I'm 38?  

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I have been experiencing similar symptoms since at least 2004, off and on, with the symptoms getting much worse since 2007. At one point i could hardly get out of bed, actually crawling to the bathroom. Been to many specialists over time including rheumatoligist at cleveland university, neuroligists at cleveland clinic and upmc etc etc. I also ended up changing my PCP fairly early on in my "process" as he did not believe me. I actually took my husband with me to one visit just to verify what was going on because EVERYONE had me believing this was all in my head. On the drive home my husband asked me what I was going to do because this doctor did not believe me....even after he pleaded my case also telling the dr that the person sitting there was not his wife. Unfortunately, it has become his wife as no one has given me anything that helps. I have been told of SO many things that i DONT have and only a few things that I do have.  I do have the diagnoses of chronic fatigue and fibromyalgia, also have bulging discs at c4-c5, c5-c6, c6-c7, L4-L5, and L5-s1. Have had physical therapy with minimal relief. chiropractic therapies seem to have minimal relief also, but does help when the pain and symptoms are unbearable. i am told that after my PT i would have to try some nerve blocks before being referred for any kind of surgery and even then i am not a very good surgical canidate as the bulges "are not bad" and i am too young (43).                                                               I have tried alternative/natruopaths/accupuncture along with traditional medicine with only minimal relief of sypmtoms and becoming med dependent to get through the days. While it works, it sure doesnt feel like living. i guess that i should state my symptoms---severe fatigue, severe muscle aches and pains mainly on my left side (with all bulging discs on the right side which has all of the doctors and therapists mystified), headaches, vertigo, left side of my face twitches is swollen numb and will progress to my eye when i am stressed or tired (all symptoms are worse when i am stressed or tired). I also have severe GI problems which have been ruled out as anything major several times but sometimes the worst of all is the depression and anxiety that go along with all of this. I was always a very active person, working and enjoying my hobbies which almost all were physical (running, biking, equestrian sports). now, even though we have our own horse farm, i do very little if anything physical except going to work (which now is part time) and trying to get some house and barn work done, NOTHING like what i used to be able to do. I feel very let down by the medical community which is hard also because I am an RN. i was referred to the mayo clinic, but after completing a very long and in depth phone call interview, i was told that they would not see me because there were too many other people waiting to be seen with the same symptoms. that is depressing on sooooo many levels....so many people out there suffering from the same things and begging for relief. i have been tempted to try one of the fibromyalgia clinics that are out there, but, of course, they do not accept insurance and they are very expensive and want you to join a "membership club" where you pay up front for treatments and get a "discount". most of those treatments are based on mineral and vitamin deficiencies but all of my tests show OK levels except for thyroid and vitamin d which are both now in "normal" ranges following treatment. I wish that I had better news for everyone, but it does make me feel better knowing that there are people who KNOW what I am feeling. my friends try (the ones that have bothered to stay around as i am not as much fun as i used to be) and my husband tries very very hard, but still, no one knows unless you are feeling it. I have so many people tell me you just need to go do more, or not think about it as much, or you have so much to be grateful for---the last one is absolutely true, but it still does not help.
would love to read about anything that does help people feel better.
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Vitamin D was 24.  Cortisol was slightly high.  Not disease level high, but high end of normal.  She recommended a vitamin regimen.  I go back in 2 months.  I guess time will tell.  
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