Capillary Telangiectasia in the pons area of the brain

[Sherine]

I had an MRI done about 4 wks ago and  the results stated that I had a Capillary Telangiectasia thats about 3mm in size. My neourologist stated that its something thats usually not treated and that the worst that could happen is that it could hemmorhage, cause a stroke and/or death, but that is very very very rare. Is that true?  Do I have anything to worry about? I am very scared. How would I know if it has ruptured? What can cause it to rupture?

[vicanut]

I have a capillary Telangiectasia 5mm on the pons section of my brain. On April 10, 2014 it hemorrhaged. I did not know that I had this problem until then and then only after a couple of MRIs did they figure out what it was.  I had awful dizziness and weakness on my left side and it was difficult for me to form words for a few days. I spent a few days in the hospital, missed 2 weeks of work. I'm back to normal now and doing well. My doctor says it is very important for me to keep my stress level down and also my blood pressure needs to be low. His comment to me was he could tell I had had a few hemorrhages before but I was probably told I had an inner ear infection due to the location of mine and the dizziness it would present like and inner ear infection. So it isn't a matter of will it happen again it is when will it happen again, we now know what to do if it happens again and there is comfort in knowing that. It also explained to us why I have always been very clumsy. Neurologist said I bet you can't walk a straight line, my sister and I just looked at each other laughed and said nope. My sister said we call her the queen of klutz. He responded she can't help it. Hope you are doing well.

[guidocat1]

I was just diagnosed with CT also. I have to go back in two and a half months to get another test to see if it progressively is growing or not. This is the most nerve racking thing I have ever been through. I've read that if they hemorrhage, it could lead to death or stroke. The things I've read aren't cheery. I really won't feel calm about this until after the second test just in case they got it wrong the first time. I'm glad there is this forum to communicate concern. Thanks for listening.

[liprk]

Could Cymbalta cause it to hemorrhage????

[kristinmkm]

I was recently diagnosed with one too...about 4 weeks ago myself.  I also was diagnosed with Chiari 1 Malformation.  I have been told the very same thing from 3 different doctors not to worry about the CT.  It is Very Very rare that it would hemmorhage.  One even said, "You have more of a chance to get hit on the head by a space rock than have it hemmorhage." What I have been told is if it does hemmorhage than you would know due to the pain.  

Most people are asymptomatic and it is never discovered except through autopsy.  I would try not to worry about it, I know that's easier said than done because I, myself have been having a difficult time with all this also.  But, it's better than a tumor-which some people have been misdiagnosed with a CT when they have a tumor.  So, be thankful it's not that.