Confused - Neurological Diagnosis

[bobodowd]

My husband is progressivly losing his motor skills, balance, having trouble walking.  Has been misdiagnosed with MS, has had two major surgeries on spine, L5 & 5 and C 3 & 4, diagnososed with Transverse Myelitis (occurrred three years ago which we were told was a one time hit to his spinal cord) yet he is getting increasingly worse by the day.  Now both the neurosurgeon and movement disorder neurologist have washed their hands of him and have referred him to an artheritis specialist.  We need desperate help.  Thank you.

[KStuff]

Please check into the possibility of lyme disease or infectious CNS diseases. A person can have a negative test for lyme, but still have the condition. It's worth taking a look at as a diagnosis.

[Precious108]

Have his doctors ever suggested or looked into Multiple system Atrophy (MSA) or Autonomic Dysfunction? Because my husband has been having problems lately and they have suggested those to me and i have done research on them and the symptoms you said he is having are listed as symptoms with MSA. there is a group support site that i go to it is very informative and the people on there are very nice and helpful, maybe asking them can be of some help. It is shy-drager group. it is a yahoo group. hope this helps you some.

[skypeople]

so sorry, no one has answered your posting so I want to do that.  I am so sorry that your husband is losing is motor skills and can attest to how devasting that is.  I wish I knew something that could help but at least I can show support.  I did get an answer to my posting but was so general and most important question about gas exposure was not asnwered.  Just know that someone is out there who cares and that you deserve some kind of answer.  Just curious, is your husband a veteran and having to deal with VA?  my best wishes and prayers to you both

[Margaretx]

Your husband needs to be evaluated at an ALS center. You don't say how old he is or how long this has been going on but the symptoms you have listed make me very suspicious for ALS and, unless your husband is very young (less than 30 or so) or has had these symptoms for 10 years or more, I can't imagine why a neurologist hasn't suggested this.

[midnightdoc]

I have been having nervous symptoms. My spinal tap revealed my protein level as 97.7. I have lower back pains,neck pains, headaches that worsen when straining,bending over or blowing my nose. My blood calcium has been running around 10.5. My nerve conduction study revealed bilateral carpal tunnel,cubital tunnel, both ankles with nerve problems, C6 to C8 nerve problems and both sides of L5 and S1 nerve damage. I get dizzy a lot, don't sleep well at times, have bed wetting night sweats at times,lower forearms and 2 little fingers go numb when sitting or sleeping. I'm thirsty all the time. I had surgery on L4-L5 about 12 years ago. I have leg cramps and foot cramps a lot. Does this sound like MS? I am at Mayo Clinic in MN and am waiting on more test.

[gemgemninja]

also if anyone has any other info about cerebellar ataxia please let me know thanks.

[gemgemninja]

have you looked into any of the ataxias? cerebellar ataxia perhaps. My boyfriend's dad was first diagnosed with MS as well and it was misdiagnosed. He says his motor skills slowly declined over several years. Supposedly his is spontaneous ataxia. I think in my own opinion it could be from his jobs during his younger years exposed to chemicals. In my research I found that is a possibility. I also read cerebellar ataxia could be from spine injury. He first started out with falling for no reason did not happen very often then over time it got worse. A few years later he started to use cane then walker now 20 years since onset he is in a wheelchair. I think they didnt realize it was ataxia until about 10 years in. there is a bunch of other stuff describe but i figure you can research if you have more questions about it for me feel free.

[francis123]

i don't know anthing either ,buth i hope you found the problem amd the cure for your husbend