Ya, it's never nice when a doctor does not take symptoms or issues seriously. Sorry you are feeling like you have to fight for your rights as a patients. So, okay. an ENT ruled out inner ear issues. I have had tinnitus and it was from the ears along with pressure and various other things being sinus related. But you have been told this is not the case for you. Weird question but are you under a lot of stress?
But you are right. If you had the mirena IUD, it is associated with Psuedotumor Cerebri . Why won't the doctor give you the appropriate procedure to determine if you have this? Who volunteers for a spinal tap if it isn't likely to be the condition they want tested for, you know? So, this does sound like a possibility and frankly, you sound very articulate and educated and have covered your basis in terms of knowing your body and what this condition entails. So, I think I'd push for the test to determine. In the mean time, what about drinking extra water to flush your system a bit (as diuretics are sometimes used like Lasix and while extra water isn't going to do 'that' it will help keep your system flushing out, if that makes sense?
So, the eye test ruled that out as a reason for symptoms which would make me think that the spinal tap is then necessary to diagnose this? I agree you don't want to do damage but you know . . . if this is something you now have after your IUD, you need someone willing to treat it. What about a CT scan? Would they be willing to do that for you?
Oh good. Sorry if I missed you are having the MRI in your post. I hear ya. It's not a pleasant experience. I hate the IV. I hate it all. But necessary sometimes.
Anyway, I just want to say that I understand why you are afraid that you have this condition because in reading about it and from what I know, you do seem to have symptoms. Please keep me updated, okay? hugs