Extremely weird sensations/twitching in face and body!!!

[Mars1233]

Hello to all,

Something has been going on with me for more than a year now. I've been having these extremely abnormal sensations in my face and my head. This all started in September of 2013, and it just came out of nowhere. When it started it was really settle, and it didn't bother me to the point where I felt I needed to visit a doctor. I could control it for the most part. However, I believe from the month of December of 2013 to now, it started becoming A LOT worse. Right now, I'm experiencing the worst and weirdest sensations that has ever happened to me. I honestly don't even know how to describe the feeling but it's just happening all over my face and my head. It's not painful, but it's really irritating because it's happening 24/7. At first I thought it was twitching, then I thought it might be intense tingling, but now I honestly don't know what it is anymore. All I know is that it's real, and I feel it whether I like it or not. This has been affecting my self-image and my confidence. I've never been truly confident or content with myself, in fact I would call myself really insecure. But once these sensations occurred, all the even smallest confidence I had in myself went out the window. These sensations I'm having honestly make me feel some type of way about myself. It feels like my face is morphing into some weird creature and I HATE IT! I'm 17 and a senior in high school so I'll be going off to college soon and because of this I'm so scared of going. I feel like just being isolated on an island by myself so people don't ever have to see my face. I know most of you all are probably thinking, "Of course, a lot of teenage girls suffer from self-image. You're probably just one of many who do." But NO, this is not what's happening to me. I was free from what ever this is freshmen and sophomore year, and it just suddenly occurred junior year. I went to see a neurologist about this, and he said it was probably trigeminal neuralgia. He prescribed to me Tegretol XR 100 MG; to take 1 tablet twice a day, but that did absolutely nothing. So since that didn't work, he prescribed to me IC Gabapentin 100 MG; to take 1 cap 3x daily for one week, 2 caps 3x daily for another week, then to take 3 caps 3x daily thereafter. This didn't work as well, in fact I feel as if the sensations are getting worse and more intense. So since none of these medications worked for me, my neurologist scheduled me an MRI of the brain. My MRI was clean and normal. Now he really doesn't know what's going on with me, so he can't do anything about it, which I don't blame him. I don't even know what's going on with myself. When this first started I thought this was all in my head because it wasn't that big of a deal. However, now I know that these are real feelings and sensations, and it's driving me insane. I just feel so hopeless and worthless because it's taking over me and how I live my life.

Now about my body twitching. This came some time after my facial sensations. The twitching happens ALL OVER my body. There are no specific parts that it occurs, it just happens everywhere. When it happens, I can see it. Sometimes the number of times a certain part of my body twitches is more than others. It ranges from very soft and slow twitching to fast and harder twitching. This is very frequent just like the facial sensations. I sent a video from my iPhone to my neurologist of my little finger muscles twitching which went on; on and off for at least 45 minutes. He said it is common and harmless and is probably due to overexcitability of a single nerve fiber or several small nerve fibers. He said what causes it is not well-understood. I'm just so annoyed and frustrated with everything that's going on with me at the moment. He recommended me to go see a counselor for stress managing techniques but all I want is for all of this to go away so I can feel normal again. I wonder if my body twitching is related to my facial sensations?

To talk about my medical history, I was diagnosed with Hashimoto's thyroiditis last year and with vitamin D deficiency recently.

Okay, so I'm done ranting on about all of this. I'm just really desperate for some answers if anyone's got any. Is anybody going through anything similar to this? If so, have you managed to treat or cure it? Do you think that both the body twitching and the facial sensations could be related?

Thank you all in advance!

[Tlo2]

Hi, I also have the same symptoms. It started 6 months ago and also causing headaches and a sore throat.
That feeling is mostly on my left side and the twitching started on my left but it is now all over the body.
I have also done MRI which came back clear, but now I suffer a pressure headache on top of my head and causes pain to my nostrils and throat.
The neurologist could not pick anything, endoscopy down my throat and stomach, even went to ENT and all came clear, but I continue to have these funny sensations tingling and numbness and headaches.

I hope you will get help. I am frustrated because the doctors keep on saying it could be Glassopharyngeal Neuralgia, or Fibromylgia, or Rhematoid.....

Regards

[worriedmummy12]

Just a question & theory - because of your age I guess - Do you happen to drink any cool drinks, diet cokes / drinks or energy drinks?
Aspartame poisoning may be an effect or an overdose of caffeine
I honestly have no however & my son is currently experiencing something similar which he has had for the past 6 days. Twitching of his head, weakness in his left arm, over activity in his left leg. It started with a head ache & his CT scans have come up clear as well as his blood tests.
I hope you find some answers soon