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Headaches/Giddiness & Back Pain
Hi,
My daughter is 15 years old and has been a synchronized swimmer for the past 8 years. She has been having backaches & headaches for the past one & half years. Done MRI 2 months ago, discovered CSF in her the spine, a condition termed syringomyelia. We're in the midst whether she has Chiari/ Hydrocephalus. Anyone with similiar conditions ? What's the best treatment ?
My daughter is 15 years old and has been a synchronized swimmer for the past 8 years. She has been having backaches & headaches for the past one & half years. Done MRI 2 months ago, discovered CSF in her the spine, a condition termed syringomyelia. We're in the midst whether she has Chiari/ Hydrocephalus. Anyone with similiar conditions ? What's the best treatment ?
Dear Dizzygirl,
Thanks for the info. She was almost discharge but luckily my spouse pressed on. In fact, 2 different Neuros came up with different diagnosis.One had said Chiari making a reference to the tonsil herniation 4mm & suggested a decompression surgery. The other did another MRI & clear her of hydrocephalus & Chiari but had a conference with visiting consultants the next day & suggest a pressure test to be done for confirmation. It involved drilling a hole through the skull & observe the pressure between the eyes for 24 hrs. But their Chiari line of reference was different from the first Neuro. The 2nd Neuro made a reference from the drop of the hernia to the level of the mouth.We are more inclined to perform the decompression surgery as there's a chance of brain haeomorrage from drilling the skull. If it is hydrocephalus that required a shunt, we'll get it done later as seems shunt has a lot of complication. BTW, we're seeking a 3rd opinion on Tuesday before confirming the posterior fossa decompression operation scheduled for 17/09/12. What I really need now is how would you how Chiari is diagnose - the reference point. .
Thanks for the info. She was almost discharge but luckily my spouse pressed on. In fact, 2 different Neuros came up with different diagnosis.One had said Chiari making a reference to the tonsil herniation 4mm & suggested a decompression surgery. The other did another MRI & clear her of hydrocephalus & Chiari but had a conference with visiting consultants the next day & suggest a pressure test to be done for confirmation. It involved drilling a hole through the skull & observe the pressure between the eyes for 24 hrs. But their Chiari line of reference was different from the first Neuro. The 2nd Neuro made a reference from the drop of the hernia to the level of the mouth.We are more inclined to perform the decompression surgery as there's a chance of brain haeomorrage from drilling the skull. If it is hydrocephalus that required a shunt, we'll get it done later as seems shunt has a lot of complication. BTW, we're seeking a 3rd opinion on Tuesday before confirming the posterior fossa decompression operation scheduled for 17/09/12. What I really need now is how would you how Chiari is diagnose - the reference point. .
Dear Londres,
Thanks for the info. She was almost discharge but luckily my spouse pressed on. In fact, 2 different Neuros came up with different diagnosis.One had said Chiari making a reference to the tonsil herniation 4mm & suggested a decompression surgery. The other did another MRI & clear her of hydrocephalus & Chiari but had a conference with visiting consultants the next day & suggest a pressure test to be done for confirmation. It involved drilling a hole through the skull & observe the pressure between the eyes for 24 hrs. But their Chiari line of reference was different from the first Neuro. The 2nd Neuro made a reference from the drop of the hernia to the level of the mouth.We are more inclined to perform the decompression surgery as there's a chance of brain haeomorrage from drilling the skull. If it is hydrocephalus that required a shunt, we'll get it done later as seems shunt has a lot of complication. BTW, we're seeking a 3rd opinion on Tuesday before confirming the posterior fossa decompression operation scheduled for 17/09/12. What I really need now is how would you how Chiari is diagnose - the reference point. .
Thanks for the info. She was almost discharge but luckily my spouse pressed on. In fact, 2 different Neuros came up with different diagnosis.One had said Chiari making a reference to the tonsil herniation 4mm & suggested a decompression surgery. The other did another MRI & clear her of hydrocephalus & Chiari but had a conference with visiting consultants the next day & suggest a pressure test to be done for confirmation. It involved drilling a hole through the skull & observe the pressure between the eyes for 24 hrs. But their Chiari line of reference was different from the first Neuro. The 2nd Neuro made a reference from the drop of the hernia to the level of the mouth.We are more inclined to perform the decompression surgery as there's a chance of brain haeomorrage from drilling the skull. If it is hydrocephalus that required a shunt, we'll get it done later as seems shunt has a lot of complication. BTW, we're seeking a 3rd opinion on Tuesday before confirming the posterior fossa decompression operation scheduled for 17/09/12. What I really need now is how would you how Chiari is diagnose - the reference point. .
I have chiari also and decompression surgery is the only treatment besides monitoring and treating symptoms. I would highly recommend taking your daughter to a chiari specialist as it is a rare condition, as well as getting a few opinions. Best of luck to you and your daughter. I would also recommend the chiari forum.
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