I have been diagnosed with IIH for about 2 years now. my initial papilledema was grade IV, and initial pressure was 32 second LP pressure had gone down to 25. I am on 500mg acetazolamide qid, 150mg topiramate bid.I have lost quite a bit of weight during these two years as well. My GP and I have tried numerous medications for headaches (gabapentin, tramadol(reacted negatively), advil, tylenol, elavil, etc) with absolutely no result. What concerns me is that the headaches associated have actually gotten far worse and my neurologist at my last LP put them off to being simple migraines and walked out on me. From the research I have done on the condition i have found that LP measurements can be low at times but the condition is still present. I now have daily underlying throbbing headaches that go on all day with almost daily stabbing headaches. I am trying to start my new career and this is severely affecting my life. What I would like to know is, should I be looking in a different direction for a cause or is it likely that this is still my IIH?