Hi, I just recently started on this website I have spina bifida occulta I do have a fat tumor protecting the cord on my lower back. Feel free to contact me if you wish too
Hi, my daughter has spina bifida occulta with tethered cord syndrome. She had surgery to release her spinal cord in january this year, she is doing great. She is 1 and has just started to walk :)
Many doctors she was seen by dismissed the dimple into her spine as 'nothing much' - an MRI scan ordered by the fantastic neurosurgeon Neil Buxton at Alder Hey childrens Hospital revealed otherwise. This condition could have effected her legs , feet or bowels/bladder if it remained undiagnosed.
Hi I also have tethered cord, and chiari malformation.
I have a cyst where my dimple is......is it possible ur tumor is a syrinx?
We do discuss these topics on the chiari forum here on MedHelp.
Hi, I am 33 year old and I also have Spina bifida occulta with fat tumor. I had operation to release fat tumor in last August. I would like to contact with someone have the same problem.
Hello I am a 32 years old & though I have never be seen by a doctor I believe I have a form of spina bifida, I have a fatty/lump right below the small of my back, I would like information on your surgery, I have lived with this my whole life.
hi there.... i had a spinal cord tumor removed in march of this year. i am still in "recovery" but most of the time i feel like i am just getting worst. i am hoping that i just need to find that one thing that works and gets me better. hoping to get back to normal someday. feel free to contact me if you wannna chat.