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Lymes Disease Encphilitas

My mother has undergone numerous problems issues after being diagnosed with Lymes Disease although our family was told that this is the worse case of Lyme they have witnessed..obviously with so many Dr.'s involved, and so many specialists it is almost as though my Mother is being used as a Guinea Pig....she has been video taped....2 spinal taps, the first came back positive for the Lyme Western Blot test, it has proceeded into her brain thru the blood and we are now at a standstill with serious behavioral problems....my Mother has a Neurophychologist, and about 5 other specialists all dealing with her Lymes Disease,,,,,,yet medically there hasn't been anything that has helped her.....(after being prescribed Depaco, my Mother was in super mania mode and the police were called, she ended up at MA General in the Pych Unit......not the proper place for my Mother although one of the best Hospitals in the World, she was medicated beyond belief and slept for two days, I asked the Dr's the plan of treatment because I felt that if they were just going to medicate my Mother into oblivion then we should take her home, not have her in a locked ward....Well we are now awaiting the spinal tap results to see if there is more residual Lyme in her spinal fluid, yet between all of the specialists, of which there may be too many... there has not been a solution to my mothers calming of the brain....Depaco is the medication that sent her out of her mind...and since then no medications will be given with benedryl, yet she is just as bad if not worse than when this all started, although, I feel she was much better after being given the antiobiotics on the pick line for a month, my Mother's face was paralyzed and she could only drink water from a spoon.......Now her paralysis in her face is gone, yet her mental health has declined severely, she cannot stop moving, and has delusions, that she believes are real......... My Mother could drive a car and buy beautiful clothes for my children although not feeling well just three weeks prior to having her diagnosis.....Please help I am losing faith in the medical field on issue of Diseases that effect the brain and mental thinking.......NO one seems to be able to help my Mothers brain medically and I would like to know if there is anything else we can do......I am losing faith in the medical community for reasons that would probably cause some disbelief with many Physicians...........Such as a spinal tap being performed by a neurologist, , who handed the tools over to a psychiatric doctor and then back to him again claiming my mother had so much arthritis that it was very hard to get to her spinal cord to get the fluid,  after six tries that I was aware of because I was in the room trying to hold my mother still, finally it was done....We need to know what works in a situation with mania and delusions without putting my Mother in a facility that is going to just lay her out flat for days, yet after 6 days my Mother was still the same when she woke from her induced state other than her confusion of why she was locked up.......with all of the crazy people.........without anything to eat or drink,,,,,we need to know what has previously worked in these cases.....I am losing faith in the medical profession when my Mother has seen the best of the best and yet nothing has changed and yet become worse.....Please help......

Thank you,

Carla


This discussion is related to Encephalitis, Lyme's, Mycoplasma??.
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Avatar universal
You mother is seeing the wrong doctors.  She needs to see a LLMD - Lyme Literate Doctor.  Google that and you'll find a lot of support groups that can help point you in the right direction.  Also, BUY the documentary "Under Our Skin" and you will find hope and direction!  She needs to be on IV antibiotics for a minimum of 4 months to kill off the full life cycle of the bacteria.  Neurologists will be of no help!  Good luck!
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Avatar universal
MEDICAL PROFESSIONAL
Lyme disease is the most common tick-borne disease in the Northern Hemisphere. Borrelia is transmitted to humans by the bite of infected ticks belonging to certain species of the genus Ixodes (the hard-bodied 'hard ticks'). Early manifestations of infection may include fever, headache, fatigue, depression, and a characteristic skin rash called erythema migrans.
Left untreated, late manifestations involving the joints, heart, and nervous system can occur. In most cases, the infection and its symptoms are eliminated with antibiotics, especially if diagnosis and treatment occur early in the course of illness. Late, delayed, or inadequate treatment can lead to late manifestations of Lyme disease which can be disabling and difficult to treat.
You have to understand that your mother got effected and the Doctors can only do what they can, the recovery will only depend on how much the manifestations have progressed. You have to have faith in medical treatment and follow a good Neurologist at a good centre and hope for some recovery for your mother.
Take care!

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