Hi, I'm 22 and suffering from an unknown illness.
I've been having a whole host of neuro problems for about a year now. The most common neuro symptoms have included low and high frequency hearing losses, ear pain, extremely tight muscles in my neck, back, and jaw area, dizziness, neck pain, and numbness in my neck where it meets the base of my skull. I've also experienced tremors, 'high pressure headaches', vertigo, parasthesias, rumbling sounds in my ear, visual auras (snow, static, flashes), shortness of breath, red eyes, some brand of seizure, and even limb weaknesses, etc., that are not quite as common.
These symptoms come in clusters, and are often set off by:
1.Doing things that increase blood or intracranial pressure (bending over, laughing, coughing, straining, crying, tensing my muscles in my head and neck, etc.)
2. Moving my neck too fast or in a strange way (to the side too far, too far up, too far down)
3. Doing/being around things that produce shock waves (loud bass noises, running, dancing, etc.)
4. Loud-ish noises of any kind (most likely migraine related here)
5. Sleeping in any position
6. Stress and panic attacks
I have preliminarily been diagnosed with otic and basilar migraines, but some of my problems seem all too similar to recurring neck strains. Like today; I tripped on the sidewalk (didn't fall), but my neck went forward and started cracking. I start feeling woozy, dizzy, and some of my hearing quits; an hour later I still feel this way and have a bit of limb weakness. I have a nauseating numbness down the back of my neck. This happens pretty much whenever I put pressure at the back of my neck, and I've had 3 other 'injuries' like this since May.
I've been through many tests (CT with contrast, MRI of head and Neck, MRA, X-ray) and they have found absolutely nothing wrong. My cervical spine is abnormally straight, but that's about it.
To date I have also seen 3 ENT's, 3 oto-neurologists, 1 neurologist, and a cervical spine specialist, and they can't find a definite answer. I also went to the ER once, had a CAT scan, and they found nothing. The ear docs have all performed audiograms, which are really whack in that my hearing keeps going up and down. More than one has suggested migraines, and I tried a migraine diet, 3 medications for it, and a trigeminal nerve block; nothing remotely helped, and 2 medications actually made me sicker (propanerol, topomax)
Beyond that, I have had many other conditions ruled out: No MS, no tumors, no cervical disc issues, no autoimmune disease (lupus, rheumatoid arthritis), no lyme disease, no TMJ, no chiari malformation, and no major vessel blockages in my brain.
So now I guess what else could it be; I guess it has to be one of the rarer diseases then? It has to be something that eludes the standard tests I've already had.
My guess is that it is a small vessel problem, involving veins/arteries they can't see on the standard MRA or CT, which are being affected by moving my neck and doing certain things. This may especially be the case for my inner ears, but I just don't know. My other guess is that something is up with my intracranial pressure, but I lack (most of the) eye symptoms and severe headaches that usually go with that disorder.
I don't know. Getting kind of hopeless as my dealing with doctors has turned into a cycle of me getting passed forth between the same kinds of doctors, with no insight.
Does any of this sound remotely familiar to anyone here?