Occipital Neuralgia needs more attention!

[Melinda1964]

I have suffered for nearly 2 years!  Because Doctors are clueless about "All" the horrific symptoms to having Occipital Neuralgia.  Such as when it attacks the scalp.  The effects are horrific and very painful.  I am fortunate the Drugs such as anticonvulsant did not work for me because they are awful medications and awful side effects with them that can create new health issues. Please stop giving them to people with Occipital Neuralgia!!!
I found a Neurologist that finally is well educated on Occipital Nerves.  I am getting Botox injections all over my scalp.  After nearly 2 years chasing false hope for help on this awful disorder.  Steroid injections are useless, only cause pain and flare ups.  
Occipital Neuralgia needs much more awareness and information online for people like myself.  Why? Because it's embarrassing symptoms make you feel insane!  Yes, it causes hair to tangle, strands to twist and knot by themselves.  It also cause painful, burning scalp.  Sad when a Facebook Support Group knows more than Doctors.
Doctors need to listen and not pass judgement because they are not educated about rare symptoms.  SMH it's truly sad, and I feel for all patients out there suffering!  

[Melinda1964]

FYI: Occipital Neuralgia is much much more than a Migraine.