Avatar universal


I have been diignosed with this and was wondering if anyone who has had this could tell me what to expect as in test and treatments. What should I expect from my first appotment with the neurologist? Thanks in advance.
6 Responses
Sort by: Helpful Oldest Newest
209987 tn?1451935465
I haven't experienced this, but thought I would post just to let you know that someone IS here and listening...err reading.
Helpful - 0
620923 tn?1452915648

  Hi...PTC is when u have too much CSF, reasons r varied....could be u have an obstruction, or ur body is making too much too fast, or ur body is just not absorbing the excess.

Many times the Drs will try DIAMOX first to try and control the levels.

A tilt table test and a LP may be done as well as a Brain MRI.......

There is a member cath278 that has this and I am sure she will pop on and comment.

It all depends on how this was dx'd and how  they feel it developed and all drs r diff....

What symptoms and issues have u been having?
Helpful - 0
Avatar universal
I have had no stop headache and nause and vomiting for over 5 weeks. And my optic nerves are swollen. I went to a Retnia specialist and I also have some visual field loss.
Helpful - 0
Avatar universal
Thank you. It's nice to know someone is there.
Helpful - 0
397460 tn?1268533736
Hi every one. My name is Cath and I have IIH or as it is known state side,PTC.
It is a very rare disorder-illness and there is still not a lot known about it.
I have been sick for 4 years now, and have seen and done just about it all by now! If, any one needs some help, guidance or support, please message me and I will do all I can to help. Cath
Helpful - 0
620923 tn?1452915648

  So glad u joined in on this as u seem to have the most experience unfortunately on this.....

  It was also good to catch up with u....we have to keep in touch better...hope u have an enjoyable   Easter : )
Helpful - 0
Have an Answer?

You are reading content posted in the Neurology Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1483808356
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease