Hi - I was on 100mg a day for my migraines. Felt the same exact side effects. My friends called it "stupimax" however, it work wonderfully! Then my hair started to fall out. I realized I did not want to be dumb and bald so I stopped. I would love to take it again if someone knew a way to prevent the hair loss. I am taking extra biotin, selenium and zinc and that has helped boost the growth. Have you taken the evening primrose oil with the topomax and have seen the hair loss stop?
This is an interesting place. I went looking this morning for some information on Topomax and wound up here. I have been on Topomax since 10/06 for chronic migraines with dramatic improvement in a 40 year history of suffering with them. That improvement has come with a price that I am now questioning. Because I have hypothyroidism I have unfortunately not experienced much weight loss (which I could afford) but due to a profound alteration in my taste buds, I have stopped drinking carbonated sodas, probab(I'm a life long Coke addict, the beverage-kind, probably, in part, headache-related, because of all the caffeine in cokes). I think that side-effect alone will probably save me from type 2 diabetes, so even though I will never enjoy another Coke, it's probably a good thing. I have had really severe cognitive problems with the Topomax though and have a really hard time with my memory, concentration and word finding. I feel profoundly stupid at times, and this is happening at a time when my cognition is getting slammed by menopause as well, so I am REALLY profoundly stupid. It's a good thing my husband is a neurologist who understands that I am having side-effects and not sliding into early dementia, but I wonder myself sometimes. It's funny, I have noticed hair loss, too, but have been attributing this to my thyroid, even though I feel pretty good otherwise. My hair is now as thin as it has ever gotten when I was very sick with my thyroid, but I don't have any of the other thyroid-related symptoms I had back then, so maybe it's the topomax. I had no idea topomax caused hair loss. I will tell you that if you read the patient forums for thyroid disease, hair loss is a common problem and one that is not well-addressed by traditional medicine. Some patient advocates and patients swear by evening primrose oil which was mentionned above, in twice daily doses of 1000 to 1300 mgs, however you can find it. You may need to use this for several months before you see results. I am hoping it is worth a try. In the meantime, I am cutting back on my Topomax dose myself. I am down to 75mg per night. Iam still not experiencing an increase in headaches, but I'm no smarter yet either. Good luck, all. God bless.
OH-I was on 75mg 2xs a day for about 3 months.
I just recenly really started to notice it the last few months. I had experienced the same thing after the birth of my 2 children, so I thought maybe it was hormonal and never thought about medicine doing it. I honestly don't remember off the top of my head what dosage I was on. I am now on Keppra at 1500mg a day. I had a cavernous malformation that caused a seizure last Sept and had it surgically removed almost a year ago (Dec. 14) I don't remember most of this past year! Which is hard w/ 2 young kids! I will try to find out what my topomax dosage was and let you know.
Did you hair loss stop on the Keppra? What was your Topomax dosage?
Hin
Most probably your hair loss is due to the drug topomax .
I am unable to understand why the neurologist is not accepting that. May be he feels there is some other cause.May be he felt you will benefit from this drug.
But most antiepileptic drugs cause hair loss.
And Topomax certainly causes hair loss. http://www.rxlist.com/cgi/generic/topiram_ad.htm
You can meet a skin speacialist to rule out any other cause.
Take care and don't stress too much about the hair loss as stress aggravates hair loss.
WOW... I was on topomax for a couple of months and now see a conection w/ me. I can pull tons of hair out when I am taking a shower and then a noticable amount comes out when I am combing it. The other day I was wondering why am I loosing so much hair. I never have talked to my neurologist because it has happened after being on it. I had many of the other side effects that I got off of topomax and I am now on Keppra, and have finally come out of the topomax fog I was in....