Aa
Aa
A
A
A
Close
Avatar universal

Strange Head Sensation and symptoms - Migraine/epilepsy/something else?

If you could take the time to read this and then give me your thoughts, hopefully some new theory could emerge:

it all started abouth 2 years ago, when I was lying in bed in the morning and in that 'about to get up' and 'still drowsy, lying in' stage I would have an odd sensation in my head. Sort of like a head rush, but more overpowering. How I would imagine a seizure to feel like if it was only in the frontal lobe of the brain (and not in the rest of the body).When awake I would never have these, and they happened very very rarely.

The next stage was when I was sitting down at the computer, and I experienced the same sort of sensation as above, but while i was awake. and much much less intense. again this happened rarely.

After this they became more frequent when awake. Then after a weekend Drinking with friends, the 'Hangover' was not regular headache, but these "odd rushes" (that sometimes feel like a flutter above the eyes, but sometimes feel like a muscle cotraction starting off softly contracting then intenselt contracting then softly then finish). These would happen once every 20 seconds. then next stage after having these frequent 'rush' feelings I gradually began to see vast amounts of eye floaters and eye flashes. untill flashes seemed permanent. Muscles would twitch a lot. I will get a feeling of swaying within my own head, even if Im not swaying physically. sometimes when a 'rush' occurs i feel as if my head is pulled backward. Sometimes as if one side of my brain is heavy, then the other side becomes heavy etc. I catch myself starring into space often, just at one place, losing focus and 'looking through' the object. and I feel withdrawn from things at the moment, as if I have no emotional attachment to them, I just see the things, as if I cant properly absorb the information (another example is - recalling past events, but the normal emotion that goes with memories doesnt seem to  be there). Would have some cold patches appear all around my body, like pins and needles, but feels almost like very fine cold water on small patches of skin. NONE OF THIS IS PAINFUL

(* Note - the word rush is not at all like a head rush when getting up. feels more electrical, or muscular orientated)

Lately Im having the suspicion that the 'rush' feeling has a connection to my eyes, sometimes my eyes shake when one comes about. eyes are never drawn up to the skull like in a fit. This correlates with the eye flash disturbance etc. Some Optic Nerve abnormality, or due to the swaying feeling possibly some brain stem problem (which is the center for eye and ear nerves). Or Epilepsy.

I went to many Doctors (6 or 7) and all of them had no idea. saying it could be some sort of migraine. No tear in the retina. Epilepsy hasnt ever come up. symptoms are always described as strange.  

Any thoughts would be much appreciated, or if anybody has similar symptoms.


Additional information about me - my posture (neck) is a little hunched, could this be causing some sort of tension that causes the above? I use the computer a lot. never had a serious illness. have smoked marijuana before. not a lot though. did binge drink, but havnt since symptoms

EMAIL - ***@****

179 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Simple partial seizures. Otherwise known as focal seizures. I get the same things.  Im on keppra now.  It seems to help. I had a focal seizure that started completely out of the blue.. with waves of feeling in my head.. Then tunnel vision then twitching in the right side of my face.  That was one month ago.  I have been having the wavy feelings in my brain several times a day ever since.  It has completely turned my life upside down.  Every time I feel it, I'm worried out will turn into a real seizure. "The big one". My neurologist says that it most likely will.  So I started medication. It helps.  But if I miss even one dose.. the waves in my brain return.
Helpful - 0
Avatar universal
I started having what I called a "whoosh" about 2 years ago, I could not describe it  My doctor said it was anxiety.  Then I had one that came with a blackout.  I had all the tests, and wearing a heart monitor, I had another blackout.  I had arhythmia, and now have a pacemaker.  The readings say everything is fine, but I still have these events.  I have the whoosh often, and sometimes I think I have blacked out again.  I am always disoriented after, unable to remember who my neighbors are or the names of the streets in my neighborhood.  Slowly I feel normal again.  It is very dream-like, and I feel as if I have had a refreshing nap.  The technician says it is PTSD.  I have doubts about that.  But I do encourage all of you to ask to wear a heart monitor.  I have never fallen during a blackout, so it is not complete loss of consciousness.  It is as if I am sleepwalking.  I have never remembered to time it.  I fear I was misdiagnosed.  But the puzzle is why are the pacemaker readings normal?  Triggers seem to be either something that looks very unusual to me, doing yard work, or riding my bike in the park.  
Helpful - 0
Avatar universal
try medicinal marijuana once. may be that will help. be particular having very small dosage
Helpful - 0
Avatar universal
is it like tickling inside the brain?  like someone tickles in your stomach, funny types? if it is, it is considered serious in ayurveda. do something urgrntly.
Helpful - 0
Avatar universal
I never have a headache following but prior to it being 'thisway' it was a snapping feeling in the back of my head, Then felt wet and warm, like I'd snapped a brain tube or something of that elk. I still get that on rare occassion actually but now 99.9% is what everyone else is on about. Though I do remember during my teens when it seemed they happened together hand in hand.
Helpful - 0
Avatar universal
Sounds partially like dehydration and mild adrenal exhaustion,

Try to modify and improve your diet and drink plenty of clean, purified or distilled water with lemon or lime or herbal teas. Find out if you have any food allergies and eat mostly foods high in organic minerals such as fruits and especially vegetables.  To restore adrenal energy, try sipping on tall freshly squeezed organic vegetable juices which you can get at health food stores such as Whole Foods Market.

See if that helps.
Getting on the good side of nature is an eventual cure-all.
Helpful - 0
Have an Answer?

You are reading content posted in the Neurology Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease