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Strange Head Sensation and symptoms - Migraine/epilepsy/something else?

If you could take the time to read this and then give me your thoughts, hopefully some new theory could emerge:

it all started abouth 2 years ago, when I was lying in bed in the morning and in that 'about to get up' and 'still drowsy, lying in' stage I would have an odd sensation in my head. Sort of like a head rush, but more overpowering. How I would imagine a seizure to feel like if it was only in the frontal lobe of the brain (and not in the rest of the body).When awake I would never have these, and they happened very very rarely.

The next stage was when I was sitting down at the computer, and I experienced the same sort of sensation as above, but while i was awake. and much much less intense. again this happened rarely.

After this they became more frequent when awake. Then after a weekend Drinking with friends, the 'Hangover' was not regular headache, but these "odd rushes" (that sometimes feel like a flutter above the eyes, but sometimes feel like a muscle cotraction starting off softly contracting then intenselt contracting then softly then finish). These would happen once every 20 seconds. then next stage after having these frequent 'rush' feelings I gradually began to see vast amounts of eye floaters and eye flashes. untill flashes seemed permanent. Muscles would twitch a lot. I will get a feeling of swaying within my own head, even if Im not swaying physically. sometimes when a 'rush' occurs i feel as if my head is pulled backward. Sometimes as if one side of my brain is heavy, then the other side becomes heavy etc. I catch myself starring into space often, just at one place, losing focus and 'looking through' the object. and I feel withdrawn from things at the moment, as if I have no emotional attachment to them, I just see the things, as if I cant properly absorb the information (another example is - recalling past events, but the normal emotion that goes with memories doesnt seem to  be there). Would have some cold patches appear all around my body, like pins and needles, but feels almost like very fine cold water on small patches of skin. NONE OF THIS IS PAINFUL

(* Note - the word rush is not at all like a head rush when getting up. feels more electrical, or muscular orientated)

Lately Im having the suspicion that the 'rush' feeling has a connection to my eyes, sometimes my eyes shake when one comes about. eyes are never drawn up to the skull like in a fit. This correlates with the eye flash disturbance etc. Some Optic Nerve abnormality, or due to the swaying feeling possibly some brain stem problem (which is the center for eye and ear nerves). Or Epilepsy.

I went to many Doctors (6 or 7) and all of them had no idea. saying it could be some sort of migraine. No tear in the retina. Epilepsy hasnt ever come up. symptoms are always described as strange.  

Any thoughts would be much appreciated, or if anybody has similar symptoms.


Additional information about me - my posture (neck) is a little hunched, could this be causing some sort of tension that causes the above? I use the computer a lot. never had a serious illness. have smoked marijuana before. not a lot though. did binge drink, but havnt since symptoms

EMAIL - ***@****

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Avatar universal
Hi, i am 47 year old and am trying to wean of HRT medication. I had similar sensation like a funny bone, but in the head- lasting a couple of seconds . Its scary and felt like how I imagine  a seizure would feel and I felt Slso felt imbalanced. I had first one while sitting down and second one while sleeping. I think it may be stress plus ear imbalance related. I am used to ear imbalance problem- but this was the first time that it was accomoanied by this head rush/electrical sensation.
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I have the same thing and I have one it would be a big one my eye felt like my eyes were going to roll in the back of my head and I am not dizzy it almost feel like I am having a seizure but the first time I experienced it was back in 2002 and then it stop it came back to me in January of this year 2018 I saw my doctor the next day my doctor thinks that part of my heart is enlarge plus I got COPD.
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I have the exact same problem and it is driving me insane. I get it a lot!
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Avatar universal
To all the people that have experienced this- have any of you binge drank a great deal? I don't mean a long drinking period spanning many years. I mean many many INSTANCES of binge drinking; like 7 days of heavy drinking this week, then being sober for the next week, and then 4 days of heavy drinking followed by 2 weeks of being sober, then 10 days of drinking, etc. The human body responds differently to this compared to, say, 7 years of daily drinking. I am quite confident alcohol is a major factor here.
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Avatar universal
I get the exact same symptoms, I dont have it for months then i get it everyday for days, making me feel really sick, I didnt know if it was my ears or related to migraine ??
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Same symptoms, it becomes very difficult to explain it to someone.
Anyone know what it is, i thought alcohol consumption can be the cause but it is not.
Avatar universal
hi
I am also suffering with whoosh feeling in my head, legs, arms and ears..it is very uncomfortable that I cannot sleep properly.  my eyes become red during this whoosh feeling. ..but this whoosh feeling ends after 3 minutes then I become fine but again after 20 minutes I have that whoosh feeling.. I was diagnosed with temporal lobe epilepsy and was taking carbamazepine.  but I abruptly stopped the medicine as the whoosh feeling is induced too much by the use of this drug..i am still waiting for the new drug to be prescribed by my neurologists...I am so scared ..as I feel sometimes during this whoosh feeling that I am going to die...I live alone as well which makes things more worse for me...hate this whooshi feeling
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I also have all those symptoms but have never gone to a doctor to get checked. I always get these rushes when i have migraines. It feels horrible but ive just tried to ignore it. Very hard to do, and im only 14. Its really hard to concentrate in school and people ask me if im okay because i just space out so much and i cant pay attention to anything. I have a hard time trying to recall things i just learned and i can never stop moving. Its either im swinging my feat or tapping my pencil. And i dont even know im doing anything until some1 gets annoyed and tells me to stop. I wish i knew whats wrong with me
Avatar universal
I just wrote a whole long comment and then lost it... So...This is all caused by anxiety/depression meds.  I am suffering the same too.  I call it wonky head with a low pitched hum in my ears.  . It happens when you are entering a withdraw from the meds.  I have taken EFFEXOR for about 8 years now.  I tried for a whole year to get off of it and I couldn't.  I have these same problems as everyone here.  Luckily my Doc takes Effexor too and knows what I am talking about with my wonky head.  If your have taken or are taking any of the popular anxiety/depression meds...This is your problem.  I cannot believe this is happening to this many people.  Something really needs to be done.  We have to tell someone about what is happening to us!!!  Who do we start with???  CDC,  drug companies...insurance companies...Who??? If we all would tell about this... they would have to listen.  I am here for anyone who has questions, but I need to rest now...Good luck everyone!!!
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