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Stroke/ FMD /white coat syndrome

I was diagnosed a few years ago with Fibromuscular Dysplasia. It is prevalent in my renal and carotid arteries. The last time I had an MRI it showed progression in my carotids. I have symptoms but I am having such a difficult time talking to a physician that will take me seriously. I have had a dissection, multiple neurological events that I thought were TIAs, and a month ago I went to the ED with stroke symptoms, was treated with tPa, and now my Primary Care told my husband and me, that I did not have a stroke, when I saw him last week. All the CT scans and MRIs come back normal. I don't know what to believe right now. I had been trying to put off seeing a doctor because it causes such anxiety, I get upset just thinking about going. My life, outside of doctor visits, is pretty good. My husband is so supportive, my children are healthy, smart, well adjusted. Apart from the symptoms I experience, I am happy. I have come to terms with being diagnosed with FMD. I feel like if it's classified as asymptomatic, then my symptoms could be from something else and no one is looking for anything because I have FMD. I have a clinic near by and I am a patient there. I guess my question is, does anyone else feel like they're experiencing anxiety when they have to see yet another specialist?
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